Totally confused.

[malena408]

Hi,
I am 29 year old female who initally started having thyroid issues 14 month ago after birth of my daughter.  I went into hyperthyroid (TSH less then  0.01) (T3 and T4 within normal range but hight normal) couple of months later I went into Hypo stage (TSH 15 and T3 and T4 normal low range)  Over next year my TSH went down to normal couple of times and then back up to 6, 7 range. ( in between 4 and 7)  I have tryed meds (eltroxin and syntroid) couple of time but have severe side effects such as headache that come and go, and general nervousness, poor concentration, foggy mind. ( I am a nurse and absolutelly cant work with all this going on in my head) Med symptoms usually stard 2-3 day and soon after I get off meds because I cant do much)  I would like to know because i am going up and down am i still in post partum thyroditis or do I have something else.  My doc said that TSH 6 is not bad and to stop coming so much.  I am seeing endo in June.  I am so desperated because I can alway tell that my Tsh went up because i usually have night sweats, and couple of day extreme fatigue.  I dont know where to go from here, I also have very dry eyes which started when i initially went into hypo stage.  Why am i going up and down.  It just doesnt seem normal to me.

Thank YOu

[allyc27]

Hi Tamra,

I did read your post, I will def try the diet. Im actually on a low carb diet now. To be honest I havent read much on RAI, I plan to, my sister inlaw had it as she had Graves. Im just so desperate to slow down my body and get off all the meds im on. I currently take Avanza, Xanax, Beta blockers and I dont want to be on all this med 4 the rest of my life.
Also my eye site has deteriorated, is this normal?

I will def read that book you recommended. Im in australia and there seems to be no specialists here. Thanku for the link, joining this site was the best thing i've done! I've felft so isolated and hopeless before joining.

[TamraW]

Did you read my above post? Have you tried going gluten free? Have you read up on RAI? This is a radical step. Why not give an altered diet a change rather than getting radiation. RAI, IMHO, should be reserved for thyroid cancer. Read this book.

www.thyroidbook.com

Then, go to this site and request the name of a doc in your area.

http://www.thyroidbook.com/contact-and-clinic-info.html


:) Tamra

[allyc27]

Hi, Im going through the same thing as you! Up and down. Its so horrible. I cant function normally or even work because of the anxiety and panic its causing me.

I know what its like. Its been a year for me now and I am 27. I've been on and off thyroxine 50mg aswell because it would make my heart race and made me so nervous. But I think the doc put me on to high a dose to quick. So now im going to start it again but on a very low dose, and grad increase it.

The frustrateing thing is there arent many doctors out there at all who know solid knowledge about thyroid issues, in the whole year i havent found 1. I get better advice from this site. Which im so happy I"ve found.

People have told me that the thyroid may take years to completly die and stop fighting the antibodies. So I am actually considering radioactive iodine. Which will kill it off in 2 days becaues my symtoms are more overactive most of the time even though im diagnosed with an underactive.

[TamraW]

After six or so months your levels should have gone down. They are fluctuating, which is awful suspicious of auto-immune Hashimoto's. With Hashi, we do swing up and down as the antibodies attack the thyroid gland and the thyroid swells, making us go hyper. Or maybe leaky nodules make us hyper. You NEED these tests: TGab and TPOab

TSH is a pituitary hormone, not a thyroid hormone. TSH as well as the thyroid hormones FT4, FT3 will swing with Hashi in the early years. You never know if you will have high, low or normal labs. The only way to know for sure if Hashi is to blame would be the antibody tests and the ultrasound.

Hashimoto's is commonly associated with low thyroid levels. This is just not the case until MUCH later in the disease. Why not stop it now rather than wait until you are 100 pounds overweight and miserable?

If you test positive for Hashi, then might I recommend cheap, and easy healthcare - quit gluten. Please read this book to understand why:www.thyroidbook.com

I am off gluten and I no longer get the antibody attacks. I've also been able to reduce my dependency on thyroid hormone. You will find in your journey, that knowledgeable endos are few and far between. Sorry, but I call it as I see it. Many patients on this forum will agree. Advocate for your own health!

:) Tamra