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test results back, pissible parathyroid issue?
I got my test results back. It is quite interesting. Last month my thyroid antibodies were above 250 and this month they (anti-thy perox) were 25 with reference 30)
So he said Monday we will discuss the vitamin D which is low and the marginal parathyroid results. Does this mean I have a problem with it or not? From what I read, your calcium levels should really never be in the 10's and even with a normal PTH is is suggestive of parathyroid issues. Is this true? Could this be why I am having panic attacks, raised blood pressure, headache and side effects to my thyroid meds? Once again thank you all for the help. I don't know what I would do without you all.
So he said Monday we will discuss the vitamin D which is low and the marginal parathyroid results. Does this mean I have a problem with it or not? From what I read, your calcium levels should really never be in the 10's and even with a normal PTH is is suggestive of parathyroid issues. Is this true? Could this be why I am having panic attacks, raised blood pressure, headache and side effects to my thyroid meds? Once again thank you all for the help. I don't know what I would do without you all.
Maybe an "endo" isnt the best choice. Have you looked into thyroid experts with MD's and NP's and DO titles?
Many patients find an endo is not the best to really help at times. Your insurance may be more leaniant with one of those and you could find better options.
Many patients find an endo is not the best to really help at times. Your insurance may be more leaniant with one of those and you could find better options.
COMMUNITY LEADER
I might suggest that you begin a new thread with your own symptoms and situation; that will help members keep your issues separate from someone elses.
Do you have recent blood test results that you could post, along with reference ranges, since these vary lab to lab and must come from your own report? Preferred labs would be FT3, FT4 and TSH; since you've had vitamin D tested, please post that as well. Have you had vitamin B12 tested? If not, you should do so.
Last, but not least -- if your doctor is dosing you based on TSH , s/he isn't doing you any good, and will keep you sick for a long time........ you need to know what the Free T3 and Free T4 levels are as well.
Do you have recent blood test results that you could post, along with reference ranges, since these vary lab to lab and must come from your own report? Preferred labs would be FT3, FT4 and TSH; since you've had vitamin D tested, please post that as well. Have you had vitamin B12 tested? If not, you should do so.
Last, but not least -- if your doctor is dosing you based on TSH , s/he isn't doing you any good, and will keep you sick for a long time........ you need to know what the Free T3 and Free T4 levels are as well.
New to this forum; first post. Total removal of thyroid in Nov. 2009 because of large benign nodules pushing on my trachea. Did great the first 6 mos. afterwards on 125 mcg. of Synthroid; became "overdosed" and at the same time became menopausal; I have no estrogen. Dr. reduced dosage to 100 mcg and now I am on 88 mcg and still feel horrible. Ringing in ears, panic attacks, dry skin, yeast infections, insomnia, short tempered - all the menopause symptoms and then some. I am thinking about HRT although I don't want to but if it will help me feel better I may. Dr. checks labs every 3 mos, but I think I should go more often. I also take an extra Vitamin D daily as I have a "minor" vitamin D. deficiency. I am at my wits end. Maybe since I found this forum I can find some "suggestions" for my endo to check? She doesn't want to check for adrenal fatigue syndrome until my TSH readings are normal. Is she right? I just noticed someone mentioned calcium. I have been "back sliding" on that lately because I take so many meds now (accupril and HCTZ for blood pressure, celebrex for osteoarthritis in addition to the Synthroid. Glad I found this forum! Good to know I am not going crazy by myself!
Unfortunately I can't go to another endo. He is the only one my insurance will allow in the area and I don't have the money to go to another. I would LOVE to go to another one. I have stopped taking my meds, because I get hyper even taking 1/4 of the lowest does of levothyroxine every other day at this point. I feel horrible with panic attacks and heart palps, and shortness of breath every time I take them. It will probably go hypo again now that I am off of them, but I just needed a break from the symptoms. I've felt better off of them. I do have a large goiter that at one time had nodules but now they said that they are gone. I just had one a few months ago. I'm wondering if a med change will help, and I'm also waiting for my cortisol results. Thanks you so much for your answer.
COMMUNITY LEADER
Have you had a thyroid ultra sound? Do you know if you have nodules on your thyroid? Sometimes, nodules can leak hormones, independently of the thyroid and they "pay no attention" to the TSH telling the thyroid not to produce.
That being said, your TSH at 2.66 is on the high side, because your lab is using an old range. The "new" range (8 yrs old) is 0.3-3.0.
You said "My endo doesn't understand any of this stuff and I want to know what to ask for on Monday." If your endo doesn't understand any of this stuff, which is supposedly what he should have been trained for --- you need a different endo.........
That being said, your TSH at 2.66 is on the high side, because your lab is using an old range. The "new" range (8 yrs old) is 0.3-3.0.
You said "My endo doesn't understand any of this stuff and I want to know what to ask for on Monday." If your endo doesn't understand any of this stuff, which is supposedly what he should have been trained for --- you need a different endo.........
Thank you. I have an appointment on Monday, so I'm sure he will give me some sort of vitamin d (of course with him you never know lol). Hopefully this will help get things under control. I'm in this situation where I can't take my meds and I can't be without them so there is no middle ground.
In my opinion - these parathyroid labs are OK. However the Vit D is very concerning.
You mention autoimmune thyroid also and had concerns of the TSH lab going all over the board within a short time. With high TPOabs in autoimmune thyroid - this is not uncommon.
Try to picture these antibodies as an army out to attack a camp. They are hungry to win the war and will do anything to seep through the protectors. When the are winning and beating up the thyroid gland - your TSH will spike high. When they aren't getting through, the TSH will go low. This can happen many times - even through the course of the day.
Many patients with either Graves or Hashi are miserable. This is why.
Its suppressing the antibodies thats key here. Any thyroid labs done during the attack phase can be false positive while the antibodies are winning....
The Vit D theory and you lab showing it needs improvement many be a good way to get things under control.
Vit D is having alot of talk lately on autoimmune issues - along with a host of other illness and its not directly related to parathyroid either.
You mention autoimmune thyroid also and had concerns of the TSH lab going all over the board within a short time. With high TPOabs in autoimmune thyroid - this is not uncommon.
Try to picture these antibodies as an army out to attack a camp. They are hungry to win the war and will do anything to seep through the protectors. When the are winning and beating up the thyroid gland - your TSH will spike high. When they aren't getting through, the TSH will go low. This can happen many times - even through the course of the day.
Many patients with either Graves or Hashi are miserable. This is why.
Its suppressing the antibodies thats key here. Any thyroid labs done during the attack phase can be false positive while the antibodies are winning....
The Vit D theory and you lab showing it needs improvement many be a good way to get things under control.
Vit D is having alot of talk lately on autoimmune issues - along with a host of other illness and its not directly related to parathyroid either.
I got my test results back. It is quite interesting. Last month my thyroid antibodies were above 250 and this month they -anti-thy perox-were 25 with reference less than 40. I'm not sure how they decreased that fast in a month. I have stopped taking my thyroid meds because every time I take them I get horrible panic attacks, heart palps, head aches..etc etc. My TSH went from 11 to 2.6 without meds???? How does this happen? It's fluctuating from hypo to hyper in extreme amounts every month. Here the results and a new problem. Over the phone they expressed concern over the parathyroid which they said was marginal? What does this mean? My endo doesn't understand any of this stuff and I want to know what to ask for on Monday. TSH - 2.660, normal .550-4.78 Free T4 - 1.16 normal .70-1.76 Free T3 - 3.23 normal 2.3-4.).I wanted him to test for both hashimotos and graves antibodies, but he didn't apparently. parathyroid studies
PTH intact- 52 normal 14-72
Calcium - 10.0 normal 8.5-10.1
Vitamin D - 11 normal greater than30
So he said Monday we will discuss the vitamin D which is low and the marginal parathyroid results. Does this mean I have a problem with it or not? From what I read, your calcium levels should really never be in the 10's and even with a normal PTH is is suggestive of parathyroid issues. Is this true? Could this be why I am having panic attacks, raised blood pressure, headache and side effects to my thyroid meds? Once again thank you all for the help. I don't know what I would do without you all.
PTH intact- 52 normal 14-72
Calcium - 10.0 normal 8.5-10.1
Vitamin D - 11 normal greater than30
So he said Monday we will discuss the vitamin D which is low and the marginal parathyroid results. Does this mean I have a problem with it or not? From what I read, your calcium levels should really never be in the 10's and even with a normal PTH is is suggestive of parathyroid issues. Is this true? Could this be why I am having panic attacks, raised blood pressure, headache and side effects to my thyroid meds? Once again thank you all for the help. I don't know what I would do without you all.
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