Aa
born without a thyroid
I am a single parent raising a little boy that was born without a thyroid. He is 5 years old and so far he is mentally up to par. He is a little on the small side. After reading some of these forums I am a little concerned about his future. We see a specialist and I do trust him. When my son was 3 days old the thyroid test showed his thyroid was underactive - the Dr. sat me down in his office and told me my son would be mentally handicapped. I can say without hesitation that as of right now this has not been the case. We just discovered 2 months ago that instead of an underactive thyroid my son was born without a thyroid at all. My fear is in the future that he may struggle with keeping up with learning and growing. My counselor suggested that I apply for social security for him. As a single mom we barely get by but we do. I guess before I consider applying now and putting the money away for the future if the time comes that we would need that money for him I was wondering if anyone else born without a thyroid recieved social security. I read on here that someone could not find any statistics on boys born without a thyroid graduating high school. I just put my son on the school bus for kindergarden on tuesday. I can't imagine him not graduating. If anyone has any information I would greatly appreciate it.
My daughter doesn't have a thyroid either. Found out day three also. She has been on levothyroxine ever since. She is now 7 healthy, happy, and smart. She does fine in school. She has just went thru a growth spurt this year- she's 4'3" but I am 5' and my husband is 6'3" so I think she is just taking after him in heigth. She can be quite emotional sometimes. She says somtimes she just feels like crying.I don't know if it's thyroid related or just being a kid?The specialist we have seen said it should not be a problem that to watch for when she hits puberty. As long as you control the dose and he takes the meds everything will be what he needs. Your son should develope as he should.
My name is Hazel,
I was born without a Thyroid.
I am 21 years old, have graudated from University with a 2.1 and am looking to start my own business as a freelance film editor.
As long as your son has regualr checkups on his height and weight and blood test every 6 months there should be no problem.
When I hit purberty my Thyroxine dosage increased, and then again when I got to University and became more womanly.
My levels pretty much stay the same and I am a size 12 (UK) normal human being - well - that's what they say...! Hahaha
I completely forget that I was born without a Thyroid most days and take tablets every day that I get through the NHS. It is just a part of my life, takes 2 seconds to do.
Whever I feel drowsy or lethargic for longer periods of time - I perhaps go and check up with the docs, but mainly its just another ceck up.
I hope this helps
Hazel
I was born without a Thyroid.
I am 21 years old, have graudated from University with a 2.1 and am looking to start my own business as a freelance film editor.
As long as your son has regualr checkups on his height and weight and blood test every 6 months there should be no problem.
When I hit purberty my Thyroxine dosage increased, and then again when I got to University and became more womanly.
My levels pretty much stay the same and I am a size 12 (UK) normal human being - well - that's what they say...! Hahaha
I completely forget that I was born without a Thyroid most days and take tablets every day that I get through the NHS. It is just a part of my life, takes 2 seconds to do.
Whever I feel drowsy or lethargic for longer periods of time - I perhaps go and check up with the docs, but mainly its just another ceck up.
I hope this helps
Hazel
My cousin was born without a thyroid gland many years ago, he is 40 now I think, but he was 2 when they tested him and found his was missing. He is very intelligent, he made A's and B's in elementary school and a 4.0 in high school and college. He is a Reseach Biologist of some sort working at the University Of Kentucky. So no I do not think that being born without a thyroid is a Prerequisite to assume any child will be slow, or mentally challenged in any way. Please just don't give up on him, not to say you ever would, and give him lot's of support and I think that with the right medication he will be fine.
Have a blessed day
Eva
Have a blessed day
Eva
ChitChatNIne, DarlaLOU, GravesLady, devushka, borninquistive
Thank you all for your comments. I was overwhelmed with the feedback - I will keep following up with his doctor and I think I willbe visiting this forum on a regular basis. I will keep you all posted on his condition.
Thank you all for your comments. I was overwhelmed with the feedback - I will keep following up with his doctor and I think I willbe visiting this forum on a regular basis. I will keep you all posted on his condition.
Thank you for sharing your story with us, it is amazing what little ones do and they just seem to have miracles all around them. So good to hear a positive one here... I hope things continue to go well.
I have had experience with 2 people (both boys) born w/out thyroids. The one is my age, he is very mentally challenged and his family has spent his whole life (35 yrs) trying to figure out what to do to help him out. The other is a younger boy, he is about 20 yrs old now, and the Dr's knew before he was born that there was a problem so they were right on top of things. He did struggle a bit in school but kept up... graduated and has done well for himself. The only problem he ended up having and I don't know if it was thyroid related or not, but when he was about 12 he had a sudden issue with fluid on the brain and had to have a shunt put in... but has never had an ounce of trouble with that since.
I think that this day and age with all the technology and science and medicine we have your son has a greater chance of succeeding and doing well in the big picture. Sounds like he is just flourishing now and that is so awesome.
Best wishes to you! Glad to have you on our forum!!
Darla
I have had experience with 2 people (both boys) born w/out thyroids. The one is my age, he is very mentally challenged and his family has spent his whole life (35 yrs) trying to figure out what to do to help him out. The other is a younger boy, he is about 20 yrs old now, and the Dr's knew before he was born that there was a problem so they were right on top of things. He did struggle a bit in school but kept up... graduated and has done well for himself. The only problem he ended up having and I don't know if it was thyroid related or not, but when he was about 12 he had a sudden issue with fluid on the brain and had to have a shunt put in... but has never had an ounce of trouble with that since.
I think that this day and age with all the technology and science and medicine we have your son has a greater chance of succeeding and doing well in the big picture. Sounds like he is just flourishing now and that is so awesome.
Best wishes to you! Glad to have you on our forum!!
Darla
Born without a thyroid is like being hypothyroid and having the same difficulties and symptoms as hypothyroids.
If your child was treated early due to the newborn blood testing program and continues to receive proper treatment he should have normal growth and development.
However, if not treated early enough or didn't receive the proper amount of medication may have growth and development problems.
The most important issue for good health for your son is that he is getting thyroid hormone medication, at the correct dose and monitored on a regular bases by a pediatric endocrinologist. Normally Total T-4 and Free T-4 with TSH is done/tested, at invervial of 4-6 months. As children grow the does of thyroid medication needs to be gradually increased according to Lab results and the child's growth measurements.
It is almost impossible for people to get SS for thyroid conditions. There is a prevision for special needs at school (or at work). Protecting Students With Disabilities Section 504 regulation requires a school district to provide a "free appropriate public education" (FAPE) to each qualified student with a disability who is in the school district's jurisdiction, regardless of the nature or severity of the disability. FAPE consists of the provision of regular or special education and related aids and services designed to meet the student's individual needs.
Section 504 is a federal law designed to protect the rights of individuals with disabilities in programs and activities that receive federal funds from the U.S. Department of Education (ED). Section 504 provides: "No otherwise qualified individual with a disability in the United States . . . shall solely by reason of her or his disability, be excluded from the participation in, be denied the benefits of, or be subjected to discrimination under any program or activity receiving Federal financial assistance . . . ."
ed.gov/about/offices/list/ocr/504faq.html
I hope your son continues doing good.
If your child was treated early due to the newborn blood testing program and continues to receive proper treatment he should have normal growth and development.
However, if not treated early enough or didn't receive the proper amount of medication may have growth and development problems.
The most important issue for good health for your son is that he is getting thyroid hormone medication, at the correct dose and monitored on a regular bases by a pediatric endocrinologist. Normally Total T-4 and Free T-4 with TSH is done/tested, at invervial of 4-6 months. As children grow the does of thyroid medication needs to be gradually increased according to Lab results and the child's growth measurements.
It is almost impossible for people to get SS for thyroid conditions. There is a prevision for special needs at school (or at work). Protecting Students With Disabilities Section 504 regulation requires a school district to provide a "free appropriate public education" (FAPE) to each qualified student with a disability who is in the school district's jurisdiction, regardless of the nature or severity of the disability. FAPE consists of the provision of regular or special education and related aids and services designed to meet the student's individual needs.
Section 504 is a federal law designed to protect the rights of individuals with disabilities in programs and activities that receive federal funds from the U.S. Department of Education (ED). Section 504 provides: "No otherwise qualified individual with a disability in the United States . . . shall solely by reason of her or his disability, be excluded from the participation in, be denied the benefits of, or be subjected to discrimination under any program or activity receiving Federal financial assistance . . . ."
ed.gov/about/offices/list/ocr/504faq.html
I hope your son continues doing good.
You are reading content posted in the Thyroid Disorders Community
We tapped the CDC for information on what you need to know about radiation exposure
Endocrinologist Mark Lupo, MD, answers 10 questions about thyroid disorders and how to treat them
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
