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multiple unexplained symptoms

short summary. I am a 39 yo male. I have been sick for 3 years now. initially the symptoms came, stayed for a month or two then went away, except for some lingering fatigue, but since august 2012 they have been chronic. I suffer from constant dizziness (feeling drunk, being on a boat feeling), pain in stomach and constant nausea that at times get severe. seldom vomit. headaches frequently, daily flushing in neck and face, mental fatigue (not muscular fatigue) and after exercise it gets way worse (but again not in my muscles), at times constipation, sometimes diarrhea. I tend to have increased heart rate after eating, sometimes an odd feeling of shortness of breath, mostly at rest, sometimes chest pain.
I have been screened for carcinoid cancer repeatedly (CgA, 5-HIAA) always negative, pheocromocytoma negative, every kind of other blood tests (bloodcount, thyroid, liver, minerals, vitamins, lyme and loads of others) normal, CT scan of abdomen and brain normal, lung x ray normal, gastroscopy normal, ENT tests normal, ultrasound of liver, gall bladder, pancreas and heart normal. They found a parasite called blastocystis,  eradicated 8 months ago (confirmed several times), but not better. I eat a gluten free, dairy free, egg free diet, and hardly no insoluble fibers. No one seems to have any clue what i suffer from. No medication or herbs have any effect against the two most debilitating symptoms, the nausea and dizziness.
I have though about CFS but as i have no muscular fatigue and not prone to infections it seems less likely. anxiety/depression but I have never been the anxious type and except for being depressed over my undiagnosed disease I have never felt depressed and antidepressant have had no effect as expected.
I have tried acupuncture, worked with a chinese doc, gone to a chiropractor. Unfortunately nothing has had any effect whatsoever.
Does anyone have any clue what it could be?
5 Responses
1096512 tn?1384893378
Have you ever considered climatic/elevation changes and its effects on human body,when you live by sea for long time?You live in Stockholm, which is directly at sea level,where oxygen and hemoglobin affinity at sea level may predict acute illness due to low oxygen extraction coefficient,which causes exacerbated symptoms in sensitive individuals,like the one you mentioned,all or none associated illness.

Just a wild guess,correct me if I am wrong.
4851940 tn?1515698193
Symptoms of dizziness and feeling sick can sometimes be from stress and anxiety.  We can be stressed or anxious but still think we are fine.

Anther cause of constant dizziness as if you are on a boat, can be from a problem with the balance mechanism in your inner ear.  The doctor should refer you to an ear, nose and throat specialist.  Severe dizziness that is caused by problems from the ear could be Ménière's  Disease.
There is medication that a doctor can prescribe to steady the balance.  The tablets that can be purchased from the pharmacist are those that are used for travel sickness.  But do go back to the doctor.

Another  cause of dizziness and sickness is from stomach problems, allergies to some foods, parasites and bacterial like Helicobacter Pylori.  Helicobacter Pylori does not give accurate results through a blood test.  A stool or a breath test is more accurate.

Make sure that you have a healthy and balanced diet.  Drink water and other fluids so as not to get dehydrated.

Keep a record of everything that you eat and drink and record your symptoms to see if it is linked to that.  This will show you a pattern to determine if there is a specific food or drink that you should avoid.

Another cause of dizziness can also be from too high or too low blood pressure and from neck problems due to normal wear and tear, like osteoarthritis or from injury.

1096512 tn?1384893378
I totally agree with Jemma,but still as you said nothing has been showed up in any of previous investigations,have a reevaluation done.Wish you good luck.
361311 tn?1372016002
I am so sorry you are dealing with this. I know how it feels to be healthy and suddenly be so sick and no one knows what it is or how to help. I am so sick and tired of people saying, "it must be because you are stressed." The worst part is dealing with the depression that happens when you feel like there is no end in sight.  You don't know where to go for help, and everyone around you acts like you are making it up. I am here for you if you need to talk to someone who understands and has been at the very bottom because of it.
4851940 tn?1515698193
Unfortunately, stress, anxiety and depression does exacerbate any illnesses.  

I have just finished a course on pain management where we were taught about pacing our day and not overdoing things, gentle exercises, relaxation techniques, breathing, posture etc.  The group consisted of 12 people that suffered with varying degrees of chronic pain.  There is no magic wand to make chronic pain disappear, but there are things we can do so as not to make the condition any worse.  

In rewett's case there are issues that need to be looked into by the medical profession to rule out underlying causes and treated accordingly.
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