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Yaz and LOCAH
My doctor has recently placed me on a Yaz treatment method for 6 months to treat nonclassical congenital adrenal hyperplasia. Any thoughts on this treatment method? So far the Yaz is ridiculous. I'm experiencing every common side effect but vomiting (then again I'm only on day 5). Any feedback would be appreciated.
The throat was cultured. No strep or abnormalities. My white blood cell count is normal. There is absolutely no sign of infection anywhere in my body. All I know is that I feel drained, nauseous, bloated and my heart beats out of sync every single day. That's the only way I can describe myself.
Funny you mention the genetic test. That was the first thing I said to my mom once I received my LOCAH diagnosis. How is it that I have it but for generations upon generations no one in my family has had it? I understand genetics and recessive and dominant genes, but come on...
I'm going to look into this CAH expert business. Thank you for putting the seed back in my mind!
Funny you mention the genetic test. That was the first thing I said to my mom once I received my LOCAH diagnosis. How is it that I have it but for generations upon generations no one in my family has had it? I understand genetics and recessive and dominant genes, but come on...
I'm going to look into this CAH expert business. Thank you for putting the seed back in my mind!
If you went to a CAH expert, the first thing they would do would be to run the gene test - it would tell you for sure. One of my friends was suspect for LOCAH - so she had that test, so she ruled it out.
The YAZ may help you anyway- as you just may need the boost in potassium. If your cortisol is low, your immune system tends to tank (same with when it is high). I took the spiro... I just could not tolerate the side effects. My issue turned out to be Cushing's.
Addison's by definition is autoimmune - but there are different forms... but can't a MD culture a throat after a year?
The YAZ may help you anyway- as you just may need the boost in potassium. If your cortisol is low, your immune system tends to tank (same with when it is high). I took the spiro... I just could not tolerate the side effects. My issue turned out to be Cushing's.
Addison's by definition is autoimmune - but there are different forms... but can't a MD culture a throat after a year?
Oh! And one more thing. My endocrinologist mentioned to me at my last visit that I may be experiencing this adrenal fatigue due to an autoimmune disease or fungal infection that my MD has yet to pinpoint. I've had a sore, nasty tasting throat for a year now and my glands have been swollen just as long. So does that mean that it may not even be LOCAH?
I forgot to mention that Yaz contains 3mg of drospirenone, which is a form of spirlactone, which in turn is being used to treat my LOCAH symptoms.
Thank you SO MUCH for this information.
I do have the ACTH stimulation test to confirm. I also had a spit test hormone panel done several weeks ago confirming overproduction of testosterone and DHEAS, and underproduction of cortisol. My cortisol levels are within range in the morning, but as the day progresses they decrease substantially below normal levels. Other hormones tested were at adequate amounts throughout the day. According to my MD this is classic of LOCAH. But according to the report of my hormone panel, insulin resistance testing is next in line based on my symptoms submitted for review. We'll see how I make out.
Regarding Yaz, so far it's awesome! Of course - as is common with birth control pills - I'm experiencing pregnancy-like symptoms but they're not nearly as bad as the reviews I've read online prior to taking my first pill. My skin has never been so smooth and I may have even gone up half a cup size! That's exciting for a woman! LOL.
Thank you again :)
I do have the ACTH stimulation test to confirm. I also had a spit test hormone panel done several weeks ago confirming overproduction of testosterone and DHEAS, and underproduction of cortisol. My cortisol levels are within range in the morning, but as the day progresses they decrease substantially below normal levels. Other hormones tested were at adequate amounts throughout the day. According to my MD this is classic of LOCAH. But according to the report of my hormone panel, insulin resistance testing is next in line based on my symptoms submitted for review. We'll see how I make out.
Regarding Yaz, so far it's awesome! Of course - as is common with birth control pills - I'm experiencing pregnancy-like symptoms but they're not nearly as bad as the reviews I've read online prior to taking my first pill. My skin has never been so smooth and I may have even gone up half a cup size! That's exciting for a woman! LOL.
Thank you again :)
Thanks for your comment!
I'm being treated by an endocrinologist. I had a hormone panel done and my cortisol levels do not decrease drastically during the day nor are my androgens as out of whack as he had originally had claimed.
With that said, he said Yaz may in fact be an adequate treatment without the nasty steroid side effects. I did some research and Yaz and Yasmin have been prescribed to treat LOCAH with success.
Problem is it will take about 6 months versus 3 days on steroids to start seeing results. But I can live with that.
I was just wondering if anyone out there had experience with taking Yaz to treat LOCAH. All of my pregnancy-like symptoms have almost fully subsided so I'm gunna keep it up and see how it goes!
Perhaps I'll post again in the future regarding my treatment to see if it's worthwhile to anyone else out there livin' la vida LOCAH :)
I'm being treated by an endocrinologist. I had a hormone panel done and my cortisol levels do not decrease drastically during the day nor are my androgens as out of whack as he had originally had claimed.
With that said, he said Yaz may in fact be an adequate treatment without the nasty steroid side effects. I did some research and Yaz and Yasmin have been prescribed to treat LOCAH with success.
Problem is it will take about 6 months versus 3 days on steroids to start seeing results. But I can live with that.
I was just wondering if anyone out there had experience with taking Yaz to treat LOCAH. All of my pregnancy-like symptoms have almost fully subsided so I'm gunna keep it up and see how it goes!
Perhaps I'll post again in the future regarding my treatment to see if it's worthwhile to anyone else out there livin' la vida LOCAH :)
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"Nonclassical CAH-21-hydroxylase deficiency
A milder, non-life-threatening form of CAH becomes manifest in later childhood or even young adult life, and is not characterized by ambiguous genitalia in girls. Rather, these individuals have a partial enzyme deficiency, and thus have better cortisol production, normal aldosterone production, and lower levels of adrenal androgens. They do not suffer "adrenal crisis."
Generally, such individuals seek medical attention because of premature development of pubic hair, irregular menstrual periods, hirsutism (unwanted body hair), or severe acne. About 10-15% of these young women may suffer from fertility problems. Some people affected with nonclassical CAH are not at all symptomatic, and are identified only because of an affected relative.
Nonclassical CAH is among the most common genetic disorders, with Ashkenazi Jews having the highest prevalence. In the general population, depending on the ethnic breakdown of a given community, 1-5% may be affected with non-classical CAH. Nonclassical CAH does not progress to classical CAH in affected individuals.
The symptoms of non-classical CAH are treatable with very low dose glucocorticoids. This type of treatment may be optional and need not be lifelong."
Did you have the genetic test to confirm the LOCAH (aka nonclassical CAH) diagnosis?
Let us know how the Yaz works out!