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Thyroid: burning feeling neck/ear
Hi,
It was 3 mo. ago I woke up with a swollen goiter, difficulty breathing, alot of pain when swallowing, dizzines, numbness mixed with pain, headaches. It continued a little over 1 mo. breathing being worse 3 times. I believe I may have had the goiter maybe for 1 yr as I noticed a difference in my swallowing and neck.
I was in a rollover car accident 4yrs ago that caused whiplash, stiff neck pain that I still have. When I move my neck I sometimes still feel/hear crackling.
I'm on generic synthroid 2 wks. My goiter has grown since the past 3 months and right side of my neck is thick, there is an area that seems to be attached to the goiter. I had ear pain in both ears for about 1 mo, my right ear hurt more. The pain was not that of an ear infection, it was different mixed with hot burning feeling. I was feeling good 1 week starting 2 days before I took my first pill.
My ear pain is back but it's more of the burning feeling I'm experiencing and seems to be changing from ear to ear (one more than the other or both at the same time). At the same time the side of my neck mostly right side and under my jawline is also feeling this way. For the last 2 yrs I have also been getting painful sharp pain in my right eye.
Something strange is growing behind my right ear one is almost like a blister more oval, the other a little bigger and hard they feel sore if I press it.
May Dr says I may be hypothyroid what really concerns me is cancer. Is there a chance I may have it or can these symptoms be normal? I appreciate your opinion.
Thank you for your time
It was 3 mo. ago I woke up with a swollen goiter, difficulty breathing, alot of pain when swallowing, dizzines, numbness mixed with pain, headaches. It continued a little over 1 mo. breathing being worse 3 times. I believe I may have had the goiter maybe for 1 yr as I noticed a difference in my swallowing and neck.
I was in a rollover car accident 4yrs ago that caused whiplash, stiff neck pain that I still have. When I move my neck I sometimes still feel/hear crackling.
I'm on generic synthroid 2 wks. My goiter has grown since the past 3 months and right side of my neck is thick, there is an area that seems to be attached to the goiter. I had ear pain in both ears for about 1 mo, my right ear hurt more. The pain was not that of an ear infection, it was different mixed with hot burning feeling. I was feeling good 1 week starting 2 days before I took my first pill.
My ear pain is back but it's more of the burning feeling I'm experiencing and seems to be changing from ear to ear (one more than the other or both at the same time). At the same time the side of my neck mostly right side and under my jawline is also feeling this way. For the last 2 yrs I have also been getting painful sharp pain in my right eye.
Something strange is growing behind my right ear one is almost like a blister more oval, the other a little bigger and hard they feel sore if I press it.
May Dr says I may be hypothyroid what really concerns me is cancer. Is there a chance I may have it or can these symptoms be normal? I appreciate your opinion.
Thank you for your time
I was reading the posts & saw that you & Cegee are both doing RAI. I noticed how positive you are & funny!:) I hope it helps you through this. Good luck & Take care...
Yes, I do feel like there's a lump in my throat & sometimes when swallowing like there is something stuck in there. The pain is usually off/on through out the day. I can't really tell what triggers it though. I'm taking Levothyroxine 50mcg. I notice about 2-4 hrs after taking it I start feeling worse. My energy seems better, still get dizzy,some brain fog. The 3 days I wasn't on it the pain in my ears was decreasing. I took it yesterday/today and my ears were hurting all through the night. I get some dull & sharp pains in my head suddenly, tingling through my face. I'm going to have to try keeping a log on my symptoms.
Thank's for your prayers I know they helped. My husband was told he had to wait 2 mos. after getting hired directly through the Co. before getting his medical benefits. Yesterday they gave him an orientation appt.(Nov 2nd) to discuss Medical benefits. I hope & pray that I can be added on & qualify. I feel like cancelling appt with Endo. It cost $260 for my first appt. still owe $160 (need to pay before I talk to him). I can't wait to change Endo's asap. I feel bad not giving him a chance but it's for the best.
Have you heard of healthcareOne, it's a discount medical card.
I got it before I started posting here. It's $49.99 mo so far it hasn't helped. My Dr's are not on their providers list. Someone told me of combination of insurances but is so confusing to understand.
How long do you need to stay on the diet? Lettuce & tomatoes doesn't sound very tasty when it's dinner. I know it's hard, try to stay positive & remember it's for your health. I'm trying to learn patience & taking one day at a time. When I realized I was sick, my family wanted to know what was wrong. My mom & older sister knew 3 people who had a thyroid problem. They asked around & were told there was no reason for me to worry that it goes away by taking medication. In my heart I felt like there was probably more to it. Now with the support of people who I can relate to, I don't feel alone anymore.
Thank's for your prayers I know they helped. My husband was told he had to wait 2 mos. after getting hired directly through the Co. before getting his medical benefits. Yesterday they gave him an orientation appt.(Nov 2nd) to discuss Medical benefits. I hope & pray that I can be added on & qualify. I feel like cancelling appt with Endo. It cost $260 for my first appt. still owe $160 (need to pay before I talk to him). I can't wait to change Endo's asap. I feel bad not giving him a chance but it's for the best.
Have you heard of healthcareOne, it's a discount medical card.
I got it before I started posting here. It's $49.99 mo so far it hasn't helped. My Dr's are not on their providers list. Someone told me of combination of insurances but is so confusing to understand.
How long do you need to stay on the diet? Lettuce & tomatoes doesn't sound very tasty when it's dinner. I know it's hard, try to stay positive & remember it's for your health. I'm trying to learn patience & taking one day at a time. When I realized I was sick, my family wanted to know what was wrong. My mom & older sister knew 3 people who had a thyroid problem. They asked around & were told there was no reason for me to worry that it goes away by taking medication. In my heart I felt like there was probably more to it. Now with the support of people who I can relate to, I don't feel alone anymore.
Sorry, just got home. Had to attend a dinner tonight and it was really taught to just eat "naked" lettuce and tomatoes while everyone else was enjoying a full dinner. Oh well, if it means getting my RAI over with, I'll deal with it.
About the meds: you are going to have to have your labs run regularly and your ***NEW*** (hint) endocrinologist will have to, basically, make an educated guess what type and dosage of medication to put you on. I don't remember ever talking to or reading anything from anyone who didn't have to have their medications adjusted a few times. Mine started me on Levothyroxine and it DIDN'T work for me - the same dosage of synthroid worked great though. All of my sisters and I have had our medication levels adjusted over time. I started at .075mcg and am now on .200mcg. One of my sisters is on .300mcg
It takes some time, labs, and great communications with your endocrinologist. Both my endo and I preferred to keep me on a slightly higher dosage which still kept me in the target area of my labs and allowed me enough energy to keep up with my life.
As for the confusion and wanting to cry, welcome to dealing with idiot doctors, being scared out of your mind, and probably a good dose of brain fog. Stopping your meds is probably adding to the brain fog. Please make a call to get an endocrinologist soon you may not need a referral - call the endo's office and explain the problems you have been having - maybe talk to a nurse at the doctor's office. I'm concerned with you being off your medication with a goiter and nodules and no good medical treatment.
My favorite is when a doctor will tell you to "learn to relax" - the tension from holding back a scream (or choking the doctor) sends me on a whole new level of stress.
As for the pain/numbness with swallowing. It gets painful if my head is turned wrong sometimes but the rest of the time it feels like I have a lump in my throat. Is that similar to what you are experiencing?
About the meds: you are going to have to have your labs run regularly and your ***NEW*** (hint) endocrinologist will have to, basically, make an educated guess what type and dosage of medication to put you on. I don't remember ever talking to or reading anything from anyone who didn't have to have their medications adjusted a few times. Mine started me on Levothyroxine and it DIDN'T work for me - the same dosage of synthroid worked great though. All of my sisters and I have had our medication levels adjusted over time. I started at .075mcg and am now on .200mcg. One of my sisters is on .300mcg
It takes some time, labs, and great communications with your endocrinologist. Both my endo and I preferred to keep me on a slightly higher dosage which still kept me in the target area of my labs and allowed me enough energy to keep up with my life.
As for the confusion and wanting to cry, welcome to dealing with idiot doctors, being scared out of your mind, and probably a good dose of brain fog. Stopping your meds is probably adding to the brain fog. Please make a call to get an endocrinologist soon you may not need a referral - call the endo's office and explain the problems you have been having - maybe talk to a nurse at the doctor's office. I'm concerned with you being off your medication with a goiter and nodules and no good medical treatment.
My favorite is when a doctor will tell you to "learn to relax" - the tension from holding back a scream (or choking the doctor) sends me on a whole new level of stress.
As for the pain/numbness with swallowing. It gets painful if my head is turned wrong sometimes but the rest of the time it feels like I have a lump in my throat. Is that similar to what you are experiencing?
I don't undertsand why the pain when swallowing changes so much it's not always there it's more like numbness?
Utahmomma I just saw your other post, I can't believe I missed it! You're lucky to have a good butcher though, I've never had one. I bet it has to be an adjustment trying to be strict with your diet. Talking about cheese, I know. My mom makes homemade white cheese like the cacique brand that's called queso fresco casero, I haven't learned though. Anyway, be strong and just think it's worth it & healthy! Take care.
Utahmomma I just saw your other post, I can't believe I missed it! You're lucky to have a good butcher though, I've never had one. I bet it has to be an adjustment trying to be strict with your diet. Talking about cheese, I know. My mom makes homemade white cheese like the cacique brand that's called queso fresco casero, I haven't learned though. Anyway, be strong and just think it's worth it & healthy! Take care.
Sorry, I didn't mean to worry you. That is very sweet of you. Dr wants me to wait from stopping med until she can find out what the Endo's notes are. She didn't say about ordering another ultrasound or bloodwork. I hope she calls me today so I can bring it up and ask if she can reffer me to one of the places your friend has recommended. I will probably need the refferal right? Can you please tell your great friend, I really appreciate and Thank him from the bottom of my heart in taking his time to do this for me, God bless him. Utahmomma I don't know what I'd do without you, God bless you and Thank you for caring & helping people like me.
I read the link, you are right it will more likely be worse without the med. I don't know what to do though, what if it's the wrong med for me, what if I'm not hypo? It's so hard making decisions, just makes me wanna cry. I don't know the difference in medication or dosage for hypo/hyper. I'm feeling unbalanced, I was feeling this way before starting the med & really sleepy. Do you think I should still take the medication even if I may be hyper instead of hypo?
I met a friend at my kids school (Aug) that's a massage therapist. She was telling me about a nutrition program she is studying & doing. She said you go by a diet, it's different for everyone. You get tested by a sample of urine & saliva. Going by #s it will let you know what nutrients your body is lacking or has too much of. What possible health problems your #'s are aiming towards & what to do to get them right. I'm thinking of trying it to see if there's a change.
You're not feeling very well being off your med, that's terrible. Hopefully the RAI can make a difference and you can get better soon. Do you need to take the synthroid for life? My Endo had mentioned finding out if I had to take medication for life? That sounds scary! I'll let you rest & take care of your self.
zzzzzzzzzzz.......(just a nap to try & get through the day)
I read the link, you are right it will more likely be worse without the med. I don't know what to do though, what if it's the wrong med for me, what if I'm not hypo? It's so hard making decisions, just makes me wanna cry. I don't know the difference in medication or dosage for hypo/hyper. I'm feeling unbalanced, I was feeling this way before starting the med & really sleepy. Do you think I should still take the medication even if I may be hyper instead of hypo?
I met a friend at my kids school (Aug) that's a massage therapist. She was telling me about a nutrition program she is studying & doing. She said you go by a diet, it's different for everyone. You get tested by a sample of urine & saliva. Going by #s it will let you know what nutrients your body is lacking or has too much of. What possible health problems your #'s are aiming towards & what to do to get them right. I'm thinking of trying it to see if there's a change.
You're not feeling very well being off your med, that's terrible. Hopefully the RAI can make a difference and you can get better soon. Do you need to take the synthroid for life? My Endo had mentioned finding out if I had to take medication for life? That sounds scary! I'll let you rest & take care of your self.
zzzzzzzzzzz.......(just a nap to try & get through the day)
Sorry I just came around, busy days (feeling like I haven't slept enough). Thank you so much for this information. I will try to do something as soon as possible.
I saw my Dr 2 hrs away and she saw the bumps behind my ears, said they looked like cysts that could become infected but looked ok. That if they got really swollen and hurt alot I could call her to prescribe me an antibiotic (not to touch them). I don't mind the antibiotic.
I told her how I felt about the Endo she is going to try and find out what he wrote down regarding his evaluation of me.
Also, that I felt like stopping my medication because I didn't feel confident of a diagnosis from Endo. That I really needed to know if my goiter was cancerous and a sure diagnoses of hypo or hyper? She asked me if I had been diagnosed for my abnormal antibodies? She said my abnormal antibodies were high. Indicating a possibility of thyroiditis like Graves disease or Hashimoto's an example. I'm waiting on her call now.
I made a decision based on my gut feeling and stopped my medication. I believe I may have symptoms of hypo/hyper and I feel I may do more damage than good by taking it? Especially after having an experience like this with my ears and not knowing if my Endo is diagnosing me correctly. I was going through some strange thing. My scalp like in my head felt tingling like when getting goosebumps, constantly throughout the day. Weird feeling! I thought there were worms in there or something!
It's been 2 days without my med, I hope I'm doing the right thing. I seem to feel better just feel dizzy, sleepy, still some pain when swallowing.
My family Dr thought I was Hyper instead of Hypo. Is there a way to properly be diagnosed or is it just by how we say we
feel? How are you doing?
I saw my Dr 2 hrs away and she saw the bumps behind my ears, said they looked like cysts that could become infected but looked ok. That if they got really swollen and hurt alot I could call her to prescribe me an antibiotic (not to touch them). I don't mind the antibiotic.
I told her how I felt about the Endo she is going to try and find out what he wrote down regarding his evaluation of me.
Also, that I felt like stopping my medication because I didn't feel confident of a diagnosis from Endo. That I really needed to know if my goiter was cancerous and a sure diagnoses of hypo or hyper? She asked me if I had been diagnosed for my abnormal antibodies? She said my abnormal antibodies were high. Indicating a possibility of thyroiditis like Graves disease or Hashimoto's an example. I'm waiting on her call now.
I made a decision based on my gut feeling and stopped my medication. I believe I may have symptoms of hypo/hyper and I feel I may do more damage than good by taking it? Especially after having an experience like this with my ears and not knowing if my Endo is diagnosing me correctly. I was going through some strange thing. My scalp like in my head felt tingling like when getting goosebumps, constantly throughout the day. Weird feeling! I thought there were worms in there or something!
It's been 2 days without my med, I hope I'm doing the right thing. I seem to feel better just feel dizzy, sleepy, still some pain when swallowing.
My family Dr thought I was Hyper instead of Hypo. Is there a way to properly be diagnosed or is it just by how we say we
feel? How are you doing?
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