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hypothyroid and swollen, burning sensation in both ankles

a year ago I had my thyroid ablated. my blood numbers came back perfect for 4 months following ablation.I started to notice discomfort in both ankles, swelling and a sensation of burning. after 4 months I was put on synthroid. my weight gain has been constant, my eating habits are normal. due to pain in ankles it's hard for me to walk distance, or put any pressure on ankles, bending, walking,reaching etc.  No pain pill has helped, elevating does not help. I've been to every 'ologist' in the book, and not one of the doctors had a solution. I've taken a zillion blood tests, cardiac tests, vascular tests etc. all came out perfectly fine.  Everyone is flummoxed. I am still under the care of  my endocrinologist. I'm taking synthroid 150, and cytomel. recently I have been diagnosed with pernicious anemia, so I'm on B12(2000 a day) and Vit. D (2000 a day) My weight is off the charts, and my ankles are still swollen and burning. Is there anyone out there that has these symptoms? I'll keep the weight if I can just get rid of the pain in my ankles and lead a normal walking life.   HELP PLEASE  
Best Answer
Avatar universal
There are those who think that fibro is not a disease at all, but untreated hypo when people are in the lower ends of the ranges for FT3 and FT4.  

I'd say your doctor is being ultra-conservative.  With a range of 30-100 on D, you have a long way to go to be "toxic" with a result of 31.  A range on any test ought to be interpreted as the playing field within which the doctor can adjust meds/supplements, and he should be using the whole playing field.

I hope you have better luck with your rheumy on Monday.  

Vitamin D deficiency ofen goes hand-in-hand with hypo.  Maybe it's just that once hypo, vitamin D (among other things) has to be a little higher in the range than for healthier people.    
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Avatar universal
Seems dr. Is being conservative. He feels since I am within the range he doesn't want me to go toxic.
He feels that maybe the rheumatologist will recommend a higher dose or something else.
I go on Monday 29th.
I have little to no faith in them, but will keep an open mind. He best not tell me I have fibromyalgia,  which is their key diagnosis to whatever ails ya!
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Avatar universal
Good info as usual,  have a call in now to endocrinologist, asking what amount he is comfortable with me increasing vit D  to.
Get back to you when he gets back to me, thanks again!
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Avatar universal
When you take the second dose depends on a little experimentation to see what time works best for you.  Most people avoid it after about 3:00 pm (on a "normal" sleep schedule) because it can interfere with sleep).  However, some people can take it right before bed with no ill effects on sleep.  After your morning dose, if you start to feel tired or get any other symptoms consistently at the same time of day, you want to take the second dose 2-3 hours before that time to avoid that "crash".  You don't have to fast before and after taking Cytomel like you do when taking Synthroid.  Even though Cytomel is fast-acting, it can take time to relieve symptoms that have been persistent.

Weight loss takes time, and even once your FT3 and FT4 are optimal, you might find you still have to make an effort to lose weight.  Optimal levels ALLOW you to lose weight, but they don't make you lose weight (at least at a pace that you'd notice).

Have you done anything about the D?  The more I see, the more I think that might be a culprit.
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Avatar universal
Not really, my ankles still are swollen and the burning sensation sometimes radiates over the top of my foot, however it subsides and just initial problem area remains.
Still not losing weight,  is there a specific time I should be taking 2nd dose of cytomel? 1st is in the a.m. when I wake, with synthroid, I try to take 2nd 10mcg about an hour before dinner.
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Avatar universal
So, these are new labs?  Are these on your increase from 5 mcg 2X per day Cytomel to 10 mcg 2X?  If so, how long had you been on 10 mcg 2X?

FT4 is about perfect.  It should be around midrange, and it's at 49%...can't get much closer...as in horseshoes and hand grenades, "close" counts in thyroid panels!  LOL

FT3 is at 63% of range, which is nicely into the upper half and not far from the upper third.

Are you seeing any improvement in your symptoms with the increase?
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