I have FD also. I had a tumor removed from being sandwiched between my skull and frontal sinus bone. I still have horrible headaches daily but no more sinus issues due to extensive sinus repairs. I had been referred to
Dr. Woodworth at (UAB) University of Alabama. He is educated on how to treat anything related to what I had and if there was anything that would go wrong during surgery.
i am a 31 y/o male with cranial FD and i live in south east wisconsin. i have had very little luck finding any doctors in the area who are familiar with this. please let me know if you find anything, and i will do the same for you...
ben.***@****
good luck...
ben