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DIAGNOSIS CONFUSION!!!!
Ok, I don't really know where to start. Most of you who have been here a while know that I have a suspicious nodule on my thyroid - jsut found that about a month ago. My main complaint to my gp was about the numbness, tingling, paralysis and buzzing and electrical sensations. My neuro ordered second EEG and MRI and yesterday told me I am having complex partial seizures - epilepsy. I am new to all this, so of course I need more knowledge - I read all I can on the internet and some in the library. Granted, some info on the net doesn't come from very reliable sources, but have read some stuff tonite from reputable sites that has me wondering.....is there a way that this dx of epilepsy could be wrong. Ihave been reading some articles on the effect that thyroid can have in misdiagnosing neuro diseases. I am so confused....I mean, i don't want to take this anti seizure med if I don't need it - but I don't want to stop taking it either. Am I just getting "too smart" and jsut searching for some connection where there may not be one? I have about 12 other things to check out but I am driving myself nuts - so after typing this i am going to bed and sleep on it. I am just wondering if anyone here has had this same sort of situation or knows of it or can lead me in the right direction. I think that b/c I have been dealing with all this neuro stuff for so long that at this point, I just want to sit back and believe what I am told - Have tried to post on neuro/thyroid forum to no avail! Help!
HI,
As you are probaly aware by now, I have Graves Disease. Every symptom in the world can be associated with Graves Disease. But, because it is also an autoimmune disease, I am at risk for other autoimmune diseases and illnesses. So, I am constantly going to doctors for more and more testing. My Graves disease is more than likely responsible for my IBS, high cholesterol and osteoporosis just to name a few! For your particular thyroid problem, I beleive they may want to biopsy that nodule and take it from there as far as treatment for that issue is concerned. As far as the neuro. problem goes , whether or not it is related to the thyroid nodule I think it should probably be dealt with in and of itself. I know you are apprehensive and frustrated. Wouldn't it be nice if the docs. could all get together on a conference call and come up with a treatment plan, instead of us running from one to the other.
P.S. My bone marrow biopsy was pretty painful.
As you are probaly aware by now, I have Graves Disease. Every symptom in the world can be associated with Graves Disease. But, because it is also an autoimmune disease, I am at risk for other autoimmune diseases and illnesses. So, I am constantly going to doctors for more and more testing. My Graves disease is more than likely responsible for my IBS, high cholesterol and osteoporosis just to name a few! For your particular thyroid problem, I beleive they may want to biopsy that nodule and take it from there as far as treatment for that issue is concerned. As far as the neuro. problem goes , whether or not it is related to the thyroid nodule I think it should probably be dealt with in and of itself. I know you are apprehensive and frustrated. Wouldn't it be nice if the docs. could all get together on a conference call and come up with a treatment plan, instead of us running from one to the other.
P.S. My bone marrow biopsy was pretty painful.
Hey yall, thanks for your comments. I called neuro this morning and doc called me back a little while ago. She is going to send me copies of results. I explained to her the confusion I have and she stated she completely understood where I was coming from. All of this stuff is confusing. She believes that until we know otherwise I should continue to treat the epilepsy and she what happens once my thyroid issues are taken care of. She said there had been instances in which one dx would no longer need meds once the other problem is taken care of. She said there is no question that I have epilepsy. So, for now I am satisfied...I just think that I get myself worked up b/c it has taken so long to get to this point. Anyway, right now I just need to concentrate on my thyroid issues. I am very anxious about the endo appt tomorrow, but ready to deal with whatever this is - head on!
CHRIS, I am glad to hear that you are going to a private clinic. Maybe someone there can guide you where you need to go. It is quite amazing what paying up front can do for some things. Like you said, our bodies are amazing and very complex....I just can't believe how many people are in the same boat with some of the rest of us on this forum!
DUCHESS, I am so sorry that the biopsy was so painful. I had heard that it was. I was saying prayers for you this morning. I know you probably won't know anything for several days, but did the doc give you any insight? I will continue to pray that things will work out good.
You are so right about the conference call......that would be the best thing ever for some of us. I feel like each doc I see, I have to go back over everything when I just want them to know upfront. I know docs don't always have alot of time to sit and write down each little thing - and some of the forms you fill out to see some of the specialists, don't ask for some info at all. I think from here on out, I need to just chill out, relax and let the docs do their thing. I think that I am just over reacting to some of this stuff....it just is so worrisome, ya know?
Again, thanks to yall for coming to my rescue once again!
Take care and keep posting so that I'll know how yall are doing too!
Charley
CHRIS, I am glad to hear that you are going to a private clinic. Maybe someone there can guide you where you need to go. It is quite amazing what paying up front can do for some things. Like you said, our bodies are amazing and very complex....I just can't believe how many people are in the same boat with some of the rest of us on this forum!
DUCHESS, I am so sorry that the biopsy was so painful. I had heard that it was. I was saying prayers for you this morning. I know you probably won't know anything for several days, but did the doc give you any insight? I will continue to pray that things will work out good.
You are so right about the conference call......that would be the best thing ever for some of us. I feel like each doc I see, I have to go back over everything when I just want them to know upfront. I know docs don't always have alot of time to sit and write down each little thing - and some of the forms you fill out to see some of the specialists, don't ask for some info at all. I think from here on out, I need to just chill out, relax and let the docs do their thing. I think that I am just over reacting to some of this stuff....it just is so worrisome, ya know?
Again, thanks to yall for coming to my rescue once again!
Take care and keep posting so that I'll know how yall are doing too!
Charley
Hi Duchess Sorry to hear it was that awful! Perhaps thats why a lot of drs use sedation of some sort. I suppose you have another wait for your results now.I will keep my fingers crossed for you there a ok . Rest up a bit after your ordeal. XXXXChris
Charley I think Duchess is right . Hope all goes well Chris XX
Charley I think Duchess is right . Hope all goes well Chris XX
>My main complaint to my gp was about the numbness, tingling, paralysis and buzzing and electrical sensations.<
For those of us who do not know, where are you feeling these?
>My neuro ordered second EEG and MRI and yesterday told me I am having complex partial seizures - epilepsy.<
I guess the question is, do you trust your Neurologist?
Have you asked him to point out to you, with the MRI, what he is looking at?
Further, can you get your MRI on CD? Perhaps with photos and posting them to the Neuro forum, the Dr. there can better assist you. That is, if you haven't already.
>I think that b/c I have been dealing with all this neuro stuff for so long that at this point, I just want to sit back and believe what I am told<
Lord, I can understand this.
However, again, if you think you can trust your Neurologist and really spoke with him, asked questions and he answered with compassion and thoroughly, I'd be apt to rest on it.
Personally, I would have wanted him/her to show me what he was seeing and I guess, if I wasn't still sure...would really want the images to show the Neurology forum.
For those of us who do not know, where are you feeling these?
>My neuro ordered second EEG and MRI and yesterday told me I am having complex partial seizures - epilepsy.<
I guess the question is, do you trust your Neurologist?
Have you asked him to point out to you, with the MRI, what he is looking at?
Further, can you get your MRI on CD? Perhaps with photos and posting them to the Neuro forum, the Dr. there can better assist you. That is, if you haven't already.
>I think that b/c I have been dealing with all this neuro stuff for so long that at this point, I just want to sit back and believe what I am told<
Lord, I can understand this.
However, again, if you think you can trust your Neurologist and really spoke with him, asked questions and he answered with compassion and thoroughly, I'd be apt to rest on it.
Personally, I would have wanted him/her to show me what he was seeing and I guess, if I wasn't still sure...would really want the images to show the Neurology forum.
Hi Charley I understand your confusion but don't forget even if the dx of epilepsy is incorrect you get prescribed anticonvulsants for all sorts of different reasons. For example epilim is an anticonvulsant but it is prescribed for bipolar (mood stabilizing effect) Its also used for restless legs. I take clonazepam which is an anticonvulsant for myoclonus and electrical pain. Dx of epilepsy isn't finite anyway my sons been seizure free for 12 months off meds despite the fact he had a grandmal whilst having an eeg therefore confimed epilepsy. Our bodies are complex arnt they. By the way Ive booked an appointment with a private clinic for the gait problem I have to see what they say! I got one for Tuesday next week amazing when you can pay for it isnt it. Good Luck with the endo apptmt forgot to say that on last post. XXXX Chris
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