RANT -- I'm at my 5 month mark now

[mommy2two2008]

Well, as of today, it has been 5 months since this thyroid hell began and I am no further along in it then April.  I am still waiting to view my latest *normal* thyroid panel.  I got a call from the ENT today, they had been waiting on the lab to get my calcium draw back, but turns out that the lab did not draw for calcium, they just did the thyroid panel.  So, my lunch hour was filled with waiting at the hospital lab.  I hope to get all the results faxed today but I am sure it will be *normal* as always.  My swelling thyroid it just about on my last nerve and I think it is literally sitting on a nerve since one side of my lips are numb from time to time.  I really am so tired of wondering what will come of this mess.

Oh, and if wondering wasn't fun enough, I have gained 15 lbs and that really *****!

[mommy2two2008]

You are so welcome! :) Kim

[Totie]

Thanks for being a friend.

[mommy2two2008]

Totie - is it possible to change docs in this instance?  I have no idea about your situation, but it seems to me that you loosing this much weight in such a short amount of time and the kind of stress you are under could be very dangerous to you in the long run.  You know, some insurance does not require a referral.  I went to an endo WAY before I hated him and went to a GP and 2 ENTs.  Have you thought about calling your insurance company?  I know mine has a nurse line (the real description of it escapes me) that I can call and discuss my problem(s) and come up with a medically insured solution.  

Of course, I am just throwing ideas out there.  I just keep praying that your PCP will get on with some form of treatment.  Back pain, in addition to all of your other woes, could indicate a kidney problem, which I think is common in both addison's and thyroid (DON'T QUOTE ME ON THAT ONE --- I AM STILL NEW TO THIS)  I am just really worried they they are not giving you the care you need.

I am so glad that your husband is fighting right there with you.  I know you are under much stress at the moment.  I'll be praying and sending good vibes your way.  Please keep us up to date!  We want to know that you are o.k.!

[Red2008]

Hang in there, I myself have been on the "trying to become theraputic" roller coaster for about eight months and it just seems sometimes to get worse than better. But I have to tell you the support and caring from this community is unbelievable. (((((Big Hugs)))) to all of you, keep fighting we are going to do this : )   Red...

[utahmomma]

Hugs to you my friend.   Lots of understanding and hugs!

[Totie]

That was my thought, but when i asked about her just giving me the alodrene (sp) that I was low on, she said the endocrinologist had to dig deeper. I asked if the kidney doctor should had run the tests because i kept complaining about weight and always craving salty foods, she said yes, and it was a good question as to why he did not and i saw him twice. He NEVER did any lab work, none. His diagnosis on me was i drink to much water, funny i guess 36 oz is alot for a day. I am basically at their mercy, but it this way she wanted to see me in a month, for what....Nothing has changed except weight and more back pain. I am not scheduled for any tests for me to go see her and get any type of results back. I guess when she finds an Endo they will call. I did by the way ask copies of my medical records to see the latest lab work on the potassium, and alodrene (sp) . My husband know i am very frustrated, but all he can say is do not give up, but really what else is there to do. I also developed thrush last week, and my tongue still burns after i eat. I basically have no faith in the medical system. You know my mom pased back in June, then my father in law in July. It has been very stressful and I think i am just wore out from it all, so I guess that is why i am at the point where I just don't care.  

Thanks for your response though.......take care and hope everything works out for you. I did promise my husband i would keep all appts. if any came up.

[mommy2two2008]

Oops - that was supposed to be PCP.

[mommy2two2008]

Totie, can't the PCF go ahead and start the steroid therapy?  I am sooooo sorry you are having to suffer just because the doc does not like choice of endo.  PCP's choice may have to come second to your not wasting away while he takes his time to be choosy!

I'll be praying for you.  I know you have way more than your share right now.   (((((Hugs to you)))))) and God Bless! ~Kim

[Totie]

I have to admit, i have basically decided "it is what it is". I was told last week i have addison's disease,  yeah pretty much have the symptoms, but I am tired of all the dr. appts., tests, and the waiting. Right now, i am not being treated because my PCP does not like the Endo here, so she has to make a few calls and see who she can come up with. In the mean time i am down to 96lbs, have literally lost my appetitie, I do eat, but not much. My bones ache so bad, she did mention something about my potassium level being way off, but did not tell me what she would do or what i should do. As far as the mass goes, will they do not know if it is cancerous or not, they basically do not know what it is, and they can not biopsy it. It will be another wait and see in 3 monthis.

Seriously guys, i give up.

[mommy2two2008]

You're right Peggy.  Will keep the good fight going.  Nothing else to do but that!

[peggy64]

Mommy2two,

we have fought this too long to give up now, haven't we? That can be said of all Thyroidians.

Bless us all and our families....

[mommy2two2008]

MK - I am soooo glad you are doing well after surgery.  I just feel about ready to tell the ent to take it out (I know, easier said than done).  Big snuggles to you for your success!

~Kim

[MKlacza]

It will take time unfortunately. Trial and error! I have been down this thyroidless journey now for 4 months and finally hit my marker which is 90 mgs on Armour! So far so good! Ladies, there are happy endings out there.. its just getting there that can stink!!

xoxo,
MK

[mommy2two2008]

Thanks Peggy - I know you can relate!!!  I wish both of us the best to come (anything is better than this)!~

[peggy64]

Boy Can I relate with you....

Mine has been going on since end of March. Just about at my wits end. But I have made it through, and have my friends here to thank for that.

Trying to figure all this out, the whys, the wherefores, it is maddening. Having to do it without a knowledgeable dr? well that is the icing on the cake.

But I have made it Thank God!! Still have days though, when I just want to die....