Hi, all.
I will try to keep this short. A little over a year ago, I broke out in hives everywhere! The following morning, the right side of my face was swollen like the stay puff marshmallow man. Went to the ER -pumped me full of prednisone - sent me home!
These symptoms kept reoccuring - no rhyme or reason. Only that they were progressing and coming on more frequently - I started feeling like I was swelling from the inside out. (Only on the right side, which coincidentally, is the hip I had replaced.) I had all kinds of tests run from allergies to arthritis, even some cancers-no luck! To back up a bit, I had to have a total hip replacement 4/06 - (I have severe Legg Calve Perthes with vasculitis.) I found out about a metal test (metal allergies) - turned out that I was EXTREMELY allergic to nickel, moderately to colbalt. Had to have another surgery (this one was 5/07.)
After the 2nd surgery, I was great for 6 weeks! I broke out in full body hives once, but had no swelling. Then nothing for 7 months - woohoo!
About a month ago, I have hives everyday, (not the welty kind, but just little red pin heads) - no biggie - except that I itch constantly, I am getting very lightheaded and dizzy, nausea, numbness in my legs (specifically on the right side.) I am very depressed (who wouldn't be after wondering what the heck is going on for a year +,) tired and crabby all the time, heart palpitations, panic attacks - scary ones - I felt like I was having a heart attack - and last but not least, the right side of my body is constantly swollen. Not much- it is very subtle - but I know it is there. The doctors don't know what is wrong. I went to a neurologist - she is sending me for a spinal tap, b/c she thinks I have MS -I don't know. I would love to avoid the spinal if possible.
Sorry for the length, but I need help - and don't know where to turn. Thanks in advance!