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Hi guys, I have a question and would appreciate any feedback good or bad that I can take with me to my Neuro appt. on Friday. I want a DMD, as I am getting new symptons and such , I have tried without success : Copaxone, 2 x ..... , Avonex ..., ...

New to Gilenya

- Multiple Sclerosis Community

Ok so I have only been on Gilenya for almost a week... I felt fantastic, but the last few days I get very agitated... Like all the time!! Very odd nothing but everything sets me off... I was wondering if any one else has had this feeling before? I like the...

DMD help!

- Multiple Sclerosis Community

I need to know if anyone knows of a DMD that does not damage the liver. I was on Copaxone for 4 years and it was not effective . During that time I had many major flare ups and suffered per permanent mobility damage. 2 years ago I switched to Gilenya...

Gilqenya update

- Multiple Sclerosis Community

I thought I would post on my first dose of gilenya. I took my first dose at 9 this morning here at the medical clinic. I am excited and hopeful that the little capsule I took will truly live up to the research findings. I am feeling fine so far, only a sm...

need answers on ms

- Multiple Sclerosis Community

i was just dx with ms at least now i know all this pain is not in my head lol well i guess it is sort of. anyway what kind of treatment is out there and what seems to work best?

New drugs

- Multiple Sclerosis Community

I was Dx in. 1999 when I was 15 with rrms. I was 15 entering into highschool I went blind in my left eye. I was given the IV steroids and sent home on a taper. I didn't take any meds for years til after I had my first child. I started avonex was on that fo...

New Oral Pill

- Multiple Sclerosis Community

I recently was DX in May 2010 with RRMS and I was given Avonex for treatment; which I stopped using in Dec because I just had panic attacks each time I gave myself the shots even though they don't hurt and I was okay with the side effects. I just grew a fe...

Is Gilenya worth $150 co-pay per month?

- Multiple Sclerosis Community

I just got the letter from Novartis about my share-of-cost for the oral drug Gilenya. I was astonished to see that they expect me to pay $150 per month. This amount is probably a result of what they negotiated with the insurance company, but I have good i...

new lesions :(

- Multiple Sclerosis Community

Got my latest MRI results recently. Three new lesions and an old one that has become more "conspicuous." "FINDINGS: Since 2/1/2014, there has been interval development of a 0.8 cm lesion in the anterior corpus callosum, a 0.4 cm lesion at the atriu...

Tysabri or Gilenya?

- Multiple Sclerosis Community

Hi everyone, I'm having a hard time doing my Copaxone injections since I've lost so much weight from my cancer (down to only 82 lbs now). I can't handle the pain from the injections anymore. I'm going in to talk to the PA of my neuro to see about maybe sta...

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