Thyroid symptoms

[punkin284]

i was diagnosed with Hashimoto's about a year ago. I had been to Dr after Dr with tingling, left sided numbness, wobbly legs, headaches, muscle cramps, twitches and so forth. I was started on synthroid and then taken off due to my TSH being 0.05. About a month after being taken off I felt pretty good. Then I started getting real weak and started having daily headaches so I asked for my Thyroid levels to be checked again which came back at 10.8, T4 4.8 T3 87
Anyways I started taking Synthroid again and have been back on it for about 4 weeks. So my question is regards to the symptoms that I am having right now if anyone has had these similar symptoms, tingling on left side of body, sometimes tingling in right arm, Bilateral leg weakness, headaches, and confusion(Jumbled thoughts, forgetfullness, cannot focus or concentrate) dizziness and muscular pain? I had contacted my Endo who said to come in and I did and I saw a NP who said that as long as my thyroid was out of whack that all of my symptoms are related. But this has been going on for weeks and I can barely function. I stumble thoughout the day and cannot function. Went to Neurologist who did not know and said that Thyroid would not cause this but did not know what was wrong. As of Friday my TSH was 6.0 but all of my hormones T4 and T3 normal T4 6.8 and T3 87. Has anyone experienced similar symptoms or heard of Hashimoto's encephalitis? I feel like I might go crazy if this continues. HELP!

[effie66]

hi

I'm new, got these results today

thyroid peroxidase ab H . 1000 IU/mL
thyroglobulin ab H 666 IU/mL

I have been put on 50mcg of throxine a day to start with a blood test review in 6 weeks, an ultra sound has been done, and the full report is not in, but appearance is textured, not smooth as it should be.

the doc says hashimotos

I am unaware of just how high is high in the various levels for the throid antibodies are as far as the hypothroidism is concerned?

[Pedromeda]

were your thyoid blood tests abnormal? if yes, on what did the doctor base your Hashimoto's?

[dani2776]

Just wanted to reasure you that I have Hashimoto's as well and I have every single symptom you listed and then some.  I was convinced I have MS because of all the tingling, muscle twitching, dizziness and weak muscles especially in the legs.  I feel as though I am going to fall or the floor is moving because I am so weak.  I had an MRI of my brain and have also seen a neurologist and MS has been ruled out.  My endo told me that all these symptoms are very much thyroid related.  Now I just wish I could believe it and stop searching for something else because I feel soooo bad and it is such a struggle to get through the day ;-)      

[punkin284]

I am sorry I don't know what they stand for either and they were in value to the reference range just not the TSH. The 3 was at the bottom of the range though. I am still trying to understand this and your reply has been beneficial./ Thanks alot

[TamraW]

I am not familiar with those T values. They are not frees. Did you lab post ranges?

:) Tamra

[punkin284]

Thanks you both for replying I did have my T3 and T4 done they were both within normal. T4 6.8 T3 87. I am not sure if they are the total or free but they are just listed as T4 and T3. But it is good to hear that I am not going crazy. I just didn't know if all of this could be related. I am having such severe attacks that I can barely make it throught the day. And with the confusion I feel like screaming because it is flipping me out. Again thanks it gives me some reassurance.

[TamraW]

I have no idea why a doctor would take someone with Hashi off of thyroid meds! It makes NO sense! The point of the meds is to trick the thyroid into going to sleep, so the antibodies no longer have anything to attack. If you discontinue the hormones, then the thyroid will get back to work, and the antibodies will get back to attacking it. Also, take Gimel's advice about the importance of FT3/FT4. Switch doctors again if needed.

Yes, your issues are related to Hashi.

Here are my Hashi symptoms:

Mild weight gain even while dieting
Extreme fatigue/napping
GERD/Heartburn/chest pain
Mostly constipation mixed with diarrhea
Depression/anxiety/forgetfulness/brain fog
Abdomen swells for no apparent reason
Neck/jaw pain/swelling/pressure
Scratchy voice
Migraines, dizziness and back of neck/head pain
Very cold feet and hands and sometimes a feeling like ants are biting my feet
Endometriosis (2 years ago – cured after one year of birth control)
Irregular/heavy periods and menstrual-like cramping in between periods
Ear pressure/pain
Voice is sometimes hoarse
Knee/joint pains – finger swelling and pain
Rash or scaly skin on neck, head, chest, chin, nose, right armpit down to waist
Dry eyes and sometimes soreness
Occasionally I have a mild hot flashes or chills
Night throbbing/pounding in ears that wakes me
Toe nails feel painful and brittle
Muscles in legs sometimes go wobbly and weak when I am standing
Tingling feet/hands/lips
Body temp ranges 97-97.5
Hair clumps in shower

MAKE SURE YOU TAKE YOUR VITAMINS, ESPECIALLY D, B12, MAGNESIUM, C, ZINC, A, ETC... WE HASHIS TEND TO LOSE VITAMINS QUICKLY. D WILL HELP WITH MUSCLE CRAMPING.

Take care...
:) Tamra

[gimel]

Your test results and your symptoms are telling you that you are hypo.   TSH is a pituitary hormone and is affected by many variables; therefore not a diagnostic, but only an indicator of thyroid problems.  The most important tests to run are free T3 and free T4, which are the actual, biologically active thyroid hormones that regulate metabolism and many other body functions.  You did not indicate having any FT3 and FT4 testing yet, so I assume this has not been done.  Your total T3 and total T4 results are not nearly as revealing as the "Frees", but even your Totals show that results are in the lower half of their ranges, which is another indicator of needing more meds.

So, I recommend that you read the following link, in preparation to returning to your doctor and insisting on testing for FT3 and FT4.  You will also need to initiate a discussion about wanting to be treated by testing and adjusting your FT3 and FT4 levels with meds, as required to alleviate your symptoms.

http://www.hormonerestoration.com/Thyroid.html