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hypothyroid and swollen, burning sensation in both ankles

a year ago I had my thyroid ablated. my blood numbers came back perfect for 4 months following ablation.I started to notice discomfort in both ankles, swelling and a sensation of burning. after 4 months I was put on synthroid. my weight gain has been constant, my eating habits are normal. due to pain in ankles it's hard for me to walk distance, or put any pressure on ankles, bending, walking,reaching etc.  No pain pill has helped, elevating does not help. I've been to every 'ologist' in the book, and not one of the doctors had a solution. I've taken a zillion blood tests, cardiac tests, vascular tests etc. all came out perfectly fine.  Everyone is flummoxed. I am still under the care of  my endocrinologist. I'm taking synthroid 150, and cytomel. recently I have been diagnosed with pernicious anemia, so I'm on B12(2000 a day) and Vit. D (2000 a day) My weight is off the charts, and my ankles are still swollen and burning. Is there anyone out there that has these symptoms? I'll keep the weight if I can just get rid of the pain in my ankles and lead a normal walking life.   HELP PLEASE  
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Avatar universal
There are those who think that fibro is not a disease at all, but untreated hypo when people are in the lower ends of the ranges for FT3 and FT4.  

I'd say your doctor is being ultra-conservative.  With a range of 30-100 on D, you have a long way to go to be "toxic" with a result of 31.  A range on any test ought to be interpreted as the playing field within which the doctor can adjust meds/supplements, and he should be using the whole playing field.

I hope you have better luck with your rheumy on Monday.  

Vitamin D deficiency ofen goes hand-in-hand with hypo.  Maybe it's just that once hypo, vitamin D (among other things) has to be a little higher in the range than for healthier people.    
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Avatar universal
Yes, meds on empty stomach etc.
Soy only with Chinese food, not too  often.
No gut issues, or celiac.

I will ask endocrinologist about getting into my bloodstream,
HOW  is the Question?again
I take B, D, cytomel & synthroid( T4, right?)
Helpful - 0
Avatar universal
Do you take your meds, especially your T4, on an empty stomach and then wait half to one hour to eat or drink anything?

Are you especially fond of any soy products?

Any gut issues?  Have you been tested for celiac?

From the way your numbers went down, it looks like you're just plain not absorbing the meds.  It's not a case of them not doing you any good...they're just not getting into your bloodstream.
Helpful - 0
Avatar universal
Only meds I take are for thyroid. Pinning him down, might not get answers, but might reduce some stress IF I use real pins!
As for eating something wrong, I have no idea what would cause poor absorption?

Glad fun, but there's always Something unfortunately.
Helpful - 0
Avatar universal
Is there anything at all that you're taking or eating that might be impeding absorption?  Any recent changes in other meds, supplements or diet?

Next time around, I'd pin your endo down and ask him his theory on what's going on with your numbers reversing despite increases.

Fun, but not without incident...long story...
Helpful - 0
Avatar universal
No comment, only adjusted meds.
At my wits end, as you can imagine.
No answers as to cause of my ankle problem yet, don't know what to do next.

How was your vacation?
Helpful - 0
Avatar universal
Whew!  What you got going there?  LOL

Your T3 meds after the labs prior to these current ones was increased to 10 mcg X 2, correct?  Yet, even with that increase, your FT3 went DOWN from 3.5 to 2.9???  

Your FT4 also went down, and if I recall correctly, your T4 meds weren't changed after the previous labs?  The drop in FT4 isn't as significant as the drop in FT3.  

Did your doctor comment at all on the drop in both?

I have not heard of alpha lipoic acid.  Yes, be sure to check out any drug interactions or contraindications before trying it.
Helpful - 0
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