Aa
If it's not Lichen Sclerosis what is it?
Hi there, I will start off with saying that I'm 33 with no kids, I got my results back from my biopsy and here's what it showed, has anybody ever in their whole life heard of this?
Epidermis exhibits focal,Focal neurological deficits, /mild hyperkeratosis, which is associated with underlying localized spongiosis. Neutrophils permeate epidermis in this area, and a small subcorneal pustule is thereby formed. Immediately underlying dermis is characterized by scattered small lymphocytes and occasional melanophages. No evidence of malignancy Hyperpigmentation w/malignancy
Malignancy or atypia is apparent. The microscopic features noted above are consistent with subacute
Subacute sclerosing panencephalitis
Subacute thyroiditis
dermatitis. A specific etiology for the latter is not identified?? ??
So my gynocologist looks me dead in the eye after four years of being given a diagnosis of LS that she has to send me to a dermatologist, she says to me that I don't have LS? I was beyond upset, As you can see the "diagnosis" is not in the average person's english so I have no idea what is happening to my skin but I am desperate to find out because everything I have been experiencing all masks Lichen Sclerosis, I am beyond concerned.. I also experience dry mouth, dry hair, itchy and dry eyes, and vaginal dryness fissures since 2004, I have no been able to have sex in a few years because it's very painful, I have also experienced something traveling up my back, it only lasts for around 5 seconds but has the potential of becoming painful if it lasted longer then five seconds then it disappears. I have told many doctors about this problem but they have say they need to see it which is impossible because it's in my back travelling and it only happens like once or twice a month. Lyme's Disease? I doubt it but will get tested for it. I recently had an ultrasound on my pelvic and the results came back as having an enlarged uterus lining at 2.5 cm. if anybody has any medical advice on what to do please email me back. Thank you for reading and good luck >> Health is # 1.
Epidermis exhibits focal,Focal neurological deficits, /mild hyperkeratosis, which is associated with underlying localized spongiosis. Neutrophils permeate epidermis in this area, and a small subcorneal pustule is thereby formed. Immediately underlying dermis is characterized by scattered small lymphocytes and occasional melanophages. No evidence of malignancy Hyperpigmentation w/malignancy
Malignancy or atypia is apparent. The microscopic features noted above are consistent with subacute
Subacute sclerosing panencephalitis
Subacute thyroiditis
dermatitis. A specific etiology for the latter is not identified?? ??
So my gynocologist looks me dead in the eye after four years of being given a diagnosis of LS that she has to send me to a dermatologist, she says to me that I don't have LS? I was beyond upset, As you can see the "diagnosis" is not in the average person's english so I have no idea what is happening to my skin but I am desperate to find out because everything I have been experiencing all masks Lichen Sclerosis, I am beyond concerned.. I also experience dry mouth, dry hair, itchy and dry eyes, and vaginal dryness fissures since 2004, I have no been able to have sex in a few years because it's very painful, I have also experienced something traveling up my back, it only lasts for around 5 seconds but has the potential of becoming painful if it lasted longer then five seconds then it disappears. I have told many doctors about this problem but they have say they need to see it which is impossible because it's in my back travelling and it only happens like once or twice a month. Lyme's Disease? I doubt it but will get tested for it. I recently had an ultrasound on my pelvic and the results came back as having an enlarged uterus lining at 2.5 cm. if anybody has any medical advice on what to do please email me back. Thank you for reading and good luck >> Health is # 1.
Hey Lewis8000,
Welcome to the forum.
Multi-systemic diseases have usually one thing in common:
Initiating Infectious Pathogenic conditions.
Most of the above comments are pointing towards the right direction.
You should also explore Cadidiasis overgrowth and Mycotoxins.
Insist for proper and specific testing for Lyme, HGE , Bartonella (as suggested by Ewford) Pathogenic Mycoplasmas, as partial random tests based only in a few symptoms at a time will not yield thorough diagnostic findings.
The other issue is that you need the collaboration of many different specialists, and this a real medical challenge. You could try working with a good internist, however, (s)he would have to be trained also in serious infectious conditions as mentioned above.
Good endocrinologists are hard to come by, but you may need to find one soon, as I suspect your adrenals and hormonals need a lot of attention, while you're figuring out the underlying infection(s).
If I think of anything else I will post it.
Please research well. take time to read other posts here, and if you need more info on anything, please let us know.
Blessings
Niko
Welcome to the forum.
Multi-systemic diseases have usually one thing in common:
Initiating Infectious Pathogenic conditions.
Most of the above comments are pointing towards the right direction.
You should also explore Cadidiasis overgrowth and Mycotoxins.
Insist for proper and specific testing for Lyme, HGE , Bartonella (as suggested by Ewford) Pathogenic Mycoplasmas, as partial random tests based only in a few symptoms at a time will not yield thorough diagnostic findings.
The other issue is that you need the collaboration of many different specialists, and this a real medical challenge. You could try working with a good internist, however, (s)he would have to be trained also in serious infectious conditions as mentioned above.
Good endocrinologists are hard to come by, but you may need to find one soon, as I suspect your adrenals and hormonals need a lot of attention, while you're figuring out the underlying infection(s).
If I think of anything else I will post it.
Please research well. take time to read other posts here, and if you need more info on anything, please let us know.
Blessings
Niko
You have too many things going on for it to be 12 different issues. I would suspect bacterial infections (inside your cells) coupled w/ fungal and viral relapses. You might want to contact ILADS t find a dr near you who will not give up on you and believe your symptoms. It will be the best decision you have ever made to get your life back.
Any stabbing pains? feel like yor nerve gets "plucked", retching/gag reflex, sore throat, chronic headaches?
Any stabbing pains? feel like yor nerve gets "plucked", retching/gag reflex, sore throat, chronic headaches?
Thanks for your response:
Here are my symptoms...
1. itchy eyes dry eyes
2.very dry hair (falling out)
3.Dry mouth and lips (I have to lube them everyday and I get very thirsty)
3.chronic staph infections since 2004.( I was put on Apo Chephalix for two.five years and then taken off..i have tried most antibiotics for the staphs, now I only get them on my face, and a small amount of times on my chest..
4.numbness in my feet and arms (the odd time)
5.extreme fatigue at times ( I have gotten my blood work done about thirty times since 2004 and everything has come back ok, I am a vegetarian.
6.Very painful menstrations since Grade 9. (first,2nd,and fouth day, a few years ago i had a day added on which gives me a six day period. i take aleve for the pain or I'll be at the hospital.
7.I feel something travelling up my back but like I said it only lasts for maybe five seconds..and then it dissapears.It feels like it's living in there or something.it happens once a month.
8.I have had anal and vaginal fissures now for the last year for 365 days a year. They do not disappear ever..I had an operation done about eight months ago to fix an anal fissure..which didn't make much of a difference since I have them still.
9. I had to intervaginal xrays done and the first one came back with an enlarged uteral lining at 2.5 cm, she asked me to go back for a second appt, the results have come back and she wants me to go back for the results again Novemember 16th..(this is with my gynecologist). She advised me though that she doesn't think it's Lichen Sclerosi and that she would have to refer me to a "dermatologist" that appt is not until January.
All in all this will be the fifth doctor I am going to about my vaginal issues.
I have no idea if these are all tied together or what is happening but I can't keep taking time off work to go to doctor's appt. and last but not least is the sex part..that is soo non existant..it hurts to have sex.I can't pretend that it doesn't hurt so we can't. It feels like "blockage" ...
that has been about two years now.
I will also like to mention that I tried "Clobestol, Estradiol and Testosterone as directed to try and help the Lichen Sclerosis (a different gyno told me I had that) but it never got rid of the "blockage when trying to have sex" or the fissures so I stopped taking it. Let me know if you think of anything? Thanks for listening.
Here are my symptoms...
1. itchy eyes dry eyes
2.very dry hair (falling out)
3.Dry mouth and lips (I have to lube them everyday and I get very thirsty)
3.chronic staph infections since 2004.( I was put on Apo Chephalix for two.five years and then taken off..i have tried most antibiotics for the staphs, now I only get them on my face, and a small amount of times on my chest..
4.numbness in my feet and arms (the odd time)
5.extreme fatigue at times ( I have gotten my blood work done about thirty times since 2004 and everything has come back ok, I am a vegetarian.
6.Very painful menstrations since Grade 9. (first,2nd,and fouth day, a few years ago i had a day added on which gives me a six day period. i take aleve for the pain or I'll be at the hospital.
7.I feel something travelling up my back but like I said it only lasts for maybe five seconds..and then it dissapears.It feels like it's living in there or something.it happens once a month.
8.I have had anal and vaginal fissures now for the last year for 365 days a year. They do not disappear ever..I had an operation done about eight months ago to fix an anal fissure..which didn't make much of a difference since I have them still.
9. I had to intervaginal xrays done and the first one came back with an enlarged uteral lining at 2.5 cm, she asked me to go back for a second appt, the results have come back and she wants me to go back for the results again Novemember 16th..(this is with my gynecologist). She advised me though that she doesn't think it's Lichen Sclerosi and that she would have to refer me to a "dermatologist" that appt is not until January.
All in all this will be the fifth doctor I am going to about my vaginal issues.
I have no idea if these are all tied together or what is happening but I can't keep taking time off work to go to doctor's appt. and last but not least is the sex part..that is soo non existant..it hurts to have sex.I can't pretend that it doesn't hurt so we can't. It feels like "blockage" ...
that has been about two years now.
I will also like to mention that I tried "Clobestol, Estradiol and Testosterone as directed to try and help the Lichen Sclerosis (a different gyno told me I had that) but it never got rid of the "blockage when trying to have sex" or the fissures so I stopped taking it. Let me know if you think of anything? Thanks for listening.
Also look into Human Granuloma Ehrlichiosis, another Lyme coinfection. Some of these cause cell aptosis (programmed cell death) and others cause fibroid type cysts.
I would venture Bartonella. It's an intracellular chronic bacterial infection. You MIGHT actually have Lymes. Don't need a tick bite to get it. Can you give me a rundown on your COMPLETE symptoms? Even if minor. I might be able to help.
For starters, the enlarged uterus may not be associated with the LS. That sounds like adnymyosis. This is where the linning of the uterus infiltrates into the muscle wall of the uterus.
This article explains what the biopsy results of LS are:
http://en.wikipedia.org/wiki/Lichen_sclerosus
Sounds similar to your biopsy results.
This article explains what the biopsy results of LS are:
http://en.wikipedia.org/wiki/Lichen_sclerosus
Sounds similar to your biopsy results.
Have an Answer?
You are reading content posted in the Autoimmune Disorders Community
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
