Symptoms worse in humid/unstable weather?

[9na]

I've been suspecting for some time that the weather/changes in weather affect my symptoms.
I've been far worse for the past couple of days than I was for a week or two before that - and it just occured to me that after having stable cold weather for weeks, we have had rainy weather for two days now. Milder and wet.
Coincidence?

Anyone else with the same experience?

[Seattleanne]

The connection between these two is something I believe to be true. Recognition and treatment of vdd is new so it's entirely possible that fm will be taken care of when d levels are raised and maintained at optimal levels. It's not proven yet, but I'm willing to bet it will be.
I read a study that was done before vdd was really recognized that showed that 100% of fm patients were vdd. At the time acceptable levels were in the 20's so the researchers concluded that only 50% of fm patients were vdd... But we all now know that 20 is quite low.
I am fm too... Anyone in here reached their goals of d levels and maintained them long enough to feel better see any evidence of fm symptoms clearing up? Since they are almost identical to vdd symptoms I really hope so!!!!

[alifogg]

Well, I went to see my GP today with the usual symptoms and she has now referred me to a consultant to confirm her diagnosis of Fibromyalgia! I guess as FM just describes a bunch of symptoms rather than being a condition per se, you could say that VDD leads to FM...

... the only thing that troubles me about this talk of FM is that VDD symptoms clear up, right? Whereas FM is something you live with permanently...

I am confused!

[Seattleanne]

I too was diagnosed with fibromyalgia... Long before vdd. I am convinced that fibro IS vdd. Because they feel the same pretty much, but the vdd is much worse and a lot more constant.

I do think weather plays a part! In the very start if my migraines, I would getvthem if the barometric pressure outside changed. ( not unlike arthritis succeeded )

[gadgetsmidnight]

My endocrinologist diagnosed the fibromyalgia when I went to see him as a referral for the VDD (my primary care diagnosed the VDD).  He spent an hour with me going over all my symptoms.  He did some trigger point tests and apparently almost all of them I claimed some degree of pain. (This is where he pushes and manipulates certain places on the muscle to determine my degree of discomfort.)  He was the one who said I have fibromyalgia.  Mainly he said it was my degree of muscle pain and fatigue that caused him to think this way.
It is hard to determine what symptoms are related to which.  One symptom that is the worse for me is the dizziness. (not the spinning type)  It is like I am rocking on a boat in a hurricane or trying to walk on pillows.  I just feel off balance.  My endo had not heard of anyone having this symptom with either problem.  But I see it being a somewhat common symptom (looking under the thread that was started where we all listed our symptoms) for the VDD.

[9na]

I had the exact same experience when I first read about fibromyalgia symptoms! "This is ME!"

There is a link between VDD and fibromyalgia, but it seems researchers don't totally agree on how the link is to be understood..

Here are some sites:

http://www.thehealthcarecenter.com/fibromyalgia_vitamin_d_deficiency.html

http://www.easy-immune-health.com/fibromyalgia-and-vitamin-d.html

http://www.suite101.com/content/fibromyalgia--vitamin-d-deficiency-link-a196899

The muscle- and bonepain and the fatigue of course are similar symptoms from the two diagnoses. I myself am also having eye problems (increased intra occular pressure and very dry eyes), scalp pain etc. too - symptoms that seem to 'fit' fibromyalgia rather than VDD. But I really don't know what to believe... I do have VDD anyway, the blood test revealed that, so I'm certainly not doing anything wrong by doing D therapy ;)

[alifogg]

Wow, I just looked at a Fibromyalgia website... those symptoms sound just like mine! Could it be that VDD causes Fibromyalgia?

gadgets, how was your diagnosis for fibromyalgia different from your VDD? I mean, what symptoms were attributed specifically to each?

[9na]

Yes! On sunny days, I definitely feel better too!

gadgets: I have also heard that this is common in fibromyalgia - but fibromyalgiasymptoms generally fits my condition very well! So I'm not sure - either I have that as well, or VDD mimics fibro very much. I'll talk to my doctor about this next time I see her. But yes - I also hope to see even more answers on this one - it certainly was interesting to see your experiences :)

[gadgetsmidnight]

I have the same problem when a new front comes through.  My doctor thought it was from fibromyalgia and not from VDD, but I am not sure now.  The fibromyalgia diagnosis came after the VDD.
I also seem like I feel better when the sun is out, regardless of the temperature.  Hopefully others will respond to see if this is common to VDD.

[alifogg]

You know, I think you are right. I have noticed that myself this last week or two.

Also, when there is sunshine, I feel so much better and am able to do so much more. But why should that be as my Vitamin D levels are already elevated? Very confusing!

Last August/September, before I started treatment (and before diagnosis), I had several good consecutive weeks - I think I managed 7 weeks without a sick day off work. Looking back, I can see that the good patch started when I changed my routine to include a half an hour's walk to work and back i.e. 60 minutes in the sun every day. Then, when the weather changed in October, it wasn't long before I was virtually housebound with chronic symptoms.

It is strange the way the sun can have that instant effect, regardless of the level of Vitamin D in the system - I am just counting the days until Spring - I am holding onto the belief that I will be able to live a more normal life once we get more sunshine.

By the way, it occurred to me that rainy weather tends to affect people with rheumatoid arthritis so it may well be the same for us...