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Do I have Lyme and how can I self treat?
I think I may have Lyme disease, 39 yo female Iiving in Ausralia.
I have been searching for a diagnosis for 3 and a half years. Started with fatigue so bad that I would have to lie down after I showered in the morning. It lasted around 3-4 months. Next pain in my back/ upper right side and at times not sure which was which. Always before i woke in the morning and improved upon getting out of bed. After docor told vitualy told me i was crazy, I changed my GP. I have a better one, but still not really getting anywhere. One night I woke wih pain so severe in my lower stomach I just wanted to pass out. I have lower and middle back pain with my coxic bone causing problems sitting. I have osteo arthritis in my neck c5 and c7.
I went to a reumotoligist and by the time I got the appointment I was pregnan. He assured me after the birth he would run xrays. I returned after waiting another 7 months for the appointment and he told me it was muscle pain and wouldnt order any tests!
I have extreme pain in my feet, ankles in the night or when I am resting. I cant walk in he night.
I have had numb toes for around 8 years, no feeling at all on the outside toes. I wake in the night with numb lest arm when I am sleeping on the right.
I have IBS mos of the time and am itchy on my fore arms, and legs daily. I have swollen lymph glands often in my neck. I am low in Vitamin D, B12 and iorn so recently I cut down on gluten products and am now trying to eliminate sugar.
I struggle to remember things like the name of he thing I am holding and get the feeling that there are loose wires in my brain.
I sllep well at times when I cant stay up past 9.30pm but the majority of the time I cant get to bed until 12-1 am and then I wake several times and experience hot sweats.When I get up in the night, my body feels like that of an 80 yo, and I feel like I have a hangover every morning.
My menstural cycle has recently changed, its still around 28 days but the loss is heavy and I get assiated pain and headaches.
3 years ago I put on 15 kg and have not been able to shed it, even with a health diet of vegetables, nuts, fruit, rice pasta and simple foods. I actually find I am still putting on the weight!
I worry I may have Lyme and have passed it on to my daughter and perhaps other children.
My 15 month old baby girl screams almost 70% of the day.
I want to get tested for Lyme, but I have only one option Dr Nicola McFadzean who is an Australian Natropath living in the U.S. I am not in a good financial position.
Can you suggest treatments, antibiotics ect if I could find a GP to agree to treat me?
Please offer any advise you have.
Thank you, Al
I have been searching for a diagnosis for 3 and a half years. Started with fatigue so bad that I would have to lie down after I showered in the morning. It lasted around 3-4 months. Next pain in my back/ upper right side and at times not sure which was which. Always before i woke in the morning and improved upon getting out of bed. After docor told vitualy told me i was crazy, I changed my GP. I have a better one, but still not really getting anywhere. One night I woke wih pain so severe in my lower stomach I just wanted to pass out. I have lower and middle back pain with my coxic bone causing problems sitting. I have osteo arthritis in my neck c5 and c7.
I went to a reumotoligist and by the time I got the appointment I was pregnan. He assured me after the birth he would run xrays. I returned after waiting another 7 months for the appointment and he told me it was muscle pain and wouldnt order any tests!
I have extreme pain in my feet, ankles in the night or when I am resting. I cant walk in he night.
I have had numb toes for around 8 years, no feeling at all on the outside toes. I wake in the night with numb lest arm when I am sleeping on the right.
I have IBS mos of the time and am itchy on my fore arms, and legs daily. I have swollen lymph glands often in my neck. I am low in Vitamin D, B12 and iorn so recently I cut down on gluten products and am now trying to eliminate sugar.
I struggle to remember things like the name of he thing I am holding and get the feeling that there are loose wires in my brain.
I sllep well at times when I cant stay up past 9.30pm but the majority of the time I cant get to bed until 12-1 am and then I wake several times and experience hot sweats.When I get up in the night, my body feels like that of an 80 yo, and I feel like I have a hangover every morning.
My menstural cycle has recently changed, its still around 28 days but the loss is heavy and I get assiated pain and headaches.
3 years ago I put on 15 kg and have not been able to shed it, even with a health diet of vegetables, nuts, fruit, rice pasta and simple foods. I actually find I am still putting on the weight!
I worry I may have Lyme and have passed it on to my daughter and perhaps other children.
My 15 month old baby girl screams almost 70% of the day.
I want to get tested for Lyme, but I have only one option Dr Nicola McFadzean who is an Australian Natropath living in the U.S. I am not in a good financial position.
Can you suggest treatments, antibiotics ect if I could find a GP to agree to treat me?
Please offer any advise you have.
Thank you, Al
when do you think you caught Lyme and how? most of all why? what were the symptoms? I'm not sure I understand all your symptoms have been going on since 2009 except for numb toes which you had for over 8 years?
Also I still don't know which blood tests you had and the results?
Also I still don't know which blood tests you had and the results?
Hi, thanks so much for the info on Lyme forum in Australia.
I hope we can created awareness that it is real and growing in numbers of the suspected cases.
Can I ask how you are going with treatment?...at what stage were you diagnosed?
I hope we can created awareness that it is real and growing in numbers of the suspected cases.
Can I ask how you are going with treatment?...at what stage were you diagnosed?
Thanks for your info on the forum RedStar..
Gio77Italy..
There are currently 15,000 confirmed cases of Lyme in Australia and an estimated 200,000 expected to have the disease.
I have not seen a nuerologist, only a ruemoologist and he sent me away without attemption tests. I have no faith in Doctors to seek out the core of the problem hey are interested in only treating each condition as i comes up. I will take a new approach this time, I will write down all these concerns and present to the Doctor as a whole.
If you think that there is no Lyme iin Australia, thats what the government refuse to recognise. I know someone with MS who test positive for Lyme who has never left the country. I live in Melbourne's South East but spent a lot of time in west Vic.
I have a contact in Lyme association who tells me that both her and her husband and two of thier children all have Lyme!....they small child is serverly disabled and they are all broke and frustrated with the lack of knowledge in Australia.
I hope we can spread the word 'down under'..if the government would make a move then it would save them in the long run....
to 'fund'someone's care in their home mis- diagnosed for many years not to mention the public hospitals they frequent, which is all paid for by medicare, imagine!
Gio77Italy..
There are currently 15,000 confirmed cases of Lyme in Australia and an estimated 200,000 expected to have the disease.
I have not seen a nuerologist, only a ruemoologist and he sent me away without attemption tests. I have no faith in Doctors to seek out the core of the problem hey are interested in only treating each condition as i comes up. I will take a new approach this time, I will write down all these concerns and present to the Doctor as a whole.
If you think that there is no Lyme iin Australia, thats what the government refuse to recognise. I know someone with MS who test positive for Lyme who has never left the country. I live in Melbourne's South East but spent a lot of time in west Vic.
I have a contact in Lyme association who tells me that both her and her husband and two of thier children all have Lyme!....they small child is serverly disabled and they are all broke and frustrated with the lack of knowledge in Australia.
I hope we can spread the word 'down under'..if the government would make a move then it would save them in the long run....
to 'fund'someone's care in their home mis- diagnosed for many years not to mention the public hospitals they frequent, which is all paid for by medicare, imagine!
The doctor on the Today Tonight episode sends off blood for overseas lab testing. I can't watch the episode at the moment as i'm dial up lol (used up my allowance this month lol). I don't really know how successful natural treatments for Lyme's disease are though.
there are many other conditions that can give those symptoms, I understand that you want diagnosis but Lyme is rare in Australia its presence is even controversial, do you live in a endemic area? do you recall being bit by ticks? you cannot transmit Lyme to another person including your children.
Did you take blood tests? full blood count? serology, complement system? you should see a Neurologist and they'll have you run all the tests on you, why can't you do that?
you should do stool test too and fat stool test to check if you have bad absorption.
a therapy for some auto-immune syndromes and some bacterial infections that can't be treated with antibiotics is Plasmapheresis.
Did you take blood tests? full blood count? serology, complement system? you should see a Neurologist and they'll have you run all the tests on you, why can't you do that?
you should do stool test too and fat stool test to check if you have bad absorption.
a therapy for some auto-immune syndromes and some bacterial infections that can't be treated with antibiotics is Plasmapheresis.
Thanks, I have around 80% of Lyme symptons. My blood is normal although my cells are attacking or something. Ruled out most things. I have spoken to the Lyme association and there is only one Doctor reating in Australia and they dont send blood overseas for testing and I was advised that the test is still not quie up to date, this is why I was hoping to go through Dr McFadzean at restore medicine.
I have b12 every 3 months, can I try any kind of self help treatments?...do you know anyone with Lyme?
Thanks for taking the time to reply to all.
I have b12 every 3 months, can I try any kind of self help treatments?...do you know anyone with Lyme?
Thanks for taking the time to reply to all.
Vitamin B12 serum reference ranges are appalling low. In Europe and Japan have the lowest acceptable range is 500 or 550pg/mL (369 or 405pmol/L). You want to be in optimal range above 600pmol/L or 800pg/mL.
"At least six neurological and psychiatric papers, in top medical journals, have shown that the normal range should be regarded as at least 500-1,300 pg/ml (rather than 200-1,100), since the cerebrospinal fluid level can be deficient when the serum level drops below 500, and neuropsychiatric symptoms often occur at serum levels between 200 and 500 pg/ml (VanTiggelen et al, Lindenbaum et al, Mitsuyama/Kogoh, Nijst et al, Ikeda et al, Regland)." - Vitamin B12 Deficiency - Signs, symptoms and optimal treatment John Dommisse MD.
I am from Australia as well. I watched the Lyme disease episodes on Today Tonight. If you haven't seen the episodes, go to youtube and type in Today Tonight. Click onto their channel and search their youtube page for Lyme disease and the 5 episodes come up. There is a doctor here in Australia helping those with Lyme Disease. He is interviewed in one of the episodes.
"At least six neurological and psychiatric papers, in top medical journals, have shown that the normal range should be regarded as at least 500-1,300 pg/ml (rather than 200-1,100), since the cerebrospinal fluid level can be deficient when the serum level drops below 500, and neuropsychiatric symptoms often occur at serum levels between 200 and 500 pg/ml (VanTiggelen et al, Lindenbaum et al, Mitsuyama/Kogoh, Nijst et al, Ikeda et al, Regland)." - Vitamin B12 Deficiency - Signs, symptoms and optimal treatment John Dommisse MD.
I am from Australia as well. I watched the Lyme disease episodes on Today Tonight. If you haven't seen the episodes, go to youtube and type in Today Tonight. Click onto their channel and search their youtube page for Lyme disease and the 5 episodes come up. There is a doctor here in Australia helping those with Lyme Disease. He is interviewed in one of the episodes.
there are many people with similar symptoms still without an answer.
those aren't symptoms of Lyme although it could be something else affecting your central nervous system.
as I'm aware of once the Docs. have run some basic immunological and neurological tests and couldn't find anything they're stuck, Medicine is still behind on these issues.
if you think you passed it on to you children then I guess it would have be viral not bacterial. antibiotics could make it even worse. a natural substitute of antibiotics is garlic, but you must slice it and chew it fresh.
is blood count normal? wbc? liver function? check complements system too. another test related with central nervous system is lumbar puncture. get an appointment with a immunologist maybe. I don't think you need x-ray of any sort.
good luck...
those aren't symptoms of Lyme although it could be something else affecting your central nervous system.
as I'm aware of once the Docs. have run some basic immunological and neurological tests and couldn't find anything they're stuck, Medicine is still behind on these issues.
if you think you passed it on to you children then I guess it would have be viral not bacterial. antibiotics could make it even worse. a natural substitute of antibiotics is garlic, but you must slice it and chew it fresh.
is blood count normal? wbc? liver function? check complements system too. another test related with central nervous system is lumbar puncture. get an appointment with a immunologist maybe. I don't think you need x-ray of any sort.
good luck...
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I also have IBS-like symptoms, which is consistent with having a coinfection called Bartonella, which is also tick borne. Bartonella makes the neuro and Gi symptoms of Lyme worse.
Australia is still figuring out this emerging disease, and doctors there know even less than doctors here. But you are right to worry about your child. There are already documented cases in Oz of mothers passing it to their babies either in utero or in breastmilk. You both need to get checked out as soon as possible.
Please come to the Lyme Disease forum. We have a recent thread started by someone else in Oz, also with a child with symptoms. You can check that forum for the name of a doctor who is treating tick borne diseases in Australia.