My eleven year old daughter has experienced odd symptoms from about four weeks of age. It seems as though she gets everything that comes along. We are frustrated to say the least. The list seems long:
-Elevated biliruben for 5 weeks at birth
-RSV and double pneumonia at 6wks
-ongoing colds and pneumonias (no less than annual) and strep rashes
-RSV at age 2 again requiring hospitalization
-Age 2-4 spontaneous vomitting on about a 30 day cycle. The older she got the more violent, sometimes containing blood.
-She has had lymes disease 3 separate times from age 4-10
-She has had shingles twice in the last two years.
- In the past year, cyclical nausea reappearring. This is typically accompanied by a low grade temp, complaints of abdominal pain, and "My throat feels like I need to throw up." Sometimes including back pain.
-She is smaller than her peers.
-She was getting heavy, but dropped 15lbs from her 90lb body in three months without a signifigant change in diet or lifestyle.
-She has a terrible case of exzema on the back of her hands and wrists.
-Diagnosed IBS due to constipation and bloating to the point of looking pregnant at times (issue since birth.)
We have been told leukemia, brain cancer, anemia only to have lab work come back and disprove these theories.
We currently live in a rural community without access to a pediatrician. It appears that there is more going on than a typical virus, but I can't get the "dots connected." Her recent exam indicated a WBC of 14,900, sed of 18, a trace of WBC in urine but all other labs normal.
I really want to help this child. Can anyone point me in a direction?