Aa
the saga continues
this would be funny if it was fiction.
i'm typing with one hand because i've got an iv thingy stuck in the crook of my elbow. i just had two bags of saline administered because i was dehydrated, and i'm going back at supper to get another bag or two.
i talked to my endo's office today to find out why they have the wrong diagnosis in my chart, and on a bloodwork order they mailed me. the lady i talked to said it's because i am hyperthyroid.
i told her i have been taking synthroid for three years now, and i had hashitoxicosis, not hyperthyroidism. i said i certainly was hyperthyroid today, but my tsh is 20 and my freet4 is low. i asked what that sounded like.
she said, yes that was in my chart, but blah blah blah.
i said, look, i don't care what you call it, as long as my endo understands that when i do rai, i want my thyoid DEAD, not just impaired. she said yes, that was the plan, as soon as my tsh was low enough.
i told her it was NEVER going to be low enough and they better get that figured out. she assured me i was going to get a major dose, but it may take two or three treatments because i was "unusual". i told her that's why i tried to have surgery. stupid people.
she said she'd talk to the doctor and call me back.
now they want me to ride a hundred miles in the morning to take a pill and then go back the next day and do an uptake scan to try and guess what dose of rai it's going to take because my blood is so screwed up.
i told her i had been in bed for three days and wasn't planning on showering today, and it sounded like a bit more than i could do. but if they didn't figure something out pretty quick i was not going to be a patient, so i would go in the morning.
is the iodine they give me tommorrow going to put rai off even further?
can i sue these clowns?
ignore the last question.
i'm going to take a nap.
hope i don't bend my arm. :(
i'm typing with one hand because i've got an iv thingy stuck in the crook of my elbow. i just had two bags of saline administered because i was dehydrated, and i'm going back at supper to get another bag or two.
i talked to my endo's office today to find out why they have the wrong diagnosis in my chart, and on a bloodwork order they mailed me. the lady i talked to said it's because i am hyperthyroid.
i told her i have been taking synthroid for three years now, and i had hashitoxicosis, not hyperthyroidism. i said i certainly was hyperthyroid today, but my tsh is 20 and my freet4 is low. i asked what that sounded like.
she said, yes that was in my chart, but blah blah blah.
i said, look, i don't care what you call it, as long as my endo understands that when i do rai, i want my thyoid DEAD, not just impaired. she said yes, that was the plan, as soon as my tsh was low enough.
i told her it was NEVER going to be low enough and they better get that figured out. she assured me i was going to get a major dose, but it may take two or three treatments because i was "unusual". i told her that's why i tried to have surgery. stupid people.
she said she'd talk to the doctor and call me back.
now they want me to ride a hundred miles in the morning to take a pill and then go back the next day and do an uptake scan to try and guess what dose of rai it's going to take because my blood is so screwed up.
i told her i had been in bed for three days and wasn't planning on showering today, and it sounded like a bit more than i could do. but if they didn't figure something out pretty quick i was not going to be a patient, so i would go in the morning.
is the iodine they give me tommorrow going to put rai off even further?
can i sue these clowns?
ignore the last question.
i'm going to take a nap.
hope i don't bend my arm. :(
I think The reason woman get this disorder and i can almost gurantee it is because of stress drama Woman Love It the enjoy getting under are skin This is a pschpathic disorder mental med are neede for this thats why the doctors and lab tcs havent figured it out yet!!!!!!!!!!!
Don't forget how many of us are praying for you, sending you good vibes, crossing all of our extremities, and doing whatever else we can for you!!!
I know that it's not getting easier - that's why you lean on your friends, family, and faith - and this FORUM (the 4 F's of thyroid disorders)
We're pulling for you Bryan!!!
I know that it's not getting easier - that's why you lean on your friends, family, and faith - and this FORUM (the 4 F's of thyroid disorders)
We're pulling for you Bryan!!!
Had the scan.
The girl who did it couldn't tell me anything except I would get a call from my Endo.
The ride was not good.
Told my wife if I do RAI they may have to bring the pill to me.
The girl who did it couldn't tell me anything except I would get a call from my Endo.
The ride was not good.
Told my wife if I do RAI they may have to bring the pill to me.
How are you today?? Thinking of you and hoping the scan shows *something* that can lead to treatment!!
I will be thinking of you and wishing you well as you go through all of this mess.I know its not easy but take good care of yourself and I hope these issues get resolved for you.
Love Venora
Love Venora
Thinking of you, praying for you. I can't imagine being in your shoes. If you have any energy, kiss your wife. She's gotta be scared too.
God bless you--Michelle
God bless you--Michelle
Glad to know you got to see your endo. Am glad she finally understands how serious this all is.
Know you are getting ready to leave for that long trip again, I hope you can endure it easier this time. I took a pillow, very dark sunglasses, and some calming music when I had to travel for long distances. That was the only way I could get through trips and the sensory over load. Am actually having trouble with that again. So I completely understand. Also if there is a smell that calms you, it helps to have that in the car with you. Just make sure it doesn't calm your wife. =/ That could be bad. lol
Take care of yourself and keep us updated.
God go with you.
Dac
Know you are getting ready to leave for that long trip again, I hope you can endure it easier this time. I took a pillow, very dark sunglasses, and some calming music when I had to travel for long distances. That was the only way I could get through trips and the sensory over load. Am actually having trouble with that again. So I completely understand. Also if there is a smell that calms you, it helps to have that in the car with you. Just make sure it doesn't calm your wife. =/ That could be bad. lol
Take care of yourself and keep us updated.
God go with you.
Dac
The "missing words" comment is a board glitch, I think.
When I posted the update and read it, part of the right column was cut off. When I returned to the board and then clicked on the thread, the words were all there.
I would have deleted the second post, but we can't do that at this time.
I THINK I'm male. I'll ask my wife and get back to you. ;)
When I posted the update and read it, part of the right column was cut off. When I returned to the board and then clicked on the thread, the words were all there.
I would have deleted the second post, but we can't do that at this time.
I THINK I'm male. I'll ask my wife and get back to you. ;)
I am so glad you got to see the Endo.
I had no problem reading your post. I didn't notice anything wrong. Maybe I automatically filled in the blanks. Like those test that leave out key letters and you can still understand the meaning.
I understand about processing things visually. That is the first time someone has put into words the way I felt from 6/06 until recently.
I felt bombarded by the world around me and often just had to close my eyes to avoid it. Interesting...
Glad you felt better once yougot home.
You are a MALE, right? (I know the answer.)
Kitty
I had no problem reading your post. I didn't notice anything wrong. Maybe I automatically filled in the blanks. Like those test that leave out key letters and you can still understand the meaning.
I understand about processing things visually. That is the first time someone has put into words the way I felt from 6/06 until recently.
I felt bombarded by the world around me and often just had to close my eyes to avoid it. Interesting...
Glad you felt better once yougot home.
You are a MALE, right? (I know the answer.)
Kitty
I was going to IM you.
You need to change your user name, and frankly, nothing you posted in this thread makes any sense.
You need to calm down, or you will get banned from this board.
You need help as well, but I do not know what kind of help. You don't seem to have a thyroid issue that you have mentioned.
I hope you find the help you need, but do not clutter up my posts with unhelpful criticism.
please try to see these comments as a helpful suggestion.
Good luck with whatever is bothering you.
You need to change your user name, and frankly, nothing you posted in this thread makes any sense.
You need to calm down, or you will get banned from this board.
You need help as well, but I do not know what kind of help. You don't seem to have a thyroid issue that you have mentioned.
I hope you find the help you need, but do not clutter up my posts with unhelpful criticism.
please try to see these comments as a helpful suggestion.
Good luck with whatever is bothering you.
It seems many words on the right are missing?
You will have to puzzle it out and fill in the blanks.
You will have to puzzle it out and fill in the blanks.
An update.
My wife took m to the Endo today. It was a very long and grueling trip. Every bump in the road was bothersome, the road noise was bothersome, and I had a lot of trouble processing the visual input that was flooding in.
By the time we got there I accepted the offer of a wheelchair with no pride issues at all, which is surprising for me.
When I was taken back to get the pill to prep me for the uptake scan tomorrow, the girl asked me if I came fasting, and with a sinking feeling I told her no. We talked about options and the bottom line was I could take the pill at 1:00 PM rather than 10:00 AM as planned.
So I had three hours to wait. I decided as long as I was going to have to sit for three hours, I would go elsewhere in the building and see if perhaps I could see my Endo, whom I have only seen once on July 3rd and see if we could straighten out some discrepencies.
As luck would have it, she was eager to see me and fitted me in between patients. YES!!
We talked about the discrepencies in my diagnosis, and she said yes, I have Hashimoto's Toxicosis, but she needed something to put on the paper that the insurance company would accept and pay on, and I was Hyper today, so it was not a lie.
She said once again that my case was the most confusing case she had ever treated, and she did not understand it fully, but she knew my TSH was going up and down so often that she could not trust my bloodwork while trying to formulate a dosage and time for my RAI.
She said the uptake scan would help her a lot in deciding what to do. She said if the uptake scan looked bad, I might have to have surgery, as if it was a fresh thought for her.
I explained in great detail the medical problems I was having the last month or two, which brought the seriousness of the situation home to her.
I told her at this time, I understood that neither option had few risks, and I would defer to her judgement.
She asked me about Celiac Sprue, and I told her my sister has it, so she ran tests to see if that was another problem I have that may be muddying the waters.
Then I went back to Radiology and took the pill and they told me to return in 24 hours for the scan.
The ride home was no better, but I rested when I got home and feel better at the moment.
The fact that I saw my Endo because of the fasting snaffu was a blessing, and I feel like she finally knows who I am and sees how ill I have become.
I honestly do not know at this point which I would prefer, surgery or RAI. Surgery is much riskier, but would result in a quicker recovery, I believe.
The ironic part is if the uptake scan shows little hope for success with RAI, I will probably insist on going back on Synthroid in order to be in good enough health to handle surgery.
That, in turn, would increase the chance of a thyroid storm during surgery and death.
I guess we will see how the uptake scan goes and then cross one bridge at a time.
Just thought you would like to know.
And once again, I thank you all for the prayers and support. Any thoughts on the situation would be appreciated.
Thanks
Bryan
My wife took m to the Endo today. It was a very long and grueling trip. Every bump in the road was bothersome, the road noise was bothersome, and I had a lot of trouble processing the visual input that was flooding in.
By the time we got there I accepted the offer of a wheelchair with no pride issues at all, which is surprising for me.
When I was taken back to get the pill to prep me for the uptake scan tomorrow, the girl asked me if I came fasting, and with a sinking feeling I told her no. We talked about options and the bottom line was I could take the pill at 1:00 PM rather than 10:00 AM as planned.
So I had three hours to wait. I decided as long as I was going to have to sit for three hours, I would go elsewhere in the building and see if perhaps I could see my Endo, whom I have only seen once on July 3rd and see if we could straighten out some discrepencies.
As luck would have it, she was eager to see me and fitted me in between patients. YES!!
We talked about the discrepencies in my diagnosis, and she said yes, I have Hashimoto's Toxicosis, but she needed something to put on the paper that the insurance company would accept and pay on, and I was Hyper today, so it was not a lie.
She said once again that my case was the most confusing case she had ever treated, and she did not understand it fully, but she knew my TSH was going up and down so often that she could not trust my bloodwork while trying to formulate a dosage and time for my RAI.
She said the uptake scan would help her a lot in deciding what to do. She said if the uptake scan looked bad, I might have to have surgery, as if it was a fresh thought for her.
I explained in great detail the medical problems I was having the last month or two, which brought the seriousness of the situation home to her.
I told her at this time, I understood that neither option had few risks, and I would defer to her judgement.
She asked me about Celiac Sprue, and I told her my sister has it, so she ran tests to see if that was another problem I have that may be muddying the waters.
Then I went back to Radiology and took the pill and they told me to return in 24 hours for the scan.
The ride home was no better, but I rested when I got home and feel better at the moment.
The fact that I saw my Endo because of the fasting snaffu was a blessing, and I feel like she finally knows who I am and sees how ill I have become.
I honestly do not know at this point which I would prefer, surgery or RAI. Surgery is much riskier, but would result in a quicker recovery, I believe.
The ironic part is if the uptake scan shows little hope for success with RAI, I will probably insist on going back on Synthroid in order to be in good enough health to handle surgery.
That, in turn, would increase the chance of a thyroid storm during surgery and death.
I guess we will see how the uptake scan goes and then cross one bridge at a time.
Just thought you would like to know.
And once again, I thank you all for the prayers and support. Any thoughts on the situation would be appreciated.
Thanks
Bryan
So glad to see you on here and know you are doing better. Get plenty of rest. I'll be praying for you.
Personal message sent.
Personal message sent.
You get your RAI behind you and then sort things out legally .. you just may have something here as 3 yrs is a very long time. I am so glad you are finally get the proper treatment .. IV and all sorry bout that ..... pls. let us know how you do.
Cheryl
Cheryl
Don't lose Bettlejuice! If I could find her, I'd have the dead woman from the movie - you know the one who smokes who had her throat cut? I think it would be very fitting for someone who has had this surgery - twice.
I hope that tomorrow is the first step towards you feeling better *SOON*
I hope that tomorrow is the first step towards you feeling better *SOON*
Hi Byan, I'm new here. I have been following for the last three weeks or so. I don't know enough to give any advice, but I am praying for you and the outcome of all this. Hopefully, this 100 mile trip will be a step in the direction to getting all of whats going on, taken care of.
Take care and relax as best as you can.
Terri
Take care and relax as best as you can.
Terri
First off, I'm ever so glad that you're finally getting the RAI done. I'm just so sorry that you've been feeling so nasty. I didn't know they did "take out IV's"!! You must be really special! :-) Of course, we already knew that.
What a nightmare you've lived through all of this. I'll be praying for you as well that this is finally the end of your suffering. I'll be thinking about you tomorrow. Please give us an update if you feel up to it.
PS - I don't think you should change your avatar.....I love it!!
Lori
What a nightmare you've lived through all of this. I'll be praying for you as well that this is finally the end of your suffering. I'll be thinking about you tomorrow. Please give us an update if you feel up to it.
PS - I don't think you should change your avatar.....I love it!!
Lori
Crikeys!
I got two more bags of saline for supper! I feel better though. Glad to get that IV out of my elbow. Don't think I'll let them put one there again.
My wife will do the driving tomorrow, Dac, so we'll get there.
I guess it's good they want to do an uptake scan. I just wish it wasn't so far away. 100 miles one way is a long round trip.
I'm glad it won't slow down the RAI procedure.
Thanks for letting me whine.
The board sure looks different, huh? Guess I better find a different avatar. Beetleguese has got to go.
I got two more bags of saline for supper! I feel better though. Glad to get that IV out of my elbow. Don't think I'll let them put one there again.
My wife will do the driving tomorrow, Dac, so we'll get there.
I guess it's good they want to do an uptake scan. I just wish it wasn't so far away. 100 miles one way is a long round trip.
I'm glad it won't slow down the RAI procedure.
Thanks for letting me whine.
The board sure looks different, huh? Guess I better find a different avatar. Beetleguese has got to go.
Oh Bryan, I am *SO* sorry! Yeah, sue. The sound incompetent! I wish I could get you to my surgeon and endo. It does sound like you really need the *&^$ thing OUT and DEAD. I'm so sorry you are going through all of this. Hold your arm still. :-/
Prayers for you!
Utah
Prayers for you!
Utah
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