NO DO NOT STOP YOUR MEDS WITHOUT DOCTORS ADVISE!!!
I just checked my last test from June 19th and my TSH if 0.411 and that was cosidered low Reference interval on top of page then on same line as the 0.411 shows the range 0.450-4.500. I have not gotten the newest blood test results. I was taking 50mg of Levothyroxine and since this test I have been bumped down to 25mg and I will have to take them for the rest of my life.
Another thing using Medhelp has helped my doctor to look at symptoms and how random my pain is, that she just might have found what I have...that's the next test.
If you do not feel like your doctor is working on your behalf or not really listening to you.....No hard feelings left....CHANGE THE DOCTOR!
Good Luck
Debbie
hello my name is leanne ive had ringing in the ear for years and still have it i had a total tyroidectomy in december 2011 and thought it would subside after the operation was over ahhh wrong!!!!!!!!! i still have it andf it hasnt gone away im on a fifty and a 25 of L tthyroxine i take a 25 microgram and a 50 microgram together b/c i found the 75 microgram was what i was allergic to my hands felt like they were on fire and my blood pressure went sky high so yeah i got very sick for this medicine but what i was saying i thought it was my throid and it still is happening i get it every day ringing in the ears and dizziness
Well, my true problem is that when I was originally diagnosed with low thyroid, I wasn't having any symptoms. It only came up in a routine physical and so they put me on .25. I wasn't tired, sore, brittle nails, hair falling out, etc. I was normal. It does truly seem that once I had been on the thyroid for about 2 years or so, maybe three, that I started noticing issues. I've never had what I would refer to as the obvious signs of a thyroid problem. Basically my head feels like it is clogged....pressure......ear ringing, and at times, I've got some blurry vision. Today, I don't seem to have any vision issues. But it goes from day to day.....but I always do seem to have a nice headache going on....
"Remember, it was my doc here, not Mayo, who tested me when I first started having these symptoms and my TSH was 0.02, and therefore had me start taking half a dose. Is it possible this one outlier event of low TSH was a mere blip, and I should have stayed on .175 all along and rode it out?"
Absolutely, that 0.02 TSH could have been an isolated event, since TSH is very volatile and fluctuates greatly, even intraday. In my opinion, it was rather irresponsible of your doctor to 1/2 your dosage based on one TSH result.
I could see maybe decreasing your dosage a little bit, but it's never wise to make drastic changes with thyroid medication. That only keeps you on a roller coaster. Changes, should only ever be made by the smallest increment possible. That goes for both increasing and decreasing.
What, if any, symptoms were you having when your TSH was 0.02? While TSH does not cause or alleviate symptoms, or even correlate with them, that's all we have to go by, which is most unfortunate. Many doctors don't realize (or care) that once a person is on replacement medication, TSH stops being an indicator of actual thyroid hormone status.
In my opinion, jumping all the way from your current 88 mcg to 175, would be a mistake, because you would once again be flooding your body with hormones, which would put you right back on the roller coaster. You might not need to go that high. You could try going from 88 mcg to 100, stay there for a few weeks, then move on up to 125 mcg; or even alternate some dosages for a while to get even smaller increases, in order to allow your body to get used to each one.
I've been all the way from 25 mcg to 125 mcg over the course of a few years, and finally, within the past year, I've settled in at 88 mcg Tirosint, with 7.5 generic T3. I've alternated various dosages to get as little as 5-6 mcg change. It doesn't come easy and it doesn't come fast.
One problem you have is that without regular FT3 tests, you don't know if you are converting adequately, and without adequate conversion you'll never feel like yourself.
If you're taking your medication at 10 PM every night, but eating as late as 7:00, you can't be sure your stomach is empty enough. I've read different opinions on how long it takes for the stomach to empty, but it does depend on what you ate. High fiber inhibits absorption of thyroid med.
Some vitamins/minerals are like thyroid hormones - simply being "normal" isn't good enough. B12 is an easy one for me to use as an example, because I have to take weekly shots in order to keep my levels high enough to feel good. The range my lab uses is 200-1100; I have to keep my levels at the very top (or over).
"My question is, when you say that I'm going to get extremely ill if I stop taking my synthroid, what do you exactly mean?" All of your hypo symptoms would return with a vengeance; dropping down to the 88 mcg proves that. The fact that you still have some of them, indicates that your levels aren't high enough yet. GERD is a classic symptom of being hypo. I had it horribly bad when I was hypo and was on very strong medication for it, which often didn't touch it. Once my thyroid levels got high enough, the GERD stopped and I no longer take medication for it, except an occasional Gaviscon when I eat something I shouldn't.
I've read that zinc can, sometimes, help alleviate ear ringing. Anything is worth a try.
Selenium has been linked to better conversion of FT4 to FT3; you could try that and see if it helps.
Yes, I have been tested for all the vitmin and mineral deficiciencs. Everything comes up normal. I do have a simple question though. I haven't stopped taking my thyroid. I"m taking a .88, and then another half of a .88 each night at 10:00PM on an emtpy stomach, having last eaten between 5:30 and 7:00. My question is, when you say that I'm going to get extremely ill if I stop taking my synthroid, what do you exactly mean? Because there are times, that I feel like I'm already there! What can happen? Why wouldn't I want to bump back up to the .175 the Mayo docs originally had me on back in late 2010, early 2011? Remember, it was my doc here, not Mayo, who tested me when I first started having these symptoms and my TSH was 0.02, and therefore had me start taking half a dose. Is it possible this one outlier event of low TSH was a mere blip, and I should have stayed on .175 all along and rode it out? I'm beginning to feel that way a lot. As I write this, my left ear is ringing something fierce (no pain though), both ears feel full, sinuses feel mostly clear. And I'm a bit anxious. Not unbearable. I do have Xanax, which I just don't like to take, but will if needed. I'm really wondering if I may just be under-medicated and have been for some time. I have no swelling in my neck area, no pain, have had it physically examined on more than one occasion, etc.
Ear ringing , buzzing and pulses are all different things. I didnt have constant ringing. Just buzzing and the pulses were in time with my heart beat. I had no trouble hearing. As with many of my symptoms, ear issues mostly diminished after 3 months with Erfa natural thyroid at correct levels for me - FT 3 in the upper third of the range.
I respond really well to T3 in the upper third, and specifically to Erfa. This is not the case with everyone. We need to find out by trial and error what our bodies like. Took me 10 years to figure out thyroid med is not all the same for everyone, Drs were of no help at all. Did I dis the medical community again? Shame on me.