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do thyroid tests always show accurate results? symptoms getting worse. 15 years old please help!

I noticed symptoms starting to appear about 4 months ago and it seems like they are getting worse very quickly.
Atleast 4 times a weak i get very bad headaches, with my head pulsing, vertigo, ringing in the ears, extreme sensitivity to noise, and i can even see the pulsing in my vision where every pulse appears as a quick blurriness or sometimes a pulse of faded vision.
But my vision is always kind of faded now. i see black dots in my vision like you do when you do not eat or drink enough water. i feel very lightheaded and sometimes if i even sit up i feel as if im going to pass out.
ever since this started my heart has been beating hard (not meaning fast). and i often have extreme discomfort in my chest with beats at random feeling like its struggling to get bloodflow or possibly skipping a beat.
A few days ago i woke up with a headache (as i have been lately every morning), but with my heart beating very hard, my head was pulsing even harder now that my heart was beating harder. i could now feel the pulse through my whole body and every beat was making my body shake.
My mom took me to the emergency room but all they did was give me migraine medicine, which helped only my headache, not the pulsing in my head.
By the time i left the ER my heart was still beating very hard, maybe even harder (this was not the first time i had experienced a hard heartbeat as i do often and more frequently but was the worst ever). While leaving my vision was extremely poor and sensitive to light and my ears were ringing with sensitivity to noise.
About two minutes after getting in the car and on the way home i lost my vision and hearing completely. my face went numb, and i had the most extreme discomfort in my chest i had ever felt. I was very cold and when i felt my face, it felt as if i had been in a freezer it was so cold. My vision and hearing slowly came back after several minutes, my heart continued beating very hard though. My vision was very fuzzy and my ears were sensitive and ringing.
My heart didnt stop beating hard all day as i was just laying down, every beat was still shaking my whole body and i could feel the pulse in my face, my parents felt my face and they said they could feel it too. Also while laying down i realized i was arching my back while laying down, like it was tightening up. i didnt think much of it but it was uncomfortable so i tried to lay on my side most of the time.
That evening i felt like everything was getting worse so i went to a different hospital again.
Once checking into the ER i was so weak and dizzy i could not walk. I still could not stop arching my back and once i layed down in the hospital bed i realized my chest was very tight like i had been working out the day before, my legs started to tighten as well. This got very extreme fast (first time i had experienced this). I could not stop flexing my whole body, it hurt so bad i was screaming. The nurse injected me with valium and it helped for a little while but the 'cramping' soon came back and this happened about 2 or three more times where they had to keep giving me more.
The whole 7 hours i was there none of my other symptoms had gone away.
Doctors do not know what is going on, it seems like they have given up. Yesterday took a four hour drive to see a neurologist but he was no help.
I noticed symptoms at first about 4 months ago but they were no where close to how bad they are now. I found myself having to stay home alot during the summer becuase of this and now it is so bad that i cannot go to school.
The headaches i get are the worst headaches i have ever experienced, i have been prescribed vicodin and sumatriptan which don't always make them go away enough to not be excruciating. They can last anywhere from a few hours to days and with them it is very hard to sleep.
About a week ago i thought i was feeling well enough to finally go longboarding with my friend. This did not go well at all, I found myself walking most of the time becuase with the activity, my heart was just beating too hard and i had the discomfortable 'struggling' feeling. I tried ignore it at first but as they kept getting worse i had to stop.
Also i have always had a very bad back, i get soreness throughout my whole back and its the worst in my neck and upper back. In my neck i get craming, stiffness, aches, and soreness.
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Avatar universal
also, i dont know if this has anything to do with thyroid...
but i experience alot of tightness and soreness in my throat where my adams apple is, sometimes it is hard to breathe and sometimes it hurts to swallow.
My adams apple is also pretty large for my age.
again, not sure if that would have anything to do with a thyroid problem...
Helpful - 0
Avatar universal
Can you tell me what her major symptoms are?
yeah doctors can sometimes be very lazy it seems to me. It seems like you have to do alot of doctors hopping till you can find one that cares, or one that is willing to do more for you than just shots or physicals.
Apperently we never got my thyroid resulsts from the doctor, but i am going to try to get them on wednesday.
I don't know how low or high thyroid levels can affect you, or what symptoms you have from it... but i would have to say the worst symptoms i have is definately the intense pulsing in my head for my number 1 complaint. its very scary, sometimes it feels like theres an earthquake in my head. And he headaches i have are so intense, i cant beleive they could even get this bad. ive never had headaches this bad in my life. I took a migraine pill last night, sumatriptain (50mg), and it only helped for about 3 hours then the headache came back and got really bad really quickly.
My head really never stops pulsing but it doesnt always hurt, but when i get the headaches, i have constant pain along with the pain in every pulse.
Lately ive been having headaches everyday.
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
I'm currently dealing a very good friend whose thyroid levels are in the "normal" range, but she feels like dog doo and has for a long time -- the problem is - her TSH is relatively low, but so are her FT3 and FT4 - both VERY low in their ranges, which can cause the severe symptoms she's experiencing.  

"In range" is only valid if those levels are right for your body......... Obviously, if you don't feel good, there is an issue somewhere.  We can only determine if it's thyroid related by seeing your labs now, since we already have an idea of your symptoms.  We try to match labs with symptoms.  We aren't doctors, but sometimes we do a better job than a lot of doctors................lol
Helpful - 0
Avatar universal
thanks so much i didnt know that
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
Your labs and symptoms will determine whether or not you are well.  That's why it's so important that we see your lab results and reference ranges.

"Normal" or "Okay" doesn't mean you don't have a thyroid issue.
Helpful - 0
Avatar universal
when you say it doesnt mean i am well, are you saying that there can still be something wrong with my thyroids?
Helpful - 0
Avatar universal
yes, i have had many tests.
i am currently in the process of a 24 hour urine test and i am suppose to have an MRA schedualed soon.
thanks very much for the advice.
Helpful - 0
219241 tn?1413537765
Sounds to me very much like lack of calcium, and or iron.
I am hypoparathyroid and I know if I am slack and forget to take my 6 x 600 mgs I get similar to you.
The fact you had the cramping really badly suggests low calcium, but it really could be anything.
Have you had your levels of iron and calcium and Vit D checked? Obviously this being a thyroid forum, as Barb says, we need to know if you have thyroid issues too, but sometimes other issues can cross into here as well.

Good luck.
Helpful - 0
Avatar universal
okay.
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
Well, for those of us who have been in the "thyroid business" for a while, we know that "okay" doesn't necessarily mean you are well.  It means that your levels are in the normal range; but we know that you can still have symptoms with levels in the "normal" range.  

Do try to get the lab report and post the results.  Also make sure you post the reference ranges, because these vary from lab to lab and must come from your own report.  
Helpful - 0
Avatar universal
My parents have my test results i will try to get them. i think they were all 'okay' is what the doctor said.
Helpful - 0
Avatar universal
yeah i had an mri about 4 months ago when i noticed the first symptoms. it came back fine. i was also wondering if it would be smart to have another one since that was months ago. like to see if anything changed
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
What are your actual thyroid test results?  Please post them, along with the lab's reference ranges, since these vary from lab to lab and must come from your own report.

Without knowing what your actual results are, members can't know if you actually have a thyroid issue or not.
Helpful - 0
Avatar universal
Have they given you an MRI to rule out MS? Could you specify what labs they ran?
Helpful - 0
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