Aa
I have a pituiary tumor
I have a pituitary tumor, and found out about it in oct of 2009.. I am 23 years old but has had problems with my hormones since i was 13. I am seeing a endocrinologist and i have frequent lab work done and it has shown my prolacin levels are high. My MRI has shown that my tumor is size 0.9. I have many of the symptoms of the tumor and one of the biggest ones is weight gain. Do u think that i should seek a different dr?
If you have lost vision, odds are part of your tumor has wrapped itself around the optic nerve. That part will be inoperable so you need a great surgeon that will get tumor around it, but not hit the nerve.
Your tumor is not quite a macro-adenoma, but it sounds like it grew upwards.
Did you try dostinex?
Your tumor is not quite a macro-adenoma, but it sounds like it grew upwards.
Did you try dostinex?
Thanks everyone!! I have lost most of my peripheral vision in my right eye. I have heavy periods, breast discharge, headaches, weight gain. I am on MedRoxy and i have tried bromocriptine and it didnt work! I am going to b seeking a neuro-surg in Iowa CIty most of my doctors are there and i have had great success with them!
Typically, a prolactinoma can be treated with one of the medications that is out there. If the medication is not tolerated or the tumor is not shrinking, then you have to think about surgery.
This is where you really really need experience. For me, my surgery was super easy - I had a very experienced surgeon and I did have to travel to him, but I walked out of the hospital and walked to the hotel as I felt great. I had no packing - that is something only some surgeons do - so you have to ask around. I wanted none of that. I also did not have a lumbar drain - that is rare for surgeons to do.
After surgery, yes, you would have to take at least thyroid forever and some other hormones temporarily - but with a bad surgeon - you would take a ton of them. Of course, it can be the tumor, not the surgeon as well. Get the best surgeon you can! I have seen people die after surgery for awful one - as well as strokes and loss of vision.
Hopefully you have a good neuro-endo who can work with you and the medications first.
This is where you really really need experience. For me, my surgery was super easy - I had a very experienced surgeon and I did have to travel to him, but I walked out of the hospital and walked to the hotel as I felt great. I had no packing - that is something only some surgeons do - so you have to ask around. I wanted none of that. I also did not have a lumbar drain - that is rare for surgeons to do.
After surgery, yes, you would have to take at least thyroid forever and some other hormones temporarily - but with a bad surgeon - you would take a ton of them. Of course, it can be the tumor, not the surgeon as well. Get the best surgeon you can! I have seen people die after surgery for awful one - as well as strokes and loss of vision.
Hopefully you have a good neuro-endo who can work with you and the medications first.
I can tell you a little about my experience. I had surgery in April 2010 to remove a pituitary tumor that was 1.5×1.5×1.5 mm. Very tiny tumor, but then the pituitary is tiny itself. My first symptom was loss of my period. My gyno put me on bromocriptine,which I couldn't tolerate. After an MRI I was sent to see a neurosugeon. He told me I could leave it but there could be problems with my vision. My prolactin was 68, which is high but doesn't indicate a prolactinoma. He thought it was more likely "stalk effect." The surgery itself worked. I was in the hospital for 7 days, had a lumbar drain & nasal packing. I know that the TSA is far less complicated but THIS IS A MAJOR SURGERY. Before I had it done I read all this stuff about people go back to work after 2 weeks..... not the case with me. Also the ENT who assisted with the operation had to see me once a week for a debrivement (6 times turned into 15 times). I'm now working wth an Endo. I'm on thyroid meds & prednisone to replace Cortisol. The Endo said he's not going to say for certain but the surgery may have wiped out my pituitary permanetly. Its been along road. I went to a major medical center in my area after doing a lot of research. My biggest suggestion to you is if you don't feel like your doctor is listening seek a second opinion. And if you have the surgery make sure you have someone you trust to advocate for you in the hospital.
depends. u didnt mention ur doctors opinion. is it .9mm or .9 cm. .9 cm is a decent size i think that would be 9 mm which is large. ..9 mm is smalll. either way, all pit tumors can cause symptoms. if any doc disagrees keep searching. i myself have been to atleast 10 docs who wouldnt help me, and one told me yesterday that the 2mm tumor i have is like a pimple on my butt,and he wants me to leave if thats what icam to get help for. he said any doc whod remove it would be doing malpracticce. this was a doc i thought was open minded. this guy was begging me to take trt..so i left.
just know there are probably good docs out there.
just know there are probably good docs out there.
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