Other thoughts- did you check out potential side effects from the medications you are currently taking?
Have you ever had a chiropractor check out how your cervical spine is- the top two of your vertabrae I was told is key in headaches and so much more. If the spinal cord is being pinched at all up there, it could reak major havoc for you.
thanks for the post. i have had issues with cluster headaches once before, about 4 years ago. They were very debilitating and unpredictable and lasted for about a month, despite any treatment.
The symptoms were somewhat simalar to the pain, tension in the back of my neck and the pain mainy always on the right side of my head.
maybe this sphenoid sinus was casing the issues then also.
When i was having the cluster headaches i never experienced any of the other symptoms, racing heart, blurred vision, tightness of my chest etc.
I will definetly ask my doctor about the tests you mentioned, i am not sure what blood tests they performed specifically in the hospital, but my guess is they did not check those things.
Oh, and adenomas on pituitary, if large enough can also affect one's vision.
A number of the symptoms you are experiencing sound like panic attack. I just learned recently that thyroid imbalance can cause a person to have emotional upheaval and anxiety- have you had your TSH, T3 and T4 blood levels checked?
Also, I recently learned that high norepinephrine can actually induce a panic attack and tachycardia. Have you had your catecholamines and plasma free metanephrines tested to rule out pheochromoctyoma (a rare tumor of the adrenal gland that can cause headache, tachycardia, high BP, etc.)?
The h/a description fits migraine fairly well, although men can be more likely than women to get severe headaches called cluster headaches. Studies have shown, I heard on tv that people with cluster headaches have a different shaped hypothalamus gland.
Have they taken an MRI of the pituitary? This scan is different than the brain MRI, which is more general. Adenomas, if big enough, on the pituitary gland can cause headache and the pituitary is close, I believe, to one of the sphenoid sinuses.