Aa
prolactin levels / pituitary tumor
Just out of curiosity, for those of you with pituitary tumors...
What were your initial readings of prolactin before treatment?
What else was effected in your body by your tumor?
What are they now and what treatment are you doing and for how long?
What were your initial readings of prolactin before treatment?
What else was effected in your body by your tumor?
What are they now and what treatment are you doing and for how long?
Mine was 163 at diagnosis -- tumor 6-7 mm
Symptoms in hindsight were low libido, crazy mood swings, hot flashes, achey all over, headaches with aura. The breasts were leaking. Weight gain .Dizziness. Blood pressure up and heart rate slow.
Now prolactin is 15 after 6 months on cabergoline. 0.75 mg twice weekly. Started Synthroid 6 weeks ago.. Beginning to feel human.:)
Symptoms in hindsight were low libido, crazy mood swings, hot flashes, achey all over, headaches with aura. The breasts were leaking. Weight gain .Dizziness. Blood pressure up and heart rate slow.
Now prolactin is 15 after 6 months on cabergoline. 0.75 mg twice weekly. Started Synthroid 6 weeks ago.. Beginning to feel human.:)
Julie. Have you been tasted for Cushing's disease? Have you done 24 hour cortisol, saliva midnight tests, and dexamethasone test? If not, you should ask your endocrinologist order those tests. I hope you feel better.
It is more helpful to start a new thread so your story is not mixed with a bunch of others.
We are patients - not doctors or nurses on this site.
I can tell you from my experience though - I had a similar tumor. I also happened to have (and still have) and enlarged lymph node. Why is your doctor sending you to a surgeon? Surgery is not the treatment or rather the first treatment for a prolactinoma? It can be treated with medications. So you need to find a pituitary center and a proper pituitary endo - a neuro-endo - to monitor your health. Only in the cases where the medications do not work do you move on to surgery. And you would go on to an experienced pituitary surgeon, not just any surgeon. With your vision issues you also need a neuro-optho, but your tumor is too small really to cause visual issues. It can cause headaches and migraines can cause visual issues. I know mine do.
As for the lymph node in your neck, my best guess is that it is most likely unrelated. You should see an ENT and get an FNA (fine needle aspiration biopsy) for a check.
Please let us know how it all works out.
We are patients - not doctors or nurses on this site.
I can tell you from my experience though - I had a similar tumor. I also happened to have (and still have) and enlarged lymph node. Why is your doctor sending you to a surgeon? Surgery is not the treatment or rather the first treatment for a prolactinoma? It can be treated with medications. So you need to find a pituitary center and a proper pituitary endo - a neuro-endo - to monitor your health. Only in the cases where the medications do not work do you move on to surgery. And you would go on to an experienced pituitary surgeon, not just any surgeon. With your vision issues you also need a neuro-optho, but your tumor is too small really to cause visual issues. It can cause headaches and migraines can cause visual issues. I know mine do.
As for the lymph node in your neck, my best guess is that it is most likely unrelated. You should see an ENT and get an FNA (fine needle aspiration biopsy) for a check.
Please let us know how it all works out.
Hello, All.
I was just diagnosed with a microadenoma on Tuesday after getting my MRI results back. I was having ammenorhea, milk production (not pregnant), decreased libido, headaches, floaters in peripheral vision, and a swollen gland in my neck. I went to my PCP and had a thyroid scan, finding my thyroid was fine. They did find a swollen lymp node, but said it was no suspicious for malignancy. Then they ran the prolactin level in it is 60. Had the MRI, and I have a 6mm tumor on the right side. I am already having decreased vision and worsening headaches. I hear that most of these are benign. I do not get to see the Neurosurgeon until the 17th and am just very fearful. Should I be concerned? I worry most about the enlarged node and swelling to my neck, makes me worry that it might be cancerous. Anybody else experienced the enlarged node with the microadenoma?
I was just diagnosed with a microadenoma on Tuesday after getting my MRI results back. I was having ammenorhea, milk production (not pregnant), decreased libido, headaches, floaters in peripheral vision, and a swollen gland in my neck. I went to my PCP and had a thyroid scan, finding my thyroid was fine. They did find a swollen lymp node, but said it was no suspicious for malignancy. Then they ran the prolactin level in it is 60. Had the MRI, and I have a 6mm tumor on the right side. I am already having decreased vision and worsening headaches. I hear that most of these are benign. I do not get to see the Neurosurgeon until the 17th and am just very fearful. Should I be concerned? I worry most about the enlarged node and swelling to my neck, makes me worry that it might be cancerous. Anybody else experienced the enlarged node with the microadenoma?
Good luck with your MRI. Start a new thread and let us know how it goes. It is confusing in this one with too many stories of too many people.
Have an Answer?
You are reading content posted in the Brain/Pituitary Tumors Community
Here are 15 ways to help prevent lung cancer.
New cervical cancer screening guidelines change when and how women should be tested for the disease.
They got it all wrong: Why the PSA test is imperative for saving lives from prostate cancer
Everything you wanted to know about colonoscopy but were afraid to ask
A quick primer on the different ways breast cancer can be treated.
Get the facts about this disease that affects more than 240,000 men each year.
