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low calcium after Total Thyroidectomy

I would appreciate hearing other's experiences with low calcium after TT (4 days ago in my case)for a multinodular goiter and how long, if ever, these levels returned to normal.  My largest nodule was big (5 cm) so I am worried that some or all of the parathyroids were removed at the same time.  I see the surgeon in 5 days. Is it a reasonable question to ask if she saw any parathyroid glands and also if any were seen in the tissue removed?. I know that there can be damage to the parathyroids as well as removal.

If I am delayed taking the calcium pill the tingling in my fingers starts and my lips become numb so there doesn't seem to be any improvement post surgery.  Post surgery my ionized calcium levels were not below 1 though and I was told that was better than being below 1! Thanks for any help.
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Avatar universal
I had a total Parathyroid-ectomy in November with partial transplant of a portion of one gland. To step back a few, a am an end-stage renal failure patient on home hemo dialysis. I am having a hard time adjusting to the side effects of low-calcium. I am taking oral liquid calcium carbonate, os-cals here and there and more tums than Id like to admit to :) Does anyone have any other suggestions to jarr this partial gland into working again? My PTH is slowly raising, and I do have some good days (more good than bad), but the bad days really depress me and sometimes ti seems like there is no "light at the end of the tunnel" to get back normal.....Any suggestions would be helpful! Thanks, Dan
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Avatar universal
yeah, coral does have minerals like other products from the sea but some companies might "take some out".  i raised this question before and the levels are under the U.S. guidelines, so they say.  I buy mine from Puritan's Pride online.  they have a live chat customer service and so you can ask them all kinds of questions on their products.  that's why i take both coral cal and cal carbonate so that which ever is harmful, i half that harm, hehe.  i also was told by my nutritionist that calcium lactate is best but you have to take many to get the mg needed.  so it's troublesome to.  
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Avatar universal
i had that calcium thing too...they gave me calcium through an iv.  mine never went back to normal, as it's been two months and i still experience the numbness and pin needle effects.  however, i also have a food allergy to dairy....so i can not eat all the dairy foods.
i started taking calcium on a daily basis, and chewed tums when the problem got severe enough....but it appears to have leveled itself out. i take 2,000 mg of vitamin d with 1000 mg of calcium daily, and this seems to help much.

if you can eat dairy, raid your fridge for ice cream and cheese!
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Avatar universal
Welcome.  Congratulations on getting through your surgery.  Sorry you have to deal with this aspect.  It can be scary, I know, but hopefully it will be temporary.

There’s a lot to learn and figure out when this happens, but hopefully you will glean all the information you need to deal with it.

I hope you benefitted from this thread but do encourage you to repost your question in a new one (green ‘Post a Question’ button), as this one is older dated and can get passed by easily.  Plus the more threads on this subject, the better.

One suggestion on getting info I’d like to give you is the site:

www.hypoparathyroidism.org

That’s a place with folks who are experiencing what you are - some permanent, some temporary.  It has great info and a forum that might help you.

Keep in touch.
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Avatar universal
Here is what I found when I searched this which sounds a little ominous. Do you have different information on it?

Coral calcium
From Wikipedia, the free encyclopedia

Coral calcium is a salt of calcium derived from fossilized coral reefs. Living coral reefs are endangered and cannot be harvested without significant damage to the ecosystem, and because of this, coral calcium is harvested by grinding up above-ground limestone deposits that were once part of a coral reef. Calcium from coral sources need to be refined to remove pollutants of the source environment. It is marketed as a dietary supplement, but its benefits over other calcium supplements are unproven and biologically unlikely.[1] Additionally, coral near Okinawa has absorbed relatively high amounts of lead and mercury, leading to concern that these unregulated supplements may be contaminated.[2] Further, coral takes millennia to grow, leading to environmental concerns.[2]
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Avatar universal
p.s.  should have said = the body does not bank up calcium after around the age of 25.  i tell my kids to eat more calcium rich foods to bank it up in their bones for future bone health.

i wish i can hear of someone who has managed to exercise & have learned ways to manage the calcium issue cuz when i try to do more, that night i hurt :(       It's hard to try to lose weigth when you can't "exercise" like others.   I guess I could keep drinking liquid cal during exercise...but that is a sad  scenario to even imagine.  but, never say never i guess.       warm regards everyone!
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