Aa
**newbie, hello
Hi there-
I read your Thy-roidian posts and feel at home here, I hope you don't mind me saying so as a newbie. I wish I could be of some help to all of you since I know how much this sucks. Let me know, I am registered here now. I am hope I am not tooo long winded- I am 38/f/happilymarried/ 5'6 179lbs/ 1 super good teenage kid/homemaker/Hashimoto/anxiety since 1998.
Meds: 150mg synthroid, 20mg Celexa, heartburn pills, 1000mgs b12, and probably a handful of Tylenol by the end of ea day.
I am a homemaker not by choice. I gave up my career @ Disney in 1998 due to this illness, I could no longer keep the job going anymore. (ya, thats a burden on my self-esteem-the judgements people whisper have been hurtful) Without insurance, I have never received good care so the story drags into years. My TSH levels are finally normal now, but I have been very sick with new symptoms. I went to the Dr. yesterday and was put on weekly b12 shots for completely numbed out/tingly swollen, red,hands/arms/feet/legs, dizziness, weakness, body aches. She never checked my b12 level though- She said I had a deficiency 2 months ago from the last lab and says thyroid patients cannot absorb b12 like they are suppose to. Gee, thats a new deal for me.
I have a never ending itchy rash on my scalp lately. I get daily headaches, slow thought process, confusion, unorganized, forgetful, and lethargic. I have to sleep alot. I cannot drive highways (only local rds)due to panic attacks. Depression is always a struggle to manage, I am told it is because of my thyroid.
I also exhibit low blood sugar problems, I gotta eat a little frequently or else I will pass out. I have to give my husband sympathy sex to keep him happy, but I LOVE him deeply. It isn't him. I have no sensations like I used to, and no drive. I am lucky he loves me, he is very supportive.
Now for the good news. Since I have been strangely sick for so long, and now I am "scarier" sick, I need to apply for disibility AGAIN so that I can get some insurance to find out what the hell is a matter w/ me for once. Without insurance, I just politely float in and out of Dr. Offices with a band-aid. I tried applying for disibility twice already in 2000 & 2001 but was denied. They say thyroid was not justification enough. Ok well, that SHOULD be changed, but do I gotta actually die of something before they will believe me??
I am a self taught-artist now and have done some good work in my studio, I am just starting to sell my work. I am trying to do something around my illness by working at home when I am up to it. My husband works overseas 3 months on 2 off. He pays most of the bills around here including all my medical bills which are not cheap. I don't have many friends anymore because I feel alienated in many ways from normal career oriented people with this illness. I am also sensitive about people judging me without all the facts since it has happened a few times.I won't tell people all this because I am private. I almost have an associates degree (2 quarters away) but I can't go and finish now because I can't concentrate, remember knowledge, or focus on books anymore.
Sometimes I feel I have lost or am loosing but I know I have no choice but to just keep on trying and avoid whining (other than now). I always put on a front for my daughter. I know she worries, but I want her to keep doing well in school & going forward. My 30's have been lousy health wise. I know something else has been the matter w/ me as well as hypothyroid but I cannot seem to get a clear cut diagnosis. I have been to the shrink- she also agrees my anxiety/depression is thyroid related. I am getting worse. Thanks for the shoulder, any advice would be so appreciated, and keep your chins up, God seems to work it all out somehow-
Thanks from the newbie~
I read your Thy-roidian posts and feel at home here, I hope you don't mind me saying so as a newbie. I wish I could be of some help to all of you since I know how much this sucks. Let me know, I am registered here now. I am hope I am not tooo long winded- I am 38/f/happilymarried/ 5'6 179lbs/ 1 super good teenage kid/homemaker/Hashimoto/anxiety since 1998.
Meds: 150mg synthroid, 20mg Celexa, heartburn pills, 1000mgs b12, and probably a handful of Tylenol by the end of ea day.
I am a homemaker not by choice. I gave up my career @ Disney in 1998 due to this illness, I could no longer keep the job going anymore. (ya, thats a burden on my self-esteem-the judgements people whisper have been hurtful) Without insurance, I have never received good care so the story drags into years. My TSH levels are finally normal now, but I have been very sick with new symptoms. I went to the Dr. yesterday and was put on weekly b12 shots for completely numbed out/tingly swollen, red,hands/arms/feet/legs, dizziness, weakness, body aches. She never checked my b12 level though- She said I had a deficiency 2 months ago from the last lab and says thyroid patients cannot absorb b12 like they are suppose to. Gee, thats a new deal for me.
I have a never ending itchy rash on my scalp lately. I get daily headaches, slow thought process, confusion, unorganized, forgetful, and lethargic. I have to sleep alot. I cannot drive highways (only local rds)due to panic attacks. Depression is always a struggle to manage, I am told it is because of my thyroid.
I also exhibit low blood sugar problems, I gotta eat a little frequently or else I will pass out. I have to give my husband sympathy sex to keep him happy, but I LOVE him deeply. It isn't him. I have no sensations like I used to, and no drive. I am lucky he loves me, he is very supportive.
Now for the good news. Since I have been strangely sick for so long, and now I am "scarier" sick, I need to apply for disibility AGAIN so that I can get some insurance to find out what the hell is a matter w/ me for once. Without insurance, I just politely float in and out of Dr. Offices with a band-aid. I tried applying for disibility twice already in 2000 & 2001 but was denied. They say thyroid was not justification enough. Ok well, that SHOULD be changed, but do I gotta actually die of something before they will believe me??
I am a self taught-artist now and have done some good work in my studio, I am just starting to sell my work. I am trying to do something around my illness by working at home when I am up to it. My husband works overseas 3 months on 2 off. He pays most of the bills around here including all my medical bills which are not cheap. I don't have many friends anymore because I feel alienated in many ways from normal career oriented people with this illness. I am also sensitive about people judging me without all the facts since it has happened a few times.I won't tell people all this because I am private. I almost have an associates degree (2 quarters away) but I can't go and finish now because I can't concentrate, remember knowledge, or focus on books anymore.
Sometimes I feel I have lost or am loosing but I know I have no choice but to just keep on trying and avoid whining (other than now). I always put on a front for my daughter. I know she worries, but I want her to keep doing well in school & going forward. My 30's have been lousy health wise. I know something else has been the matter w/ me as well as hypothyroid but I cannot seem to get a clear cut diagnosis. I have been to the shrink- she also agrees my anxiety/depression is thyroid related. I am getting worse. Thanks for the shoulder, any advice would be so appreciated, and keep your chins up, God seems to work it all out somehow-
Thanks from the newbie~
neurologist put me on lyrica awhile ago but did not help too much.I think this drug is the same as neurontin.I just hate the idea of masking the problem with drugs.Did your Neurologist have ANY clue to what he thinks is causing your problems ??you mentioned he ruled out ms.how did he do that?? mri evoke potentials? did he say he thought these these symptoms would just go away over time??It still kind of worries me.I have heard that ms is a very hard thing to diagnose and it takes years sometimes even with negative test results.I do not have visual disturbances or motor issues just the sensory things,but I made the mistake of researching ms too much on internet and got myself all worked up even though my neurologist happens to be ms specialist and has said very unlikely,I still worry.I think when you have small children you just think about taking care of them and with a disabling disease like ms it would be very difficult.GOtta try to get it out of my head!!! silly questions but do you happen to have breast implants of any kind??
Leanne
Leanne
Ahhh nevermind I just reread your original post, I cant keep track of who was who here sometimes. So it has been 6 months for you, I am on 8 months now. :( Also the Neurologist put me on Meurotin for nerve pain, it seemed like it used to help but not lately.
Your Mom aounds great to....... My mouth doesn't tingle it just has like skin peeling in it with a white coated like tounge, strange I know but it seems my tounge has been sweeled ever since also. I have not had radiation therory, they are talking about removing the left lobe to test it before they go any further for now. KIP Leanne and also how old are you? I am 35
Msfergy
Msfergy
yes I have tingling in mouth and tongue and my nose even has same kind of sensations.roof of mouth etc...How have you been feeling lately??I just got back from camping with my parents and family and I must say trying to keep somewhat of a normal routine had helped me, and I am just trying my best not to think too much about the way I feel I am trying to detach myself a bit by keeping busy.It seems to help me (this week anyway).I think you and I really sound like we are in the same boat.I had the whole nodule goiter thing going on before I had rai therapy.I know there is a connection!!Hang in there.By the way I think it is so sweet your mother wrote in .My Mom is the same age your mom is and she is beside herself in pain,feeling helpless not knowing how to help .She has been there for me through this whole horrible experience by helping me so much with my kids ,and holding me when I am sobbing.We are so lucky to have Mom's that care for us so much.I really Love my mom too!!!
Leanne
LJ39
Leanne
LJ39
Yes Mommy you are right! And I do thank you for all your support to, without you I dunno where I would be. I love you......:)
I am glad my daughter (msfergy) has found others who suffer from her same symptoms as I know first hand the Hell she has been going through with all the Drs. & ER's in the middle of the night etc. as I am her #1 supporter & have only missed 2 times being with her when she went to ER...
This has totally drained me as well as her as you know a Mother feels every pain her child goes through... I am 64 & all this worrying don't do me justice either but she has needed me so much..
My daughter has 2 young girls to care for also (9 & 10) and its been so hard for her... And her husband has had alot of doubts but he should know she wasn't always that way all the years they have been together.... Someone needs to start a Foundation for this unknown illness that the Drs. can't seem to find a cure for.. We can spend Billions sending people to outer space but can't afford to find a cure for all the illnesses here on Earth.. We also need a Universal Health System for all here in the USA... Other country's have it.. "Good Luck to You All & May God Help All of You"
"msfergy's MOM"
This has totally drained me as well as her as you know a Mother feels every pain her child goes through... I am 64 & all this worrying don't do me justice either but she has needed me so much..
My daughter has 2 young girls to care for also (9 & 10) and its been so hard for her... And her husband has had alot of doubts but he should know she wasn't always that way all the years they have been together.... Someone needs to start a Foundation for this unknown illness that the Drs. can't seem to find a cure for.. We can spend Billions sending people to outer space but can't afford to find a cure for all the illnesses here on Earth.. We also need a Universal Health System for all here in the USA... Other country's have it.. "Good Luck to You All & May God Help All of You"
"msfergy's MOM"
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