Dizziness, heart palpations, numbness and brain fog

[OB girl]

Please help! Six months after the birth of my child (Jan 2004)I began feeling lightheaded. I developed "brain fog". I could not remember what I was saying. I would forget simple words. It would take a few seconds to recall it. My dizziness got worse. The Doctors found nothing. Blood test were OK.  

One year ago, I started having heart palpitations. Like sinking, dropping, frightened feeling. The Cardiologist ran tests which included a heart ultrasound. He did not find anything.

I started having constant dumbness & tingling in my toes, my fingers, right arm and left side of lower lip. This was constant for two weeks. Now it comes and goes but is not severe and does not last long.

I started having fullness in my left ear. The dizziness was severe when bending down or turning head. An ENT did hearing and dizzy tests. One test showed possible Meniere's. I was sent to a Specialist who said that he did not think I had Meniere's. I had a MRI to rule out acoustic tumor in my left ear. It came back that I had a sinus infection. I have never had sinus symptoms. He gave me an antibotic and ran a CT after 2 weeks. It showed a small amount left so he sent me to an ENT who gave me more antibotics. He said it was probably allergies and referred me to an allergist. I have not been.

I just developed pain that comes and goes on the left side of head. I still have severe dizziness, numbness, brain fog and heart palpations. Sometimes with nausea.  

I cannot accept that nothing is wrong. Do I need to see a Neurologist? What tests should I insist on having? Thank you!

[cpnk3279]

Have u had ur hormone levels checked, yes I'm serious. I've got all the same symptoms u have an more. I've had them for over 3 yrs now and have been through every tests an every kind of doctor, they can't find anything wrong. Talked to my gyno an he thinks I have a hormonal imbalance. He put me on birth control pills and I should know in a few more weeks if it will work. Check into it, may not b the issue but it's a possibility.

[cpnk3279]

Have u had ur hormone levels checked, yes I'm serious. I've got all the same symptoms u have an more. I've had them for over 3 yrs now and have been through every tests an every kind of doctor, they can't find anything wrong. Talked to my gyno an he thinks I have a hormonal imbalance. He put me on birth control pills and I should know in a few more weeks if it will work. Check into it, may not b the issue but it's a possibility.

[TrevJ]

This all sounds incredible. I am on this side because I experience practically the exact same symptoms, minus the numbness happens in my face and not my fingers/toes etc. I am healthy, just turned 20 and like yours, my doctors are completely stumped. and I oftne hear people say it's all in my head Originally, they were worried about my thyroid as well but my blood tests turned out okay. I am really worried, I actually lose consciousness from it once in a while, I can be going about my activites, regardless of what they are feel my symptoms, (for me the heart irregularities are the most predominant, along with dizzyness, and wake up on the ground about five minutes later with little recollection of what happened. and the timing of symptoms is fairly consistant with yours. It happened frequently for a few weeks and now happens only from time to time. Anyhow, it would be wonderful if you could keep me posted on anything you find out., I just want to know that I'm okay more than anything, I am scared and don't want to lose consciousness one day and never wake up.

[KumarVimal]

   I think you are having anxiety or panic attack, it is basically due to the shortage of mainly two neurotrasmitters Serotonin and Norepinephrin. It is not a disease, but a phycological problem, it is the body's fight or flee mechanism, there are lot of ways to remove it without the use of medication using natural stuffs. The best way is to let your brain know that it is nothing , for eg. it is not a fear and stuff like that. I hope you understoood what I mean.
  If this is helpful then you can let me know, my email address is ***@****
  
  

[OB girl]

Thank you Charley for your words of encouragement! A dear friend that I work with offered to lend me the money for the Lyme test because I do not want to tell my husband because he would notice that much $$$ gone. He thinks its in my head too. He told me that if the Doctors cannot find anything that means I am Ok and that it is probably because I am getting older and need more excersise. I try not to mention or act like I do not feel well because there is no understanding, encouragement to find answers or even sympathy. My friend believes me and she is a blessing.  

If I give up then I give in to what this thing is doing to me. I have two young children and I have to do this for them and for me!

Good luck to you during your cancer treatment. Stay focused and committed to your recovery and you will do well!

Dana (OB girl)

[charley1986]

Hey,
Don't stop pushing b/c everyone believes that this is in your head.  A real good friend of mine was intrumental in keeping my spirits up and to not give up....she had been through hell.  For 2 years, her family thought she was nuts and so did some doctors.  She finally ended up doing her own research and wound up somewhere in New York to finally get a diagnosis of Lyme Disease....she said it was the hardest two years of her life.  Once she was diagnosed and treated, her family apologized for not supporting her.  I have cried to her so many times about my health - and I honestly believe that I would have given up and just took the word of my doctors had it not been for her.  Thanks to her pushing me, I found out about my cancer and had a diagnosis of epilepsy that explained all the neurological symptoms I was having.  It will be interesting to see once the cancer is taken care of and I am stable on meds, whether these other health issues will resolve themselves.
Keep going girl....don't let ANYONE OR ANYTHING stand in your way...you know your body better than anyone else and YOU KNOW when something isn't right.  I wish you the best in finding the results you have been searching for.
Keep posting and let us know how it is going.
Take Care,
Charley

[charley1986]

Hey,
Thanks to you as well.
I think that God puts people in our lives sometimes to have someone to lean on when the going gets rough.  You keep pushing, I know you will find out eventually.
You could look this up in the archives here - but I think that I have also heard that sometimes Lyme doesn't show up with the test....I can't remember who used to post on here all the time about that - she has it and was very knowlegable.  I will try to find out for you.
I know how much harder this makes it with young children.  My son is 12 and he worries about me so much - very protective.  But you are right, you have to do this for yourself as well as your children.  I am sorry that you are not getting more support - but I sooooooo relate and so do lots of others.  This place has been a god send to me just to be able to commiserate with others who are "searching" as well.  I will keep you in my prayers - and don't forget to keep posting - any questions - post 'em - somebody here will help all they can!
BTW, What does the OB stand for?  Just wondering if it stood for Outer Banks. My really good friends name is Dana! Storm headed this way....yikes!
So, surgery for me on Thursday - soooo ready to get past this first step...long road ahead, but atleast now, I can see the light at the end of the tunnel.  FINALLY!
Take Care,
We're here for you!
Charley

[OB girl]

I just hit an interesting website.

The first ENT sent me for dizzy tests. The results showed endolymphatic hydrops in my left ear. This is a symptom of Menieres so he diagnosed me with it. The Specialist he sent me to told me that he did not believe I had it because I had not yet experienced hearing loss. This website tells me that Lyme Disease patients can have endolymphatic hydrops!

The Specialist sent me for an MRI and it showed a sinus infection. Does a sinus infection show up as white lesion matters? I am reading that white lesion matters in MRIs are typical of Lyme disease.

[OB girl]

Thank you both for your comments. It really is refreshing to read and to know that others are experiencing have experienced some of the same things.  My family thinks it is all in my head. I want my life back.
I have started a medical file and have requested copies of my records. It is growing. I had thyroid tests and it is ok. I will check out CFIDS.
I didnt include all of my problems in my post because it was so much. I only mentioned the new stuff.
9 years ago I began experiencing low grade fevers and would have muscle and/or joint aches chills. Sore throat and swollen lymph nodes. I started having bowel problems (pain and diarrea). I used to be cold all the time. I am very sensitive to light and sound. I cannot go outside with out glasses and I can hardly stand to hear my kids. I have had alot of back problems for the last 7 yrs. Unexplained intense itching. All of this stuff comes and goes. I have been to several internal med dr,1 dr that deals with auto immune, heart Dr, 3 Gastro Dr, 2 Derm, 1 chirpractor, 3 ENT, eye dr, I am started to read alot of post about Lyme and all of the symptoms are all too familiar. I want to have the test done.

[charley1986]

Hey,
You said you had blood tests.  Did you have a thyroid panel done?  I had alot of those same symptoms.  I am hypothyroid.  The dizziness sounds sort of like vertigo to me - and that can come along with sinus infections or just a little cold - sometimes with no symptoms such as sinus congestion. etc.  I have had that several times myself.  The palpitations sound like possible anxiety....probably from worry over all this other stuff...(been there too!)BUT they can also come from thyroid problems.  Do you have a copy of your blood work results.  Lots of people here are very knowledgeable about test results.  If you have them, post them here so we can see them - it could help in some way.  If you don't already do it, get copies of all tests, etc from your doctors office. Make yourself a file for personal use - also helps if you go to another doc sometimes.  Someone here (I think it was Demiguise) gave me that wonderful advice...until then, I had never thought twice about that...but understood alot more once I had those tests in front of me and I could read them myself.  Your doctors office will not have a problem with you getting copies - or they shouldn't.  That is a right as a patient.  Ok, post again soon and maybe someone here can try to get you turned in the right direction.  It certainly can't hurt to see a neuro just to rule out neuro problems.  But I am like you ....... you know your body better than any doctor.  If you don't feel right - don't stop pushing to find out the cause of your symptoms.  I am glad that I did.  I found out that I have thyroid cancer - and I am about to have my thyroid removed on Thursday.  It is very treatable!  Oh, geez, when I asked you if you had thyroid panel done, I did not in any way, assume you have thyroid problems....it's just a suggestion.  Also, if you doc hasn't done so, why not ask for B-12 test too.  Hope we can help you!!!!
Take care and post again soon,
Charley