All,
I can tell you I am 95% sure I have the answer to the off balance feeling. Anxiety. I know you may be skeptical at first and think (it has to be something physically wrong w/ me). The thing is... anxiety causes a chemical offbalance in your body which in turn can cause a physically off balance sensation. I came to this "realization" after getting all tests done to rule out brain or inner ear issues, and thinking back on all the anxiety/stress/worrying I've had the last 4 months. The first time I remember getting the off balance feeling was even during a moment of anxiety.
I'll post more soon on how I'm tackling this, but some immediate things you can try:
- meditation, yoga, breathing exercises when you wake up and later in the day too
- stop worrying so much about your health issues (tough I know, but just do it)
- look into the ayurvedic herbal formula called "mentat" - you can even find it on amazon.com for ~$5-9 a bottle. I've been taking it for about 2.5 weeks and it has definitely helped at least with the ability to focus more and work on the computer more.
- make sure you're getting enough sleep and plenty of water each day
I also spoke with an ayrvedic dr this morning and she'll be giving me more advice on diet, herbs, etc so I'll post more again soon. But TRUST me, if your MRI and ear tests are fine, it is anxiety. And you will get better after some time.
Exactly how I feel, I just got so tired of it, it's been so long and every morning I wake up knowing that I am going to stand up all dizzy and off-balance and barely able to walk, and nothing changes or gets better. It just gets me down so much, being unable to do things I need to do during the day because of it. Thanks for understanding.
I understand the loss of hope. A year ago I finally told my hubby that I was tired of specialists, scans and tests. (It was getting costly and they were not finding anything.) So other than to monitor my levels for VDD and regular check ups. I haven't been anywhere. Some doctor somewhere has the answer I just can't afford to keep looking.
Thank you so much to everyone for responding. I feel for all of you so much, and so understand what you are all going through. My heart goes out. Regarding the Off-Balance thing, I am not done seeing specialists about it, if I find out anything, at all that could give some hope, or idea of what it is or how to manage it, I will surely mention it. But I am losing hope of any kind of news. But will keep trying to find the cause.
Thank you so much, again. It is so good to know that I am not alone.
I am of the opinion that the "off balance feeling" is not caused by the VDD, but can be influenced by it. My levels have been in the 50's for a year (taking 5000iu D3 and will probably have to take it forever). The symptom has improved greatly, but still is a daily occurence. Now is this because my numbers are up or is it after 3+ years of the "off balance" that I have finally gotten used to it? Who knows. I do have a Vitamin B12 defeciency, but it is stable with every 2 weeks of B12 1000mcg injections.
I tried to take magnesium, but everytime I tried to add it I had terrible stomach issues. So I guess I could have a magnesium issue...
I have been to ENT and Neurology and they cannot figure out why the off balance feeling.
I am more sensitive to sounds and I also notice that when I am big stores I have more problems. ie Walmart, grocery shopping etc. I have fallen several times, but now walk with a cane. That has helped alot. Granted at first I was hesitant to use it due to pride. (I am not that old) I had to come to grips of that pride and not wanting any additional doctor visits.
I did have to go on medical leave for a few months until I could get my focus back. (I felt foggy brained, if that makes sense)
If you decide to take the magnesium, let me know if you get rid of the balance issues. Plus if you get a good diagnosis from a doctor regarding it, I would love to let my physician know, so he can explore it for me.
I have that off balance feeling right now. My original symptom was muscle twitching which started in late Dec last year. MRI and EEG were normal and I insisted on a vit D blood test. I found out I had vitamin D deficiency (level 13) around late Jan. I was taking roughly 3000-5000 IU's a day for about two months and got my level back to 45 so I decided to taper the dosage down and phase it out in a week or two . However then a month after that blood test a new test showed my level to be down to 30, so now I'm back to around 2000-3000 IUs a day. Ignoring the tests for a second, the muscle twitching is much better than it was. However, for the last 4 weeks I've had that off balance, walking on a boat, elevator stopping feeling. It's aggravated when working on the computer. I also think it gets worse when I'm at shops or restaurants. I feel like there are times when my brain is struggling to process the visual info my eyes are taking in. I also noticed a little hypersensitivty to certain sounds. I'm a little confused about why this symptom began 4 weeks ago when my level was around 30 (borderline for 'normal'). I'm wondering if it's maybe related to a magnesium deficiency or some other vitamin/mineral imbalance caused by the vitamin D supplements I've been taking. gadgetsmidnight - did you also take magnesium? or were you able to rule out any other potential causes? How much better did your symptoms get over time (and how much time)? Mine is not HORRIBLE in that I'm not falling over, but it is affecting my work and ability to focus.