I know you do, and I want you to, also.
I just think that people need more background information on you in order to provide specific answers. Otherwise, you are going to get the "generic" answer. I feel your condition is much more complex than most, so often the generic answer does not apply and might even add to your confusion, not help it.
I'm not chastisizing you, just trying (in my own way) to get some more background and your personal history into this thread. I can see your frustration jumping off the screen, and I sympathize with you completely (I want to wake your doctor up!). I hope you don't mind too much if I'm a mother hen and try to steer this a bit so that you get the best advice, specific to you.
Best wishes...
I think I misunderstood you. I think I will just demand to have a pituitary panel done and antibodies. That should help me understand what is going on with me right? I'm worried what happens if it all comes out normal? I am just so tired of hurting and want my life back :(
Thank you for your help. I just want to feel better and understand this stuff.
I hear your frustration, but I think you're picking apart your symptoms and labs to the point where responses are only going to further confuse you. People have to have the bigger picture available, and it's very time-consuming to have to go back and read all your previous posts.
My personal feeling is that your low FT4, combined with your low TSH, is a huge red flag indicating secondary (hypopituitary) hypothyroidism. Add to that that you are showing symptoms of female hormone imbalance...another red flag (the pituitary is the master endocrine gland that controls thyroid, female, adrenal, etc. hormones). You suffered a head injury and a seizure...the third red flag. The pituitary can suffer damage with head trauma. Forgive me, there may be other issues, but this is what I remember.
Now, although no ONE of these things might be TOTALLY convincing as to pituitary involvement, it seems that the three together speak for themselves. Start by getting a full pituitary panel. Even if your doctor is not particularly talented in reading pituitary results, he is going to have a hard time ignoring "abnormal" results. Start there, take it one step at a time, the next step being guided by the results of the previous one.
I think what Barb (who has Hashi's, btw) is trying to illustrate is that when HER FT4 was 1.8 (the upper limit of the range, and bordering on hyper) and when hHER FT4 was 0.6 (below range and hypo), her TSH was the same...<0.01. The two numbers do not correlate, not just for her, but statistically.
Do you have hashi's or pituitary issue, or just normal hypothyroid?
my free t4 is low at .8 not 1.8. all HYPO symptoms.