Well a lot has happened in 4 days!
I had an ultrasound on Tuesday of the area I had the pain which no-one had ever thought to do strangely enough, and from that they sent me for an x-ray, then straight back to my doc that arvo to get the results!
I have extensive tearing to my hamstring attachments where they connect with my ischiopubic ramus, with fibre disruption, oedema, and osseous noddules.
Put more simply, apparently I have torn my hamstring so much that it's torn away some bone from part of my pelvis and calcified, forming new bits of jagged bone, along with lots of little muscle fibre tears as well.
Got squeezed in to see my sports medicine specialist yesterday and he sent me off this morning to have ultrasound guided autologist blood injections into the area to hopefully stimulate the area to start healing itself.
They intraveniously took my own blood from my arm vein, 30ml in total, and injected it into the bone and tendon of the damaged areas (after local anaesthetic injections). The idea is that putting all that blood in the area makes the body think it's had a trauma which starts the bodies natural healing process. Fingers crossed anyway!
If it doesn't help after about 6-8 weeks I can have a second round, and if still no improvement he'll send me off to a surgeon, so fingers crossed.
It's amazing how no one I saw picked this up. I have suffered immense pain for nearly 9 months, had to give up work, then all in 4 days on the suggestion of this ultrasound made by an Osteopath of all people, I have found the problem and started to treat it!
Really shows you that it pays to never give up and keep looking for answers and seeing new doctors, because eventually someone will have the answer.
I'll keep you posted on my progress, thanks to everyone for all the help when I was so desperate.
That sounds really good, I will google it, thanks heaps
they actually treat u with non invasive procedure mainly anti inflammatory medications as a first step of treatment depends exactly on ur pain source and cause.
they do some MRI, X-RAY and EMG tests for diagnosis.
they treatments starts from giving u kind of shots and/or radio frequency in ur back to minimally invasive procedures as disc decompression or intra discal thermo co agulation, etc..
google it
and good luck
I haven't checked with a pain management doctor, not actually sure where any of those are in my area, I'll have to Google it, but I have had an MRI of my lower back because at one stage my sports medecine specialist thought I may have had a bulging disc but that came back clear. What exactly do pain management docotrs do? Do they just teach you how to manage pain or look for what's causing the pain?
did u check with a pain management dr. because i believe ur hip & butt pain is originating from ur lower back disc..
Hi,
Thanks so much for all of that advice. Is it likely there is vein involvement if a doppler ruled it out the first time when the swelling first happened after the sclerotherapy? I have a lot of spider veins and some varicous veins on my thighs but the vein surgeon said they were all superficial and not deep, but they ache, hence why I had the sclerotherapy in the first place back in Feb.
A naturopath and a massuer both thought the lymphatic system may be involved because I get lymph pockets on my shins that are quite painful, and because of the swelling in my legs, but it is in both legs not one, so they ruled out Lyphoedema which only affects one limb, but suspected Lipodema which involves subcuteneous fat tissue as this can cause swelling in both legs and if left for long enough can cause Lipolymphedema where the lymphatic system becomes affected as well but then they ruled that out too because they said I'm not fat and you have to be fat to have it, but I have read to the contrary that there have indeed been cases of anorexic people even suffering fom Lipodema. Both Lipo and Lymho can appaently be caused by a broken bone, trauma to the limb and gyno surgery and I have had all; a fractured pelvis, major burn to my thigh, and several surgeries for endometriosis. Do you think it is worth persuing the lymph involvment and could the pain in my leg be related to the swelling in the legs or do you think it is separate?
I have had an MRI of my hip which didn't show anything, where would you suggest I get MRI's again - my right thigh?
I also had a pelvic ultrasound which only showed uterine fibroids, nothing wrong with my pelvis or any trapped nerves, but I am having an ultra sound of my right hamstring next.
I haven't had any xrays as yet, what part would you suggest I get xrayed?
As for blood tests, they tested everything you can think of, and the only thing that showed up what increased Feretin, and low sodium, but they have now returned to normal. Nothing showedup any inflammation, which would have been present if there was an infection or any type of arthritis.
My best theory I have come up with on my own is that I tore my hamstring, and left untreated it somehow has affected my ischium causing ischial tuberosity syndrome or bursitis, and possibly an entrapped nerve - do you think this is possible and how would I go about proving it?
The obturator nerve has been suggested.
What do you think about the idea of the piriformis, psoas or ischium being involved?
I will show my doctor all your suggestions and see what further investigations he suggests, and I will also get a referral to an orthopedic specialist.
Thank you so much for all of your help so far. I am really at my wits end and I am desperate for this pain to go away.
Hi,YES,ALL SYMPTOMS ARE RELATED.
Hi guys, thank you all for your advice. I will check out that website. I should have mentioned the things that have been ruled out along the way: I did see a heart specialist as one doctor thought I may have contracted infectious endocarditis because I have a mitral valve prolapse alreay but that checked out ok, I have also been tested for diabetes and kidney function and they were both ok, I've had a pelvic ultrasound which only showed some small fibroids in my uterus, not big enough to be causing any symptoms, a hip mri which didn't show anything, saw a vein specialist and no deep vein problems, an endocrinolgist who tested my thyroid function and other hormone related things and he found two things - Celiac Disease which is gluten intolerence and IgA deficiency but he didn't think either of those could be causing my symptoms but he is sending me to an immunologist to further investigate immune diseases as aparently people that have both Celiac disease and IgA deficiency sometimes have another auto-immune disease such as Lupus. Its so confusing because I have so many symptoms and its making it hard to make a diagnosis because no-one knows if they are related or not. I think the leg/butt pain is seperate to the swelling and bladder issue but others have been looking for one thing causing it all. The pain in my leg/butt is what bothers me the most of all the symptoms as it is a constant and debilitating pain. I am going to have an ultrasound of my hamstring tomorrow so we'll see if that shows anything. I am just about ready to give up and I have become very depressed by it all.
My mother has a similar pain, hers is her sciatic nerve, its a disease called sciatia im pretty sure. you could try googling that.
check with a heart doctor, and a pain management doctor.
the swelling could be due to heart or kidneys malfunctioning, and ur pain could be due to ur disc in ur lower back area.
I suffered the same symptoms ... looked up information on "Pain in the Butt Syndrome" no joke, that IS what its called ...
http://www.simplefit.net/static_pages/230/
Hope this helps ...
Welcome to the MedHelp forum!
A repeat dopplar study of the involved leg should be done to rule out inflammation of veins, lymphatics and clots in veins. A MRI of the inflamed area should be done. Sharp thigh and hip pain with limited and painful internal rotation of the thigh along with tingling and pain can be due to several causes such as: osteoarthritis, tendonitis, muscle pull and strain, femoral neck stress fractures, sports hernia or hidden/occult hernia of oblique aponeurosis, or Obturator or ilioinguinal nerve entrapment.
You would need all or any of the following for diagnosis: Clinical examination by an orthopedic specialist, X-rays, blood tests, MRI or ultrasonnography.
Hope this helps. Take care!