Without going into too much detail, I had a TURP done about 18 months to remove some infected tissue. It left with three new problems:
a. UI: This was fixed with botox injections. Also have some SI, but it's minor enough to live with, at least right now.
b. If I empty completely I get a spasm-like pain that is all of 9-10 on a 10 pt. scale. Fortunately it is short-lived (15 seconds to a minute) and I can control it by not emptying. I don't know exactly where this pain is, but I know it's somewhere in my bladder or prostate. I feel it more in my lower belly than in my perineum.
c. Too explicit to talk about here, but it's also a pain issue.
My original urologist tried me on just about all OAB medications: Detrol, Ditropan, Enablex, etc. My current urologist had me try Flomax, even though I don't have a flow problem. As I said, the Botox fixed my UI, but has done nothing for this pain. (It was injected only into the front wall of my bladder.)
I have developed a theory, but I'm having trouble getting her (my urologist) to really listen. As part of the TURP, I know at least some of my bladder neck was removed. I'm wondering if, when I empty, my bladder neck gets the signal to close, but some afferent nerve endings were removed and are not present to tell my micuration center that it has closed, so my bladder neck continues to squeeze, causing the painful spasms. (I'm wondering if this is also causing problem "3.") Is this even possible? Anyone have ideas for places I could look to gather info for her?