Aa
Not sure
Symptoms
May 16, 2009
Both legs started feeling slightly weak and felt funny
Within the next couple of weeks legs would become very weak. Calves and Thigh would get hard and tight and become very sore.
Around the third to fourth week it spread to both arms. Internal tremors would be felt when doing any type of activity with lifting or standing.
Around the fifth week it spread to my neck. Felt tightness and stiffness as it started on the right side of my neck then over the next couple of days it spread to the left side and then to the front of it.
Few days after that left hand started becoming weaker and fingers (pinky and ring) would start to shake. Holding the phone for more than a minute hand would start to shake. Turning pages sometimes becomes difficult.
Left ankle and foot - Control issues when putting in slipper.
Holding the phone with my shoulder creates more internal tremors in the the arm, mouth, throat. Teeth would have a slight chatter from it.
Pinky and ring fingers are numb when waking up.
Able to walk but legs still get weak and internal tremors are felt.
Get fasciculations all over my body.
When doing any activity (walking, using hands or arms, head movement) muscles are stressed not long after using them and the internal and some visible tremors are present. An example of this would be when weight training (bench pressing) and your trying to do a couple of extra repetitions, your muscles will start to shake as they become over exerted from the extra use. This is exactly what happens to my muscles after little use.
To date: 7/28/2009
Legs - very sore, feel bruised when over used, tremors when over used.
Arms - same as legs, tremors when over used.
Neck - feel stiff and sore, tremors when over used.
Mouth - Pronouncing t, th, s with certain words become tripped up as I have to repeat slower to get the word out.
My throat involuntary swallows. This happens several times usually after waking up and trying to get back to sleep. It also happens during the day.
Swallowing has been affected. Skipping occurs when trying to clear mucus.
Skipping occurs sometimes when starting to take in a deep breath.
Muscles are very sore and some of them feel bruised.
Left shin area (just started) - a dull pressing feeling that last several seconds. It almost feels numb but no pins and needles feeling. It does it a many times a day.
Hands, leg, foot, thumb jerk.
Reflexes are jerky.
Twitches on certain spots last several minutes.
Had negative EMG in June. All brain and spinal MRI's were normal.
Saw a couple of Neuros and they told me it's not ALS but don't know what it is. I'm not sure if the rapid progression can be could fall in the ALS category but the symptoms seem familiar to it.
Any help please.
Thank you
May 16, 2009
Both legs started feeling slightly weak and felt funny
Within the next couple of weeks legs would become very weak. Calves and Thigh would get hard and tight and become very sore.
Around the third to fourth week it spread to both arms. Internal tremors would be felt when doing any type of activity with lifting or standing.
Around the fifth week it spread to my neck. Felt tightness and stiffness as it started on the right side of my neck then over the next couple of days it spread to the left side and then to the front of it.
Few days after that left hand started becoming weaker and fingers (pinky and ring) would start to shake. Holding the phone for more than a minute hand would start to shake. Turning pages sometimes becomes difficult.
Left ankle and foot - Control issues when putting in slipper.
Holding the phone with my shoulder creates more internal tremors in the the arm, mouth, throat. Teeth would have a slight chatter from it.
Pinky and ring fingers are numb when waking up.
Able to walk but legs still get weak and internal tremors are felt.
Get fasciculations all over my body.
When doing any activity (walking, using hands or arms, head movement) muscles are stressed not long after using them and the internal and some visible tremors are present. An example of this would be when weight training (bench pressing) and your trying to do a couple of extra repetitions, your muscles will start to shake as they become over exerted from the extra use. This is exactly what happens to my muscles after little use.
To date: 7/28/2009
Legs - very sore, feel bruised when over used, tremors when over used.
Arms - same as legs, tremors when over used.
Neck - feel stiff and sore, tremors when over used.
Mouth - Pronouncing t, th, s with certain words become tripped up as I have to repeat slower to get the word out.
My throat involuntary swallows. This happens several times usually after waking up and trying to get back to sleep. It also happens during the day.
Swallowing has been affected. Skipping occurs when trying to clear mucus.
Skipping occurs sometimes when starting to take in a deep breath.
Muscles are very sore and some of them feel bruised.
Left shin area (just started) - a dull pressing feeling that last several seconds. It almost feels numb but no pins and needles feeling. It does it a many times a day.
Hands, leg, foot, thumb jerk.
Reflexes are jerky.
Twitches on certain spots last several minutes.
Had negative EMG in June. All brain and spinal MRI's were normal.
Saw a couple of Neuros and they told me it's not ALS but don't know what it is. I'm not sure if the rapid progression can be could fall in the ALS category but the symptoms seem familiar to it.
Any help please.
Thank you
first off let me start by saying how sorry i am that you're going through this.
now, i too have almost the exact same symptoms, all started in one day for me though course was in reverse..started in my neck where it felt very tight and hard to turn, even have some jerks in it, then my arms and legs at the same time eem to shake when i lift the against gravity, it doesnt happen un less im using the muscles. went to neuro, said its not ALS, MS, things of that nature...but like you i worry..also, the little muscle spasms all over the body, i have those also..have they checked your b12, vit d, magnesium?? i was found to be extremely low on all of these..endo disorders are also something that should be looked at. i found out through going to the dr for the problems i listed that i have hashimotos disease as well. i know its hard not to think the worst, but its very unlikely that either of us has ALS. just one thing off in your body can cause a whole host of problems. make your dr test all things, be persistant, thats what im doing, pressing them to help me. its so frustrating to have a dr say "well, you look great" so what, im sick, something is veru wrong..and they so easily dismiss things that they can not see. if you would ever like to talk im all ears. best of luck and health to you :)
now, i too have almost the exact same symptoms, all started in one day for me though course was in reverse..started in my neck where it felt very tight and hard to turn, even have some jerks in it, then my arms and legs at the same time eem to shake when i lift the against gravity, it doesnt happen un less im using the muscles. went to neuro, said its not ALS, MS, things of that nature...but like you i worry..also, the little muscle spasms all over the body, i have those also..have they checked your b12, vit d, magnesium?? i was found to be extremely low on all of these..endo disorders are also something that should be looked at. i found out through going to the dr for the problems i listed that i have hashimotos disease as well. i know its hard not to think the worst, but its very unlikely that either of us has ALS. just one thing off in your body can cause a whole host of problems. make your dr test all things, be persistant, thats what im doing, pressing them to help me. its so frustrating to have a dr say "well, you look great" so what, im sick, something is veru wrong..and they so easily dismiss things that they can not see. if you would ever like to talk im all ears. best of luck and health to you :)
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