I would keep a journal... the monitor will give an idea. Just make sure you do normal activities on the monitor (take a shower before you go as you cannot with the monitor on and wear a shirt that buttons on the front). Journal events during the monitor too.
Let us know how it goes!
Okay so last Sunday I ended up at the ER again. About the same symptoms as last time with the exception of this time I had a massive headache, it started off pretty light. Tension headache so I blew it off, pounded a bunch of water to see if it would go away. It didnt. Late afternoon it got a whole lot worse. Went to my buddies house we watched some Comedy Central I was eating "Cheese Its". Left by 1100pm, I only live down a few blocks. Got home walked up the stairs into my house, then to my bedroom. Got instant nausea. Was going to head to bed, but definitely wasnt going to be able to go to sleep with this headache and nausea so was gonna just drive myself to the hospital to see if they could get rid of these 2 symptoms.
Well I walked back outside on my way down the stairs I noticed my nose cleared up completely, thought to myself thats kinda weird. Continued through parking lot to my car as Im walking toward it. BAM! shock hits my left side of chest. Stopped me, got more nauseated. At same time my knees got very weak felt like i was going to collapse. Immediately pulled out my phone and called my buddy. By this time had shortness of breath. Was breathing normal just wasn't getting the air ..what it felt like anyways.
Long story short he called the ambulance since they are only a few more blocks down from us, how convenient huh? hehe They didnt know what to tell me, my headache went away within the an hour or so of being there but they gave me some heavy antiinflammatories in an IV sent me home.
So rumpled I believe you just may be correct on this whole POTS deal. It seems to definitely be some sort of "Orthostatic Intolerance". I have seemed to have acquired a few tools to check myself out so Ive been playing around with them.
I always check my blood pressure in the evening, before bed especially. Before I left to the hospital my blood pressure was 150/102 heartrate was 102.
laying down seems to help blood pressure. each time i have been to hospital it calms down of course the hospital when u go in by ambulance your laying down.
So tonight I have tried a few tests of my own. This is what I have noticed.
Waking up in the morning my blood pressure and heart rate is "ideal"
BP is under 120/80 heart rate is around 65.
When I stand up I usually get lightheadedness... "you stood up too fast" feeling. Get that often. Well my blood pressure drops and my heart rate jumps up so far its been over 100. My last recorded was actually 108 standing in my living room. But if i continue to move around or stay standing my blood pressure rises with time standing this is also with sitting. But laying down my blood pressure always is fine.
On Tuesday the doctor has put in for my to see Internal Medicine to get a 24 hour heart monitor. He wants to view what my heart is doing over a period of time. I dont know if this will show much maybe just my heartrate jumping around?
Anyways, Neurologist is Friday and "Stress test" is 4th of June. So more updates later.
I feel pretty positive you are right about this at least the right direction.
I guess we would be better off hysterical. But then I would probably just get xanax and prozac.
Ah...
lol!
yeah i have an odd sense of humor too! Im also naturally very calm in situations most people are freaking out in. So when my arms going numb and breathing got hard... I knew exactly what my body was doing so I got it under control soon as i realized how i began to act .. so I was able to be very calm for paramedics when they arrived. In my head I thought i was going to pass out of stop breathing completely. But I knew to keep my head together so they could know what was going on cuz im the only one who knew. So Im sure when u arrive at the hospital they ask paramedics "how was the patient when u arrived" ... "seemed fine, calm"
***** but i will find the answer to this hopefully before it does any damage to anything.. especially if nerve related. I really want to go running again like I used to, Im so close to just going back to doing my exercises like i use to and when I collapse on the side of the road.. it wont be so funny then ... trying to prevent all the drama of that and just get the issue fixed but they arent on my pace of getting this fixed
Alas, they have to remove the horses before they can even contemplate a zebra even if the patient is blatantly stripey. That adage about hoofbeats being horses and not zebras is pounded into them.
It is the rare doctor that looks for the source of the issue now, most just look for a pill that solves the issue. Hence why I see doctors out of network and pay myself for some of them to get an *gasp* actual thinking doctor. I also travel far and wide - have tumor, will travel is my motto. I also have a very inappropriate sense of humor (which oddly, some doctors see as health... ack! instead of coping).
yeah alot of the things we have been trying doesnt make sense to me either. It is a military doctor im sure he has been doing this awhile but im also pretty sure he is not an MD. Thats probably why he wants Neurologists opinion. He seems like he is mostly doing process of elimination. Eliminating the most common things he sees all the time which is ridiculous because its taking forever and im getting worse.
Alot of the things you talk about make more sense. These blood pressure meds as they do lower my blood pressure and heartrate like they should. Still doesnt solve the problem just covers it up, just like when they were sending me to the pain clinic to get anesthesia injections into my nerves in back to relieve the pain which was never successful.
If he doesnt start testing things that make sense instead of repeating these EKGs and cover up meds. I will go above him. If I must ill go see another doc without my insurances approval tho ill have to pay out of pocket least Ill get results from an actual MD doctor.
Thanks again rumpled, I will write what u said down and see if we can get that stuff tested next week when i see him again.