That is EXACTLY how I feel every day. I'm on Levoxyl 150 mcg but have been all over the board since 2002 from 187 to 100 mcg.....no endo has been able to get it "right" and keep it stable for more than a few months at a time. I have bottles full of different levels of Levoxyl that I have been on and have had to change mid-way through the dose....I'm very frustrated and confussed. I have been out of work since 11/14/11 because I can't focus, not able to concentrate or comprehend whats going on and I have NO energy/desire to get out of bed.....but I dont sleep more than 3 1/2 -4 hrs a night and sometimes I go for 2 or 3 days with NO sleep. Now I phoned in a refill for my Levoxyl and my Pharmacist tells me that the manufacturor of Levoxyl is not producing it at this time and it may be awhile before they do!!!! What do I do now....I'm lost and so confussed and frustrated....it's about time to give up!!!!!! What good does it do, anyway!?!????
Thanks for everyones help.
Hashigirl1972
how long were you on meds when the above labs were drawn? Those are worse than mine. what are your labs like now?
Will do going forward Barb..
Levoxyl worked well for me for the first year in diagosis... After that i have only found stability on synthroid.. as a "normal" converter..
Until you can post labs after at least 6 weeks of treatment then it's hard to determine if you are a "normal" converter Bruce.. :)
Good idea to read the whole thread, before jumping in. There was nothing said about difference in synthetic T4 meds. Bruce asked specifically about Levoxyl.
We can't consider Bruce a "normal" converter, because he has nothing to convert.
you are correct.. I did not read the entire thread and was only commenting on the original question about the difference between synthetic T4 meds..
if we compare a "normal" converter.. This was mine..
TSH: 102
FT4: 0.1
FT3: 1.9
Until my dosage was increased and i noticed how my TSH went down and my FT4 and FT3 went up then i didn't know how i was converting..
I recommend being on your meds for atleast 6 weeks and then have repeat labs to see how your levels fluctuate.. That is the only way to find out what you need to do..
Bruce's levels are posted above, in this thread. Apparently, you didn't read it all or you would have seen them, and as goolarra noted, the FT4 is so low, there's nothing to convert, so conversion is irrelevant at this time.
this comes from your labs.. What i found is that my TSH, FT4 ad FT3 are in perfect harmony.. If my TSH is high than my FT4 and FT3 are low.. When my TSH is low than my FT4 and FT3 are high.. This is "normal" circumstances and tells you that you are converting well...
If your TSH is low and your FT3 levels are low then that means you might need to supplement with T3 meds as well as FT4.. "this is not the case for me" which is why T4only meds work for me.. That is the first step...