STELLA, GOOLARA, AND GIMEL, you have responded to previous posts. Mel, you responded to the one under Jackie1923, when I couldn't access my artfemme account.
I have a pile of labs about 3" thick, going back to 2003. In 2006, I was finally diagnosed w/ a multi-nodular thyroid gland. In 2008, I started on medication but was told that it was only to suppress nodule growth and that my extreme hypo symptoms were meaningless. Antibody tests have been negative. C-reactive protein is normal. Nodules slightly reduced, last ultrasound a year ago.
>I have made a few other posts and some of you have requested back labs. I posted my most current ones a few weeks ago (please look for the previous artfemme post if you choose to try to help me) and it seems they are not useful because I did not take the T3 medication before the first test, but forgot and took it 5 hours before the second test. The FREE T3 was elevated in the second test. My doctor had raised my T4 from 75 to 100 mcg, but the FREE T4 level barely changed at all.
I am a little demoralized about posting all of these tests...which I guess I should put in Tracker to make it a one-time deal if you believe they have meaning.... it takes hours because of the changing lab ranges and monitoring so many things that are related to thyroid in the comprehensive metabolic panel. Also, dosages were changed throughout, the tests were done at different times of the day, drugs were switched from T4 and T3 brands to Armour, back to generic and back to brand , and I was told to go ahead and take T3 before the labs, that it wouldn't affect the tests. I take bio-identical HRT and cycle it but was told it wouldn't affect the tests, even though labs were given at different points in my cycle.. My period has fluctuated wildly w/ every adjustment to thyroid meds. Cortisol was tested at different times of day. Most demoralizing is that I have entered it all at least twice in the past, only to have the site eat my posts and not publish them.
In most of the tests, they did T3 uptake or total T3 and T4 tests, which I think are supposed to be fairly useless. Do you still want to see them? They DID do Free T4 tests sometimes. My creatinine was consistently high for a long time, and eGFR low, but that is normal now. My cholesterol was high, blood pressure high, VIT D low, glucose high but that has all gotten better as well. rT3 tests have been done twice and I was told they were normal, but I had taken T3 before the test.
At 100 mcg generic T4 and 15 mcg Cytomel, my hair (which had grow back) is falling out again at a rapid pace in the last 2 months and my scalp itches and hurts again, about 4x as much hair lost per shower than before. I have gained 26 pounds, 3" around my waist and hips rapidly. My abdomen has become grossly distended again, and my lower extremities edemic, though I use little salt and do my own cooking almost always. I do not use processed foods. I do not eat junk food. I do water aerobics with weights twice a week.
On going over my history, I realize that the time I felt the best was summer of 2009, after I had been on combination meds for 6 months. I had been put on Armour briefly and crashed, but bounced back immediately when put back on combination T4/T3. Then Cytomel was changed to generic T3 and I slowly developed hyper symptoms. Since then my dosages have been changed several times, with very bad results in weight, mood, concentration, vision, achey-ness, foot cramps, and edema. All of this is chronicled in my last post.
These are the labs from the last time I felt well. I had lost 15 lbs. in 3 weeks, and slowly 10 more w/out change in diet or exercise, hair grew back, and many other benefits that restored my health. But doctors were concerned because the T3 levels were high and TSH low, although it had been at the very bottom of the "normal" range before I was put on meds at all. It was thought I should be taking more T4 and less T3, although the endos wanted me to stop taking thyroid meds completely. I am grateful for my PCP, who doesn't know what she's doing but keeps doing the labs and believes there's SOMETHING wrong.
July 22, 2009
one month after going back on 75 mcg generic T4 and 25 mcg Cytomel after 2 1/2 months on Armour, bad results
TSH 1.7 ( .450-4.5 )
T4 total 6.1 ( 4.5-4.500 )
FREE T4 1.7 ( 1.2-4.9 )
T3 uptake 28 ( 24-39 )
T3 total 129 ( 85-205 )
testosterone serum 53 (14-76 )
Estradiol 50 ( 0-31 ) menopausal ( but I am on bio-identical HRT, day of cycle unknown )
VIT D 29.8 ( 32-100 )
August 26, 2009
same medication
TSH .012 ( .450-4.500 )
T4 total 5.9 ( 4.5- 12.0 )
FREE T4 1.7 (1.2-4.9 )
T3 uptake 28 ( 24-39 )
rT3 186 ( 90-350 )
ODD TESTS
after started to fail on meds, (depression, etc.)
75 mcg T4 12 1/2 mcg T3 both generic
March 31, 2010
pituitary center (told to stop taking all thyroid meds immediately, yelled at. PCP disagreed. )
PTH, intact 41 ( 15-65 )
Cortisol - AM 20.4 ( 6.2-19.4 ) told being high was "meaningless"
August 30, 2010
PCP, sending me to new endo because of symptoms
100 mcg T4 cycle 12 1/2 - 25 mcg T3 generic
gained 15 lbs in 3 weeks, but no more depression and brain fog etc.
TSH .023 (.450 - 4.500 )
T4 total 9.6 ( 4.5 -12.0 )
FREE T4 2.8 ( 1.2 - 4.9 )
T3 uptake 29 ( 24 - 39 )
T3 total 185 ( 71 -180 )
FSH serum 73.3 ( 25.8 - 134.8 ) (HRT as noted)
October 20, 2010
new endo, further tests,reduced meds, wrote to my PCP saying I shouldn't be on meds at all
75 mcg T4 15 mcg Cytomel
TSH .422 (.450 - 4.50 )
FREE T4 direct .66 (.82 -1.77 )
FREE T3 3.6 ( 2.0 - 4.4 )
IGF-1 211 ( 75 - 212 )
Sometimes the FREEs are serum, sometimes they're direct....rates are different, don't know how to compare. Gained 10 more pounds while he saw me, did not change (low)diet or exercise. PCP concerned.
now on 100 mcg T4 15 mcg Cytomel. hair falling out, weight rapidly increasing. Please see previous post for current labs and condition. I am wretched and feel completely lost. I live alone and have no family or friends to help, have not been able to work.
This has taken more than 2 hours to write. I will post the rest if you think it is necessary. Thank you so much for your concern.