Michelle,
Welcome to the forum, and congratulations on getting a diagnosis and some answers finally! I don't know what the correlation with restless-leg-like symptoms is with dysautonomia, but it has been discussed on this forum before that by coincidence or not, some of do seem to have the same type of sleep problems with those type of symptoms. I do take Trazodone at night, which has enabled me to sleep without kicking holes in my sheets. (Yes, I kicked straight THROUGH the sheets--yikes!)
I believe Klonopin has been studied as a treatment for syncope. Maybe discuss this with your doctor in considering whether to pursue long term treatment with Klonopin. (Also be aware that careful tapering may be necessary to discontinue the Klonopin when you want to go off of it due to something called "benzodiazepine withdrawal." This is something else you may want to take into consideration. See here:
http://www.druglib.com/abstract/ma/marquez-mf_gac-med-mex_20081100.html
http://www.ncbi.nlm.nih.gov/pubmed/10087545?dopt=Abstract
http://en.wikipedia.org/wiki/Benzodiazepine_withdrawal_syndrome
You mention fluid leaking from your ears. In the absence of a tear in your tympanic membrane or PE tubes, your middle ear should be a closed system (from your outer ear, that is--it is open internally via the Eustachian tube) and fluid should not be able to escape out into your outer ear. Your outer ear has cerumen ("ear wax") as a self-cleaning mechanism. What kind of fluid was leaking from your ears? Were you having some sort of medical problem involving your ears? Is this separate from what you describe when you talk about fluid moving around in your ears? Did you see an ENT (ear, nose, and throat specialist doctor) about these problems? Sorry to ask so many questions; this just raises red flags for me and I hope you've had it properly checked out by a doctor so you're not putting your hearing at risk.
I have just been diagnosed with Neurocardiogenic syncope. As I was reading your post it sounded so much like me. My doctor said that I have probably had this all my life, but
no one ever diagnosed it.
You said that you were told to see a shrink. I really was getting ashamed to say how I felt. I thought I had become a hypochondriac.
How long did it take before you started feeling better with your meds? I seem to be feeling better each day. Today was day 7 on Midodrine.
sewsweet
Michelle has not been on posting since last year, it looks like, but hopefully others who are currently active on the forum will be able to give you some input!
This is an old ("dead") thread on our forum from over a year ago. I would like to encourage you to start a new thread of your own and introduce yourself to the forum so that your post can get the attention it deserves, rather than being buried at the bottom of an outdated thread. To do this, go to our forum and click on the green "Post a Question" button. Thanks!!
-heiferly
http://www.medhelp.org/forums/Dysautonomia-Autonomic-Dysfunction/show/266
Just a note that I too can relate to being told to see a shrink!! let me recommend another avenue--contact a EAR specialist--not an ENT. ENTs are general ear,nose,throat. Reason I say this I kept having sudden balance/hearing loss for MANY years. Finally an ENT referred me to an EAR specialist. He finally really started listening to what I and my wife(RN-BSN) told him. Finally had someone tell me that YES it is in the head but not like psycho head. If you or a anyone you know ever experience sudden hearing/balance loss/disorder-bypass the ENT and go Straight to the specialist!! I finally had sudden hearing loss after moving and had a cochlear implant surgery that was MAJORLY BOTCHED. Implant failed, COMPLETE loss of balance-Specialist at UT-Southwestern in DALLAS performed a sucessful implant-(miracle in fact that implant was GEATLY improved on one I was supposed to have a year earlier). Dr Peter Roland indicated that it appeared that prior Dr attempted to go into the incorrect nerve 7th or 8th (I cannot recall which was incorrect one). However, caused complete loss of vestibular balance and only had visual balance-must use cane-must be well lit when walking, no dark rooms, etc-sudden falls, etc, I now live with now. I realize mine not related to cardio. However, I was told by one Dr =seriously to go buy Everclear Alcohol to deal with my problems 20+ years earlier!!! Do not give UP!!!