Hi,
I have psuedotumor cerebri and have have 6 lp in the last year, all of which drained 25- 40ml of csf. but that is not my current issue on June 20,2014 my nuro double my diamox dose to 1,000mg 2x a day. On July 3, 2014 I went to the er because of seeing floaters and unusual dizziness ans while the I had my first seizure. They did a ct and blood work all was fine and said it was because of my headache which I didn't have until after the seizure and to have my nuro do another lp later. On July 4, 2014 I had another seizure worst than the first and now I can't stop the tremors. I again was told it was the headache that I didn't get until after the seizure and a prescription for .25mg of Xanax. On July 5, 2014 after taking the Xanax the tumors got very very bad and I had another seizure. When I got to the er ems i was put in a hallway, my tumors started to get out of control and i couldn't talk so a male nurse put his fist in my chest and when I didn't stop shaking he said it wasn't real and walked away. I never saw a doctor their and that nurse didn't know why i was there or my name so my family took me to a different hospital where the said I am having psuedoseizures. I had another seizure on July 6, 2014. I can't walk without assistance, my upper left arm has no feeling in it at all, and me trying to type this is labor some. During those seizures I am aware for a moment, some times I know it people around me i just cant see them, I have been able to get sound out once that I know of but I was told it was repetitive. I have not had an eeg done yet but I 'm really freaking out. I have to small boy ages 5 and 4 who was home alone with me on one of these occasions and they called for help. any input would help greatly