My 7 year old son had been experiencing poor weight gain, fatigue, recurrent fevers accompanied with sore throat, enlarged lymph nodes in the neck, and abdominal pain for over a year. The fever episodes occur anywhere from 2-6 weeks apart. They typically last 4-7 days. Occasionally, the fevers will onset, improve after 3 days, then reoccur 3-5 days later. Within the past 4 months he started to develop a dry cough that worsens with exercise. In November 3019, they discovered multiple nodular opacities on both lungs. At the time of the xray, he was asymptomatic, except for the dry cough. He was given azythromycin for 5 days and retested 3 weeks later, and all but one nodular was gone. At the beginning of February 2020, he had another severe fever episode, lasting 2 weeks, ending in a 5 day hospital visit. Another chest xray was done, showing multiple nodular opacities again in both lungs. A high dose of iv antibiotics were started and a CT scan of the neck and chest was done two days after starting antibiotics, revealing a decline in the amount of nodular opacites. He has undergone genetic testing, nothing came back linked to an inflammatory or autoimmune disease. He has had multiple labs done. While they seem to go up and down, his sed rate, crp, and neutrophil count have pretty consistantly came back abnormal. Most recently, his red blood cell count came back high and blood smear revealed pale, enlarged cells. In addition, he has had multiple upper and 1 lower scope, 2 Ct scans of the throat and chest, 3 chest x-rays, abdominal x-ray, abdominal ultrasound, and echocardigram. He was diagnosed with eosinophil esophagitis when he was 4 and has been in remission for the past year. On the abdominal ultrasound, they seen a growth at the top of his bladder and at the base of the urachus. He was born with a cyst on his belly button but it was originally diagnosed as a sebaceous cyst. Now, we are discovering that was a misdiagnosis. He has been treated with steroids during the fever episodes, specifically to see if it might possibly be periodic fever syndrome. The results weren't consistent. Sometimes it would seem like he responded, and other times he did not. He is currently scheduled for a tonsillectomy and surgical procedure to remove the cyst and growth on his bladder. He is currently seeing a rheumatologist, infectious disease specialist, Gastroenterology, and urologist, and we still do not have a diagnosis and have no real answers as to what is causing all the issues. This is taking such a toll on our family. My son ability to attend school, participate in extracurricular activities, and social interaction is being effected. I am at a loss for where to go and what to do to get answers. If someone could please help, any information would be appreciated. Just to note, my son is 7 years old and only weighs 37 pounds and is 42 inches tall.