Hi , I have ehlers Danlos syndrome - type 3 Hypermobilty type.. For a long while now I have had wooshing sounds , mainly at night , but sometimes day too ... In left ear only.. It is getting worse overtime and now I am getting pulsating vision with it . More and more frequent with a pressure feeling in my head... I also crack my neck so many times a day , that couldn't even estimate how many ? And have noticed that pressing C1-3 area makes symptoms worse...
I have othostatic hypotension and tachycardia secondary to my Ehlers Danlos... We have strong cardiac history in both sides of family , stroke , diabetes , brain tumours , and cancers throughout family , including my parents... Is the increase of symptoms something to worry about? Have had ct,scans in past with no contrast and were fine approximately 8 years ago... Jo
I can understand your concerns, especially since you suffer from Ehlers Danlos syndrome and have a strong family history of several medical problems. Since you have tinnitus (abnormal sound in ear) with probably blurred vision (pulsating vision), you need to rule out certain possibilities: temporomandibular joint disorder (common in this syndrome), ocular migraine, stroke, aneurysm, very low blood pressure (since you have postural hypotension), diabetes, and maybe even anemia. For this you will need to undergo blood pressure monitoring and certain investigations. Please talk to your doctor regarding this. Take care!
The medical advice given should not be considered a substitute for medical care provided by a doctor who can examine you. The advice may not be completely correct for you as the doctor cannot examine you and does not know your complete medical history. Hence this reply to your post should only be considered as a guiding line and you must consult your doctor at the earliest for your medical problem.
When I wrote common - was meaning in eds people..am trying not to worry but symptoms getting worse quickly... Does anyone here know good Ehlers doctors in Sydney Australia... It's hard to find drs as its a rare syndrome... Can cardiologists check me for any of the above issues? I have a good one... And not under any neuro at the moment... It's so hard to find drs for eds issues
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.