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I'm dying, please help
I started gaining weight 3 years ago rapidly. They don't know why. I have thyroid problems, but they are being controlled. They do thyroid panels and cortisol tests., nothing. About 8 months ago, I became diabetic, was told I had osteoporosis, was told I have a "stiff" heart (it doesn't go into the relax stage), and I never have had high blood pressure, so that's a mystery. Have been told I had positive cancer tracers in my blood linked to my liver (I have Hep c) but they biopsied it and are watching it and it's fine. Now, I have sleep apnea, edema started literally in one day, I woke up and was holding 12 lbs. of water.
Became critically ill (vomiting, diahrrea, extreme burning in my throat and esophagus), they put me in the hospital twice. They did stomach emptying test (normal), a PH test (normal), a motility test (normal), and a bunch of blood work checking my panceas, stomach, etc. Two scopes, (normal).
Now, it's coming back, and I know I'm dying because it's worse than ever, the pain in my chest is so intense that I have to drink Lidocaine just to be able to function. The nausea is back, now, I'm bloating and am holding water.
My blood pressure is running in the 160-170's/80-120's (don't have high blood pressure), and my stomach burns. Checked for GERD, checked for everything. I've been to a cardiologist, two endocrinologists, my family doctor, a gastroenterologist, and nobody knows anything.
Now, my lower jaw feels numb, it's the weirdest feeling, and it's terrifying. I can't breathe because of all the water I'm holding, and water pills aren't helping. Daily, there is a new symptom. I no longer can sleep at all, I'm writing this at 4:45am, and I am scared!
They have never figured out the weight gain, it has happened to me three times in my life, where I would gain massive amounts of weight (80-100lbs) in as little as 8 months, to a year, but then, the other two times, it just came off like it came on, not this time.
I'm afraid to get up each morning, there's gonna be something else wrong, and I am so afraid. I truly feel like my body is shutting down, and nobody can figure out why.
Anybody have any similar symptoms? The crushing in my chest and the burning isn't like bad reflux, it is excrutiating, I can't even explain how bad it is and I have a high tolerance for pain.
Please help, anyone?
Became critically ill (vomiting, diahrrea, extreme burning in my throat and esophagus), they put me in the hospital twice. They did stomach emptying test (normal), a PH test (normal), a motility test (normal), and a bunch of blood work checking my panceas, stomach, etc. Two scopes, (normal).
Now, it's coming back, and I know I'm dying because it's worse than ever, the pain in my chest is so intense that I have to drink Lidocaine just to be able to function. The nausea is back, now, I'm bloating and am holding water.
My blood pressure is running in the 160-170's/80-120's (don't have high blood pressure), and my stomach burns. Checked for GERD, checked for everything. I've been to a cardiologist, two endocrinologists, my family doctor, a gastroenterologist, and nobody knows anything.
Now, my lower jaw feels numb, it's the weirdest feeling, and it's terrifying. I can't breathe because of all the water I'm holding, and water pills aren't helping. Daily, there is a new symptom. I no longer can sleep at all, I'm writing this at 4:45am, and I am scared!
They have never figured out the weight gain, it has happened to me three times in my life, where I would gain massive amounts of weight (80-100lbs) in as little as 8 months, to a year, but then, the other two times, it just came off like it came on, not this time.
I'm afraid to get up each morning, there's gonna be something else wrong, and I am so afraid. I truly feel like my body is shutting down, and nobody can figure out why.
Anybody have any similar symptoms? The crushing in my chest and the burning isn't like bad reflux, it is excrutiating, I can't even explain how bad it is and I have a high tolerance for pain.
Please help, anyone?
Boy, you are a book on knowledge! Thanks! One thing that I need to check into is why my T3 would be so high when I have hypothyroidism and have weight gain instead of weight loss. The AST is always going to be high for me because I do have Hep C.
Decided to divide this up in case of power failure or something!
ALP-114 This is your alkaline phosphatase level- I have a range of 38-126 IU/L on that (labs vary)
PROT TOT-6.1 (says its low) The ref ranges I'm seeing on this one are 5.9-7.9 and from that book I referenced above (very old) 6-8 g/dL. So maybe the doctor won't be concerned about this one?
BILI T-0.7 0.3-1.7 is what I have on this one for ref. range.
CO2-27 22-32 mmol/L is what I have as a ref range for this
ALT-85 (says its high) 14-63 IU/L is what I have for ref. range on this. A Manual of Diagnostic Laboratory Tests by Fischbach lists alanine aminotransferase (ALT) and SGPT together. They say increased levels are found in "hepatocellular disease (moderate to high increase), active cirrhosis (mild increase), metatastic liver tumor (mild increase), obsturective jaundice/biliary obstructon (mild to moderate increase), infecton or toxic hepatitis, liver congestion, pancreatitis (mild increase), hepatic injury in myocardial infarction complicated by shock". They say "Although the AST level is always increased in acute myocardial infarction" (heart attack), "the ALT level does not always increase proportionately." They also say "The ALT/SGPT is ususally increased more than the AST in acute extrahepatic biliary obstruction." They say there are a lot of medications that may cause falsely increased levels.
ALB-3.3 (says its low) I have a range of 3.4-5.0 g/dL (again labs vary). The book I referenced above says decreases are caused by many conditions. They list "inadequate iron intake, severe liver diseases, malabsorption, diarrhea, eclampsia, nephrosis, exfoliative dermatitis, third-degree burns, starvation, excessive adminstration of IV glucose in water". It looks like your albumin may have been barely low.
ALP-114 This is your alkaline phosphatase level- I have a range of 38-126 IU/L on that (labs vary)
PROT TOT-6.1 (says its low) The ref ranges I'm seeing on this one are 5.9-7.9 and from that book I referenced above (very old) 6-8 g/dL. So maybe the doctor won't be concerned about this one?
BILI T-0.7 0.3-1.7 is what I have on this one for ref. range.
CO2-27 22-32 mmol/L is what I have as a ref range for this
ALT-85 (says its high) 14-63 IU/L is what I have for ref. range on this. A Manual of Diagnostic Laboratory Tests by Fischbach lists alanine aminotransferase (ALT) and SGPT together. They say increased levels are found in "hepatocellular disease (moderate to high increase), active cirrhosis (mild increase), metatastic liver tumor (mild increase), obsturective jaundice/biliary obstructon (mild to moderate increase), infecton or toxic hepatitis, liver congestion, pancreatitis (mild increase), hepatic injury in myocardial infarction complicated by shock". They say "Although the AST level is always increased in acute myocardial infarction" (heart attack), "the ALT level does not always increase proportionately." They also say "The ALT/SGPT is ususally increased more than the AST in acute extrahepatic biliary obstruction." They say there are a lot of medications that may cause falsely increased levels.
ALB-3.3 (says its low) I have a range of 3.4-5.0 g/dL (again labs vary). The book I referenced above says decreases are caused by many conditions. They list "inadequate iron intake, severe liver diseases, malabsorption, diarrhea, eclampsia, nephrosis, exfoliative dermatitis, third-degree burns, starvation, excessive adminstration of IV glucose in water". It looks like your albumin may have been barely low.
TOTAL T3-200 (said its high) Labs vary, but when I got total, the ref. range was 58-159 ng/dL, which would indeed make it high. That would likely mean you are suffering from HYPERthyroidism.
Thyroxine Free-1.20 Again, labs vary in their reference ranges- the two ranges I have here are 0.58-1.64 & 0.58-1.26 ng/dL. That would put your free T 4 in normal range. See PM about T3 and T4.
TSH ULTRASENSITIVE-0.57 ref ranges I have on this would put that number in the normal range
NA-139 the range I have is 135-148
K-4.1 What I have for ref range is 3.5-5.5
CL-106 96-109 is the ref range I have
BUN-15 5-26 is the range I have for BUN.
CREAT-0.81 (this has a star by it, don't know what that means) 0.5-1.5 is the ref. range I have
GLU R-172 On a website it says normal is low to mid 100s for a random blood sugar and a diagnosis of diabetes would be made if the number is 200 or more and you have symptoms. You might ask for an A1C test to see a longer term picture of what your blood sugar has been doing.
CALCIUM-9.0 I have a ref. range of 8.9-10.3 (labs vary)
AST-87 (says its high) 15-41 is the ref range I have, so that looks very high to me. I have an old lab book called A Manual of Laboratory Diagnostic Tests. It's a second edition by Frances Fischbach. It says, " AST is an enzyme present in tissues of high metabolic activity." "The enzyme is released into the circulaton following the injury or death of cells. Any disease that causes change in these highly metabolic tissues will result in a rise in AST. The amount of AST in the blood is dierectly related to the number of damaged cells and the amount of time that passes between injury to the tissue and the test. Following severe cell damage, the blood AST level will rise in 12 hours and remain elevated for about 5 days." It lists clincial implications of AST/SGOT levels as: 1. "Myocardial infarction" (heart attack) 2. "Liver disease" and also
"acute pancreatitis, trauma and irradiation of skeletal muscle, acute hemolytic anemia, acute renal disease, severe burns, cardiac catheterization and angiography, recent brain trauma with brain necrosis" (death of brain tissue), "crushing injuries", and "progressive muscular dystrophy". There are a host of drugs that can be interfering factors with this test & cause elevated levels.
Thyroxine Free-1.20 Again, labs vary in their reference ranges- the two ranges I have here are 0.58-1.64 & 0.58-1.26 ng/dL. That would put your free T 4 in normal range. See PM about T3 and T4.
TSH ULTRASENSITIVE-0.57 ref ranges I have on this would put that number in the normal range
NA-139 the range I have is 135-148
K-4.1 What I have for ref range is 3.5-5.5
CL-106 96-109 is the ref range I have
BUN-15 5-26 is the range I have for BUN.
CREAT-0.81 (this has a star by it, don't know what that means) 0.5-1.5 is the ref. range I have
GLU R-172 On a website it says normal is low to mid 100s for a random blood sugar and a diagnosis of diabetes would be made if the number is 200 or more and you have symptoms. You might ask for an A1C test to see a longer term picture of what your blood sugar has been doing.
CALCIUM-9.0 I have a ref. range of 8.9-10.3 (labs vary)
AST-87 (says its high) 15-41 is the ref range I have, so that looks very high to me. I have an old lab book called A Manual of Laboratory Diagnostic Tests. It's a second edition by Frances Fischbach. It says, " AST is an enzyme present in tissues of high metabolic activity." "The enzyme is released into the circulaton following the injury or death of cells. Any disease that causes change in these highly metabolic tissues will result in a rise in AST. The amount of AST in the blood is dierectly related to the number of damaged cells and the amount of time that passes between injury to the tissue and the test. Following severe cell damage, the blood AST level will rise in 12 hours and remain elevated for about 5 days." It lists clincial implications of AST/SGOT levels as: 1. "Myocardial infarction" (heart attack) 2. "Liver disease" and also
"acute pancreatitis, trauma and irradiation of skeletal muscle, acute hemolytic anemia, acute renal disease, severe burns, cardiac catheterization and angiography, recent brain trauma with brain necrosis" (death of brain tissue), "crushing injuries", and "progressive muscular dystrophy". There are a host of drugs that can be interfering factors with this test & cause elevated levels.
Hmmmmm, that's what I'm seeing, a myriad of doctors. I AM seeing a cardiologist, an endo, an internist, and on and on and on.....and yeah, it gets old. I have so many doctor appointments that i block out entire days and just eat lunch at the hospital and make a day of it! It is like a picnic, they need to just admit me and get it over with, except that the endo is not doing anything and now i have to look elsewhere for a new endo.
I can't believe you are a paramedic and still can't get proper treatment! That does not sound encouraging, but I'm gonna keep fighting and looking.
I can't believe you are a paramedic and still can't get proper treatment! That does not sound encouraging, but I'm gonna keep fighting and looking.
Something else I've discovered...Specialists only like to test and treat for things they specialize in. It seems really stupid, but they are uncomfortable with the liability of treating outside of their "comfort zone" and would rather refer you to someone else. At one point, I was seeing 10 different Drs (GP, endocrinologist, cardiologist, hepatologist, gynocologist, thoracic surgeon, GI surgeon, naturopath, Ummm...) ~MM
I know how you feel....I had to make a stink in my Dr office to get my PTH test done. I'm fortunate that I am a paramedic and have a good medical knowledge base -but I still had to be a strong advocate for myself to the point that I probably began to look like a bit of a hypochondriac because I got copies of every test result and packed it around with me in my own chart. Does your Dr give you a reason why she doesn't test for the specific thyroid labs or have you checked again for a pituitary tumor (via CAT scan or MRI)? Is it insurance related? -I found out that most Drs have to justify their test to your insurance company and many ICs actually penalize the Drs if too many are done. (Its enough to Pi$$ you off, eh?) I'd pin her down and get an answer. -Ask her to explain WHAT specific criteria is needed for the tests (have her print it out) and if (and what) the insurance company's influence is on the decision for the tests. You may find it is a matter of coverage and money, and the Dr office views the tests as too expensive to do. Unfortunately, this is how our health care system works now...Grrr. ~Melinda
I am seen at the hepatology lab at the University Hospital and they are very aggressive with treatment. I AM seeing an endocrinologist! The problem is, so many of them don't want to test for everything! I am on a site about thyroid diseases, and this doctor hopping seems to be an ongoing thing, some people have been trying for years to get the right doctor to believe them!
My doctor (and she's about the 4th one!) said she doesn't test for the FREE T3 and T4, and she doesn't to scans of pituitary because my "labs" don't indicate it! I'm truly at my wits end!
My doctor (and she's about the 4th one!) said she doesn't test for the FREE T3 and T4, and she doesn't to scans of pituitary because my "labs" don't indicate it! I'm truly at my wits end!
My advice...Change your Dr. ASAP. Do you have access to an endocrinologist? A hepatologist? Most GPs aren't well-versed in specialized endocrine or liver diseases and, my experience has been the old "blow off" when nothing jumps out and whackes the non-specialized Drs in the forehead....~MM
P.S. By the way, not everyone with hypo/hyper thyroid issues has Hashimotos. -I didn't. Mine was from thyroiditis brought on by the interferon in the Hep C treatment. (I'm happy to say my thyroid finally settled back to normal...)
P.S. By the way, not everyone with hypo/hyper thyroid issues has Hashimotos. -I didn't. Mine was from thyroiditis brought on by the interferon in the Hep C treatment. (I'm happy to say my thyroid finally settled back to normal...)
I, also, have Hep C, but it seems this doctor doesn't believe in tests! I have an appointment with another doctor on Tuesday. This one said my labs didn't indicate the reason for test for tumors, and then she said that Hashimoto's was just a "scholarly" diagnosis, as everyone with hyothyroidism has some form of Hashimoto's, all testing would do is show which kind!
I can't tell her anything, so I'm just making an appointment with someone else. But, your post makes sense, though. I copy these posts about different diagnosis and take them with me to the doctor, hope you don't mind.
I can't tell her anything, so I'm just making an appointment with someone else. But, your post makes sense, though. I copy these posts about different diagnosis and take them with me to the doctor, hope you don't mind.
Hiya! I was just looking at your labs and wondering...I saw you calcium level -upper end of normal, and read you symptoms...Have you ever had a PTH test done? (Parathyroid hormone level). Please check out hyperparathyroidism (different from thyroid) and compare your symptoms...I am also a "hepper" (finished treatment 18 months ago and am still clear of it!) and I have always wondered if the hyperparathyroidism (caused by a parathyroid tumor) I had was connected to my Hep C...The only job the parathyroid glands have is to regulate the body's blood calcium...I know it would be a dumb question to ask if you urinate frequently since you are on the diuretics, but since calcium levels affect every nerve and function (including thyroid and other endocrine regulators) and high levels can cause esophageal spasms, face numbness, headaches, muscle and joint pain, digestive havoc, etc, etc...Let me know what you find...~MM
I can't say anything for sure, but I feel like it may be some reaction to thyroid medication? I don't know much about treatment for hypothyroid, but logically I'd think that to treat it you wouldn't want abnormally high levels of T3. I could be wrong, but that's my thought process.
Otherwise, I found this article that may point you in a good direction. It's a scholarly article about the connection between the thyroid and the liver, which seems to be larger portions of the problem.
http://qjmed.oxfordjournals.org/cgi/content/full/95/9/559#SEC5
Hope it helps.
Otherwise, I found this article that may point you in a good direction. It's a scholarly article about the connection between the thyroid and the liver, which seems to be larger portions of the problem.
http://qjmed.oxfordjournals.org/cgi/content/full/95/9/559#SEC5
Hope it helps.
Wnet to the University and was totally disappointed again, she has no idea why I am in so much pain and why my jaw and chest are completely numb, although I do have an appointment with another doc today. She also said when I asked her about doing an MRI for pituitary tumors, about Hashimoto's, about other adrenal problems, that "my labs did not indicate you have any of these" so she did the standard tests she always does. She does, however, want to test me repeatedly for intermittant Cushings'. Some of the test results have come back, (you can get them on a special site they have) and here they are:
TOTAL T3-200 (said its high)
Thyroxine Free-1.20
TSH ULTRASENSITIVE-0.57
NA-139
K-4.1
CL-106
BUN-15
CREAT-0.81 (this has a star by it, don't know what that means)
GLU R-172
CALCIUM-9.0
AST-87 (says its high)
ALP-114
PROT TOT-6.1 (says its low)
BILI T-0.7
CO2-27
ALT-85 (says its high)
ALB-3.3 (says its low)
These are all I have so far, will look again later. Can you tell me anything with these results?
Thanks.
TOTAL T3-200 (said its high)
Thyroxine Free-1.20
TSH ULTRASENSITIVE-0.57
NA-139
K-4.1
CL-106
BUN-15
CREAT-0.81 (this has a star by it, don't know what that means)
GLU R-172
CALCIUM-9.0
AST-87 (says its high)
ALP-114
PROT TOT-6.1 (says its low)
BILI T-0.7
CO2-27
ALT-85 (says its high)
ALB-3.3 (says its low)
These are all I have so far, will look again later. Can you tell me anything with these results?
Thanks.
When I went to see the cardiologist, he did a bunch of tests, including a EKG, and I have had an echo cardiogram, and I told him my jaw was numb, and he didn't seem concerned at all. I went to see the Endo doc and told him my jaw was numb, and he said that it was probably a nerve damage problem and didn't seem concerned either! I didn't do anything to have nerve damage, and nobody seems to know what to do with me.
Literally, I don't know what to do, I'm just waiting until Tuesday to go to that University Hospital because it just seems like everyone is passing the buck, "well, you need to see this kind of doctor, and blah, blah, blah!"
I was in the emergency room 6 times in a week and a half when this all started, and they really truly just doped me up with pain meds and sent me home deathly ill. When my gastro doctor took one look at me, she said, "what in the hell have they done to you?" and that's when she immediately admitted me, but then, they couldn't find anything and told me I had PTSD symptoms!! So, even though she was concerned, they don't know what to do either!
I called the patient advocate at this hospital in WHEAT RIDGE, CO, and demanded to know why I wasn't admitted and told her that the gastro doctor was outraged, and she said they would "have a meeting and let me know the findings" when it was over. In the meantime, all these other symptoms started, like the jaw problem, and now, STILL no one knows what to do. I feel like a rag doll and I feel like before they finally do anything, I'll be dead!
I know what the emergency room SHOULD do, but they didn't. I truly thought after being in the emergency room more that twice, they would have done something, but they didn't! And, I seriously am in tremendous pain. What that post said about her cousin dying while waiting for some doctor to find something isn't far from the truth because that is what is happening here. I will keep you posted though, because I'm NOT LEAVING the hospital on Tuesday until they at least tell me WHAT THEY THINK and run tests.
Literally, I don't know what to do, I'm just waiting until Tuesday to go to that University Hospital because it just seems like everyone is passing the buck, "well, you need to see this kind of doctor, and blah, blah, blah!"
I was in the emergency room 6 times in a week and a half when this all started, and they really truly just doped me up with pain meds and sent me home deathly ill. When my gastro doctor took one look at me, she said, "what in the hell have they done to you?" and that's when she immediately admitted me, but then, they couldn't find anything and told me I had PTSD symptoms!! So, even though she was concerned, they don't know what to do either!
I called the patient advocate at this hospital in WHEAT RIDGE, CO, and demanded to know why I wasn't admitted and told her that the gastro doctor was outraged, and she said they would "have a meeting and let me know the findings" when it was over. In the meantime, all these other symptoms started, like the jaw problem, and now, STILL no one knows what to do. I feel like a rag doll and I feel like before they finally do anything, I'll be dead!
I know what the emergency room SHOULD do, but they didn't. I truly thought after being in the emergency room more that twice, they would have done something, but they didn't! And, I seriously am in tremendous pain. What that post said about her cousin dying while waiting for some doctor to find something isn't far from the truth because that is what is happening here. I will keep you posted though, because I'm NOT LEAVING the hospital on Tuesday until they at least tell me WHAT THEY THINK and run tests.
I know ERs can be a big disappointment- but if you go in and say your jaw is numb, one would hope they would check for the immediate huge things- like MI (heart attack) or stroke or TIA (mini-stroke)!
I have gone to a cardiologist and he put me on diuritics and meds, and I haven't been taking the lidocaine on a regular basis for about a month because this numbness started. If I told you how many times I've been to the emergency room and they just shoot me up with pain meds and send me home, I couldn't fill this entire page! As far as Limping_Twerp goes, I know exactly how your cousin felt and what she went through, they couldn't diagnose me at the hospital (when I was admitted twice in critical condition), so they are telling me its my PTSD!!!
Friggin, I'm immediately admitted in critical condition, they can't find anything, so they tell me it's all IN MY HEAD! Now, I am just doctor hopping, crying and dragging around a manila folder with all my research papers that I get from everyone here to look up, to no avail.
I am at the point that I don't know what to do anymore. I'm trying to find out now (on the net) if the lidocaine could have caused permanent paralysis. I just don't know anymore. But what rumpled said makes a lot of sense about the intermittant cushings, although getting a doctor to find it is another story. From what I have researched, there is only 65 cases that have been diagnosed, and for the past three years, I haven't even gotten them to believe that my WEIGHT wasn't my fault!
I don't know what's wrong with doctors today, they just don't listen like they used to, no time!
Friggin, I'm immediately admitted in critical condition, they can't find anything, so they tell me it's all IN MY HEAD! Now, I am just doctor hopping, crying and dragging around a manila folder with all my research papers that I get from everyone here to look up, to no avail.
I am at the point that I don't know what to do anymore. I'm trying to find out now (on the net) if the lidocaine could have caused permanent paralysis. I just don't know anymore. But what rumpled said makes a lot of sense about the intermittant cushings, although getting a doctor to find it is another story. From what I have researched, there is only 65 cases that have been diagnosed, and for the past three years, I haven't even gotten them to believe that my WEIGHT wasn't my fault!
I don't know what's wrong with doctors today, they just don't listen like they used to, no time!
I am feeling for you big time! I'm glad your going to the university hospital! I thought I was the only one with a lot of hell and medical problems,pain,etc. I wish I knew what is the deal with your jaw and esophagus...Im going to try and research it. There are so many freaking symtoms with PCOS and insulin resistance too. Remember your not alone and if you need anything just Pm me! Im 30 and have Polycystic Ovarian Syndrome with insulin resistance, Crohns disease, Chronic Interstital Cystis, Vulvadynia, IBS, Migraines, etc. Its ***** having a lot of medical problems and no of them are my fault. There are no many doctors that want to take your time to help you...its sad!
This sounds a lot like what my cousin had. She died last month when she suffacated because she said she couldn't breath and the doctors wouldn't do anything because they kept saying she was overreacting and she was fine! I wish you luck! My cousin had this for 2 years and never got diagnosed or even treated like there was anything wrong with her. No offence to any doctors, cuz I'm working on becoming one, but that just isn't right! What do you guys think we're all trying to pull?!
What are they doing to try to treat your congestive heart failure you told me they said you have? You say you are taking lidocaine for the pain in your esophagus. It is a numbing agent, so that may explain why your esopagus would be numb. As to your jaw, myocardial infarction (heart attack) or stroke are two things that can cause numbness in one's jaw, so I'd recommend someone take you to the ER. See PM for more info on causes for jaw numbness after they've checked you out at the hospital.
Thank you so much, I am copying this because I'm going to the University Hospital this coming week. one question that I have for anybody is, nobody seems to know why my esophagus and entire jaw is numb. Is this a symptom of this disease? I can't eat anything without having to take Lidocaine for the pain in my esophagus and into my stomach, and just recently, my entire jaw went numb.
Polycystic Ovarian Sydrome with Insulin Resistance or just Insulin Resistance....I thought I had cushings and was diagnosed with that. I had the rapid weight gain, fatty liver,etc. I went to many docs for years. You need a top/excellent endo doc! Go to a state hospital.
I found REEMS of paperwork on different sites about this disease, and man, does it sound like what I have! OMG, I thought I was dying the symptoms got so bad. I was in the hospital for 3 weeks in critical condition and they actually had the nerve to tell me "it was all in my head!" Then, I got worse, the high blood pressure, the rapid heart rate, the extreme edema, and the PAIN in my esophagus was 100 times worse than GERD, I was drinking lidocaine! But, it was "all in my head," then I couldn't breathe,and so on and so on....
I'm taking all this information to the doctor on Tuesday, 27th, and she's GONNA LOOK AT IT. She told me about 3 years ago she thought I might have intermittant Cushings, but she wasn't sure because she found nothing, and said, "there's nothing we can do about that anyway!"
Thank you so much, this is a ray of hope for me!!! Will let you know what happens!
I'm taking all this information to the doctor on Tuesday, 27th, and she's GONNA LOOK AT IT. She told me about 3 years ago she thought I might have intermittant Cushings, but she wasn't sure because she found nothing, and said, "there's nothing we can do about that anyway!"
Thank you so much, this is a ray of hope for me!!! Will let you know what happens!
You know, they did a complete cortisol test and tested for Cushings, and they did a cortisol flush (can't remember what it was called, they used an IV and pumped the medication in me), and other tests and she said that my cortisol levels were fine and that she THOUGHT I might have "intermittant" Cushings but there was nothing that could be done about it.
Can you tell me more, because I'm going back next week for more testing, and they tell me that if I don't have Cushings all the time, that there is nothing they can do. I would really appreciate it. I do take Synthroid and all my thyroid tests keep coming up normal, is there a site where I can copy information to take when I go?
Can you tell me more, because I'm going back next week for more testing, and they tell me that if I don't have Cushings all the time, that there is nothing they can do. I would really appreciate it. I do take Synthroid and all my thyroid tests keep coming up normal, is there a site where I can copy information to take when I go?
They should test you for Cushing's syndrome perhaps? That would account for the high blood pressure, the rapid weight gain, GERD bloating, diabetes, thyroids problems, osteoporosis, heart issues, liver, etc. In fact, almost all your symptoms are covered by Cushing's.
The vomiting sometimes happens when cortisol rapidly lowers, so you may be cyclical or episodic.
I think they should run a battery of tests for Cushing's syndrome.
The vomiting sometimes happens when cortisol rapidly lowers, so you may be cyclical or episodic.
I think they should run a battery of tests for Cushing's syndrome.
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