Dear neatfreakmom: 1. DCIS is a "pre" cancer. It does not have the ability to spread and this is what differentiates it from invasive cancer. If left alone, most assume that it would eventually develop into invasive cancer but the timeline on this is unknown. 2. DCIS is considered a local problem it can be effectively treated with lumpectomy with or without radiation therapy, depending on the characteristics of the DCIS. Tamoxifen is often added to prevent further development of DCIS or invasive cancer in either breast. 3. There is no way predict whether a person will develop DCIS or breast carcinoma. As long as there is breast tissue there is a possibility. Many women who are treated for DCIS never have another problem. 4. With bilateral mastectomy, your chances of developing breast cancer are very small. 5. If you have bilateral mastectomy there is little to no breast tissue remaining. Reconstruction is generally considered safe. 6. If the DCIS is removed and the margins are clear, then there is no invasive cancer that is being hidden by the DCIS. You can get a pathology review if that will make you more confident.
I would like your opinion, too, if possible. Also, there hasn't been a date set for the second surgery yet. Isn't this waiting too long? My surgeon said he wanted to wait until the inflammation from the biopsy was all gone. Thanks so much for your help.