Aa
constipation ( HASHIMOTOS )
Does anyone on here that has Hashis with Hyper/ Hypo symptoms have any advice on what to do to help aliviate the bloating from gas and constipation from the hypo/Hashis? I have tried warm prune juice and drank a bottle over a 3 day period, but did not do a whole lot. I am in search of any tips anyone has from personal experiances...ANY ADVICE IS SO APPRECIATED! WILL BE POSTING ALOT THIS NEXT WEEK DUE TO MY SYMPTOMS GETTING SO BAD, WAITING FOR UPTAKE SCAN.Thank You
Having cardiac tests is very common for a person with thyroid disease. I remember many times at my worst getting hooked up to those machines and checking things out for my heart palps. It is very scarey but looking back I am glad I had a doctor willing to be safe then sorry for me.
I believe the heart is a very strong muscle. It can endure alot and we must always keep our mind into keeping things in check on that for our health.
My personal opinion here is not to move forward on anything until you really understand what's making your thyroid ill. RAI is not a cure for thyroid disease as we are lead to believe. It can alter alot in a person and if you don't have quality care - as your cardo Dr. seems to think - you certainly don't want to move forward on a permanent ablation until you are guarenteed you will recover with proper care.
I went from the most horrible hyper situation in a storm before I chose RAI. My doctor that I have now 7 years after ablation (which unbelievably was the SAME doctor who had her PA ablate me) knows now RAI was probably the last thing we should have looked at)
Note: At the time I first went to her office - her medical knowledge was traditional med. At that time she was going to classes in Intergrative med and now holds that license. She believes- and has learned - new ( old) things that she was taught years ago) I have a brief journal in my profile on my first visit back to her - 7 years after I had RAI.
I am not trying to talk you out of this RAI procedure at all. It is a life saver for some. It may have saved my life too - We just can't go back in time to really know. None of us have those answers. I had to move forward with the ablation and alter my body into wellness after removing that gland.
What I can tell you is what I experienced. I was "gifted" ( for a better word) to be in such terrible shape with Graves that I was just horrible. Then after RAI - I spiraled into horrible "autoimmune" Hashi/hypothyroid with those antibodies that were never detected - or even tested for with the Graves. I lost my oldest son's - all 4 years in highschool and was a "body with no life" for my whole family for many years. My husband suffered without his wife he married - My children had no mother to help them. I lost my job that provided for them. For those 4 years at my worst after RAI - I think they could have understood more if I would have just passed away. Then there would have been "a reason" for my absence with them.
By the grace of God - I dug myself out of the black hole of this disease. I started studying things from the very beginning on me. Really I went back 15 years prior to the Graves and learned I was probably failing thyroid wise - way before the actual Dx. I am a true anyalizer and did this on every aspect of thyroid disease. Now, after almost an "internet" masters degree LOL I know what's right for me. I have seen first hand the sabatoge some doctors can inflict on thyroid patients. I saw many GI's on my issues and went for all the tests with nothing coming up and being told the relation of my GI aliments are not associated with my thyroid. That;s funny to me now, because after I got thyroid well - I haven't seen one GI doctor and my issues are all gone away. Lord - how thankful I am. I remember my gut blowing up to the point that I seriously couldn't drive the car. My gut was too big from the bloating that it hit the steering wheel and I couldn't nagivate it. I literally on a few occassions had to pull over and call my husband to figure out how the he// to get the car home. I am not a big girl. Take a look at my photos - and you can see.
Not thyroid disease? - sorry I disagree with them. It was for me... there's proof out there thyroid disease can cause this - the specialists need to reconize it and learn as I did. - and how to fix so many things is right in front of them. It's easy to fix this and I suffered needlessly for many years.
I believe the heart is a very strong muscle. It can endure alot and we must always keep our mind into keeping things in check on that for our health.
My personal opinion here is not to move forward on anything until you really understand what's making your thyroid ill. RAI is not a cure for thyroid disease as we are lead to believe. It can alter alot in a person and if you don't have quality care - as your cardo Dr. seems to think - you certainly don't want to move forward on a permanent ablation until you are guarenteed you will recover with proper care.
I went from the most horrible hyper situation in a storm before I chose RAI. My doctor that I have now 7 years after ablation (which unbelievably was the SAME doctor who had her PA ablate me) knows now RAI was probably the last thing we should have looked at)
Note: At the time I first went to her office - her medical knowledge was traditional med. At that time she was going to classes in Intergrative med and now holds that license. She believes- and has learned - new ( old) things that she was taught years ago) I have a brief journal in my profile on my first visit back to her - 7 years after I had RAI.
I am not trying to talk you out of this RAI procedure at all. It is a life saver for some. It may have saved my life too - We just can't go back in time to really know. None of us have those answers. I had to move forward with the ablation and alter my body into wellness after removing that gland.
What I can tell you is what I experienced. I was "gifted" ( for a better word) to be in such terrible shape with Graves that I was just horrible. Then after RAI - I spiraled into horrible "autoimmune" Hashi/hypothyroid with those antibodies that were never detected - or even tested for with the Graves. I lost my oldest son's - all 4 years in highschool and was a "body with no life" for my whole family for many years. My husband suffered without his wife he married - My children had no mother to help them. I lost my job that provided for them. For those 4 years at my worst after RAI - I think they could have understood more if I would have just passed away. Then there would have been "a reason" for my absence with them.
By the grace of God - I dug myself out of the black hole of this disease. I started studying things from the very beginning on me. Really I went back 15 years prior to the Graves and learned I was probably failing thyroid wise - way before the actual Dx. I am a true anyalizer and did this on every aspect of thyroid disease. Now, after almost an "internet" masters degree LOL I know what's right for me. I have seen first hand the sabatoge some doctors can inflict on thyroid patients. I saw many GI's on my issues and went for all the tests with nothing coming up and being told the relation of my GI aliments are not associated with my thyroid. That;s funny to me now, because after I got thyroid well - I haven't seen one GI doctor and my issues are all gone away. Lord - how thankful I am. I remember my gut blowing up to the point that I seriously couldn't drive the car. My gut was too big from the bloating that it hit the steering wheel and I couldn't nagivate it. I literally on a few occassions had to pull over and call my husband to figure out how the he// to get the car home. I am not a big girl. Take a look at my photos - and you can see.
Not thyroid disease? - sorry I disagree with them. It was for me... there's proof out there thyroid disease can cause this - the specialists need to reconize it and learn as I did. - and how to fix so many things is right in front of them. It's easy to fix this and I suffered needlessly for many years.
You guys are so wonderful!! Sincerely : ) I went to see a cardiologist today who by the way was absolutely WONDERFUL!! He was disgusted when we discussed what I have gone through. He knew more about Hashis and Graves then my Endo seems to know. I actually cried due to him just being anice human being and actually listening, not that I made him, he wanted to know EVERYTHING! I did not find myself trying to hang on to him in the room to try and ask him as many question before he disappeared on me, he stayed on his own and listened and when I was not asking him questions. He just held his head and shook it is disbelief at how Dr.s have treated my situation and in his words said is was a shame Dr.s are not educated enough in the thyroid Dept. He made me realize I am not CRAZY! I am in need of help. He is running a couple of test. Says not to worry to much but is concerned that due to the heart palps and irratic HR that it could have done damage to the heart muscles...told me not to get to worried but we will be pro-active and check. Rather be safe then sorry. So doing an echo the same day of my iodine scan naxt Thursday and will also wear a halter monitor. Does not want me to do a stress test at this pint, said my thyroid is #1 priority at the moment and wants to do some sort of stress test as soon as we can. Thanks again to all of you for being so kind to give advice/support, SO DESPERATELY NEEDED!!
Sheila,
Stella is right. These doctors have been handling you all wrong from the start. What a juggling act! It's insane. I have awful GI problems when my levels are low (heartburn, GERD, uncontrollable hiccups, marathon constipation). This doctor obviously doesn't know SQUAT about thyroid.
Find a new one!
Here's a list of recommended endos.
http://www.thyroid-info.com/topdrs/
This is not a perfect list. I took my mom to a clueless endo that is on this site. Call the endo's office and ask how many thyroid patients this endo sees. My WONDERFUL endo, who would not have put you through this roller coaster, sees 75 percent thyroid. He's not just another diabetes doc.
:) Tamra
Stella is right. These doctors have been handling you all wrong from the start. What a juggling act! It's insane. I have awful GI problems when my levels are low (heartburn, GERD, uncontrollable hiccups, marathon constipation). This doctor obviously doesn't know SQUAT about thyroid.
Find a new one!
Here's a list of recommended endos.
http://www.thyroid-info.com/topdrs/
This is not a perfect list. I took my mom to a clueless endo that is on this site. Call the endo's office and ask how many thyroid patients this endo sees. My WONDERFUL endo, who would not have put you through this roller coaster, sees 75 percent thyroid. He's not just another diabetes doc.
:) Tamra
Funny thing that one of the common links with Medullary thyroid cancer is that alot of people with it have symptoms of Irritable Bowel Syndrome. I have had chronic constipation and all the symptoms my whole life. I was diagnosed with Medullary thyroid cancer in September and then got to talking to some enlightened people and they mentioned this helpful info. Medullary patients usually have the opposite problem but everyone is different. Just passing it on.
Yes, He said he needs to do this test to see if Surgery or RAI is needed. I thought okay take the RAI...NO BIGGIE, my Dad had Graves and did it with no problems.I have now researched it and am truly scared cause I read ALOT of horror stories of RAI . Honestly, I just want to feel better and I know that is not just going to happen no matter what I do. I know I do not want to wait years for this thing to die off, I do not have the strength to do this much longer. I have a 3-10 year old and not only has it messed with my quality of life, but theirs as well. I want my life back, and PRAY THAT GOD GIVES ME THE STRENGTH TO DO IT!!
Think about this non sense. You go through all these tests... and everything comes back NORMAL - BUT!!! - its not your thyroid - BUT!!!! - they dont know what it is.. That's absolutely foolish on their part and sorry to say - I was in exactly the same thing you are in.
Well.... except the fact the keep dumping your thyroid hormones and then expect you to recover in WEEKS!!!
Personally i feel you are being handled very inappropriately. It seems that no one you have is able to look at the antibodies correctly and help you there to stop this redulcious treatment plan.
You are not stabilizing on just a T3 medication - you won't ever in your situation. Eventually the thyroid could lose all function and you could somewhat stabilize on just T3 - but it would be stupid to put you through T3 ONLY treatment for that when it comes.
What possibly do they think doing another scan is going to help? You are massed and you have goiters - what are they saying about that?
I believe wholeheartedly that goiters can be shrunk but I hate to put that into someones mind with what you are going though. Are they looking at surgery? I just had a cousin go through exactly what sounds like you. I just was torn if therapy or surgery would be best in his situation and couldn't decided for him. He opted to have it removed. The FNA was inconclusive so if there was cancer only surgery could dectect it. It turned out that it was not cancer.
Your endo can go back to real thyroid school and then make that false statement. The GI IS effected with the slow process of thyroid die off and WILL cause many issues. IBS - acid reflex - and a host of others.
Your not a freak - You know when something is wrong. You need much better care before you put your faith in what's being told to you.
Well.... except the fact the keep dumping your thyroid hormones and then expect you to recover in WEEKS!!!
Personally i feel you are being handled very inappropriately. It seems that no one you have is able to look at the antibodies correctly and help you there to stop this redulcious treatment plan.
You are not stabilizing on just a T3 medication - you won't ever in your situation. Eventually the thyroid could lose all function and you could somewhat stabilize on just T3 - but it would be stupid to put you through T3 ONLY treatment for that when it comes.
What possibly do they think doing another scan is going to help? You are massed and you have goiters - what are they saying about that?
I believe wholeheartedly that goiters can be shrunk but I hate to put that into someones mind with what you are going though. Are they looking at surgery? I just had a cousin go through exactly what sounds like you. I just was torn if therapy or surgery would be best in his situation and couldn't decided for him. He opted to have it removed. The FNA was inconclusive so if there was cancer only surgery could dectect it. It turned out that it was not cancer.
Your endo can go back to real thyroid school and then make that false statement. The GI IS effected with the slow process of thyroid die off and WILL cause many issues. IBS - acid reflex - and a host of others.
Your not a freak - You know when something is wrong. You need much better care before you put your faith in what's being told to you.
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