Aa
small 2mm hyperintense
Hello,
Im a 22yr male. once very athletic in my prior days before i decided to join the military. Anyways, everytime I get seen I feel like im getting blown off and told everything is okay. Im no hypercondriac, but i do require answers. Especially after this past episode which led me to my first ride in an ambulance and IV and heavy meds to make the pain go away.
So ive tried searching all over google trying to find someone with similar questions or answers for this MRI. Anyways, Ill just start off with the last episode and a few symptoms here.
To keep a long story very short and sweet.
I got off work, was standing talking on the phone with a friend in my bedroom. Got some very weird sensations in body. started with a "shockwave" of pain through body almost made me sick to my stomach and happened very fast and went away. seconds later happens again. I get cold feeling underneath left lower ribcage, lose sensation in my mid back. that sensation shot up my neck to the center top of head. By the time paramedics arrived at my house I had a loss of sensation in my arms and legs(knee and below) as well. Took me to hospital shot me up with heavy pain meds and antiinflammatories and said it was a back spasm and sent me home.
Follow up with a doc on base. Ordered Brain/Thoracic spine MRIs to check for MS and something else not sure. I received the brain MRIs only so far and here is how it reads. I have the disc with images if anyone would like to see.
just looking for input, i have no family history of any illness, no allergies, ive been healthy all my life and pretty athletic.
here is the MRI "FINDINGS":
" There is no acute intracranial hemorrhage or infarction.
On the FLAIR and T2 weighted images, there is a single, tiny, punctate, mildly hyperintense 2mm focus of increased signal at the right frontal deep white matter (axial image 14). There is no appreciable mass effect or enhancement associated with this focus. The remainder of the brain, cerebellum, and brainstem are unremarkable. No abnormal enhancement. The ventricular and extraaxial spaces are unremarkable. Flow voids within the major intracranial arteries are grossly unremarkable. Orbits and globes are unremarkable. The sinuses and nasopharynx and mastoid air cells are clear. "
anyone got anything? ill be seeing my doc Monday
I just like multiple opinions
Thanx
Im a 22yr male. once very athletic in my prior days before i decided to join the military. Anyways, everytime I get seen I feel like im getting blown off and told everything is okay. Im no hypercondriac, but i do require answers. Especially after this past episode which led me to my first ride in an ambulance and IV and heavy meds to make the pain go away.
So ive tried searching all over google trying to find someone with similar questions or answers for this MRI. Anyways, Ill just start off with the last episode and a few symptoms here.
To keep a long story very short and sweet.
I got off work, was standing talking on the phone with a friend in my bedroom. Got some very weird sensations in body. started with a "shockwave" of pain through body almost made me sick to my stomach and happened very fast and went away. seconds later happens again. I get cold feeling underneath left lower ribcage, lose sensation in my mid back. that sensation shot up my neck to the center top of head. By the time paramedics arrived at my house I had a loss of sensation in my arms and legs(knee and below) as well. Took me to hospital shot me up with heavy pain meds and antiinflammatories and said it was a back spasm and sent me home.
Follow up with a doc on base. Ordered Brain/Thoracic spine MRIs to check for MS and something else not sure. I received the brain MRIs only so far and here is how it reads. I have the disc with images if anyone would like to see.
just looking for input, i have no family history of any illness, no allergies, ive been healthy all my life and pretty athletic.
here is the MRI "FINDINGS":
" There is no acute intracranial hemorrhage or infarction.
On the FLAIR and T2 weighted images, there is a single, tiny, punctate, mildly hyperintense 2mm focus of increased signal at the right frontal deep white matter (axial image 14). There is no appreciable mass effect or enhancement associated with this focus. The remainder of the brain, cerebellum, and brainstem are unremarkable. No abnormal enhancement. The ventricular and extraaxial spaces are unremarkable. Flow voids within the major intracranial arteries are grossly unremarkable. Orbits and globes are unremarkable. The sinuses and nasopharynx and mastoid air cells are clear. "
anyone got anything? ill be seeing my doc Monday
I just like multiple opinions
Thanx
I was pretty brief in my last post of everything thats going on. I have a pretty good medical history of pains and symptoms but not quite as dramatic as the numbing of arms legs and back. But since the numbing ive had increased pain all over. forgetfulness, thirsty all the time, sometimes i get dotted rash on my arms or chest or my skin feels irritated, itchy.
Ive had so many blood tests done, xrays, MRIs.
From the research Ive done ive come to the conclusion of Lymes Disease or something equal to. If you research the symptoms, I have MANY of them. I can highlight a majority of these symptoms. Not saying i have it but its a great closest example i have to the symptoms i have as well as pains.
Anyways to answer your question. My doc didnt say anything about my MRI. He just got back from a leave period so I just updated him on whats been going on since the numbing. He did an EKG, to test heart. Said my heart is very healthy. I told him it doesnt feel healthy, feels like it skips beats all the time has a weird feeling in chest. Then he reviewed blood test they did on me blood test was fine, then ordered a thyroid test because he said i didnt have that done yet. Also referred me out to a Neurologist.
I asked him what he thinks likeliness for Lymes is for me. He asked where Ive lived. I responded. California, been to southern Cali for a few months, Arizona, Oregon, Florida, and now here in Washington. He said not likely but hes gonna test that too.
Now just waiting on results not sure how long itll take them id guess a few days at most.
Ive had so many blood tests done, xrays, MRIs.
From the research Ive done ive come to the conclusion of Lymes Disease or something equal to. If you research the symptoms, I have MANY of them. I can highlight a majority of these symptoms. Not saying i have it but its a great closest example i have to the symptoms i have as well as pains.
Anyways to answer your question. My doc didnt say anything about my MRI. He just got back from a leave period so I just updated him on whats been going on since the numbing. He did an EKG, to test heart. Said my heart is very healthy. I told him it doesnt feel healthy, feels like it skips beats all the time has a weird feeling in chest. Then he reviewed blood test they did on me blood test was fine, then ordered a thyroid test because he said i didnt have that done yet. Also referred me out to a Neurologist.
I asked him what he thinks likeliness for Lymes is for me. He asked where Ive lived. I responded. California, been to southern Cali for a few months, Arizona, Oregon, Florida, and now here in Washington. He said not likely but hes gonna test that too.
Now just waiting on results not sure how long itll take them id guess a few days at most.
Lyme is very tricky - had a few friends with it and some got it bad. A negative test does not mean you do not have it - testing is not reliable.
Good luck with the neuro.
Good luck with the neuro.
All tests are normal on my thyroid and Lymes as well.
Lymes test they tested like 10 strands didnt do the entire test because said it was uneeded since the first 10 came back negative so no point...
Talked to my friend who does in fact have Lymes, Im gonna see if i can get over to LabCorp they have a test apparently that tests results are close to 90% correct. My friend said the same thing you are saying too Rumpled. Just cuz its negative does not mean you do not have it.
These past 3 days Ive noticed high blood pressure and well as hearrate jumping around. With even small amounts of exertion feels like i just ran a marathon for how fast my hear rate jumps up sometimes. I bought I small heart rate blood pressure monitor have been keeping log of it.
No word on Neurology, wont see them for about 3 weeks thats how far they are scheduling out. Gonna keep trying for appts. tho. Ill update soon as anymore comes up.
Lymes test they tested like 10 strands didnt do the entire test because said it was uneeded since the first 10 came back negative so no point...
Talked to my friend who does in fact have Lymes, Im gonna see if i can get over to LabCorp they have a test apparently that tests results are close to 90% correct. My friend said the same thing you are saying too Rumpled. Just cuz its negative does not mean you do not have it.
These past 3 days Ive noticed high blood pressure and well as hearrate jumping around. With even small amounts of exertion feels like i just ran a marathon for how fast my hear rate jumps up sometimes. I bought I small heart rate blood pressure monitor have been keeping log of it.
No word on Neurology, wont see them for about 3 weeks thats how far they are scheduling out. Gonna keep trying for appts. tho. Ill update soon as anymore comes up.
Are they testing your adrenal hormones and your heart as far as tilt table (EKG only goes so far) ? Renin, aldosterone, sodium and potassium can impact your blood pressure. You can even have POTS.
Oddly, I need more salt to keep my heart in check... my bp gets too low.
Oddly, I need more salt to keep my heart in check... my bp gets too low.
so far Ive been in for 3 blood draws. the first time they took about 5 viles, the second time they took about 9, the last time was the thyroid and Lymes test.
Ive noticed that around 5pm or on until about midnight timeframe.. all symptoms WILL act up for sure. Blood pressure rises pretty high usually the highs in Stage 1 Hypertension. Have made it too Stage 2 a few times now. But heart rate always varies with blood pressure. I usually start noticing chest pain and soon as i take blood pressure its pretty high and when chest pain goes down so does blood pressure so its real easy to tell when its up. But heartrate sometimes will be really high for resting when BP isnt or sometimes up real high when it is. Doesnt matter if im sitting here on my PC or couch or moving around the house.
This past Friday I ended up running over to the hospital around 10 or 11am before I was about to eat.. I had some chest pain and tightness, tried to blow it off.. then within 10 minutes as i was walking around in my shop my stomach instantly gets nauseated then throat feels like its swelling up just under jaw, then I got some shooting pains in right upper arm so decided i needed to go to hospital. Got there about 12 mins later, was real hard to catch breath didnt run or anything. BP was about 150/110 with heartrate of 114. Put me on my 3rd EKG saying its fine, drew some blood. Honestly cant remember what they tested with that vile. They put me on an IV "just in case" then injected some nausea medicine into it and gave me a "GI cocktail" and that was it. I layed on the bed for little over 3 hours before they let me go. They let me go after my vitals got a little lower.
So they scheduled me an appt. to see my primary care provider and pretty much told me i dont have a choice Im going to see him. So Ill see him in about 12 hours from now.
Im going to look up a few of the things ur talking about and see what matches up and ask my doc about them. As well as ask him for a test done over at LabCorp to do the CD57 test. To test the NK cells in my blood. If they come out low, then its suppose to be Lymes or so I read.
Also Ive had 2 people mention to me Hypoglycemia, so I went ahead and bought the OneTouch tester and been testing myself. According to the book my glucose levels are outstanding.
and too finish this off. I dont know if this has anything to do with anything. But I find it very odd that my roommate has a little dog who tends to shake from time to time usually at night. The house is pretty warm some of the times. But after my little episode on Friday.. come saturday night my roommates dog started having seizure or stroke like symptoms late in the afternoon. He was breathing hard, wouldnt blink his eyes at one point. was laying on his side we tried standing him up and he would just do a stumble walk till he fell back over. According to the vet his temp was a tiny bit over normal. He injected him with pain kills and stuff. He said he is going to keep the dog one more night to draw some blood. He told us he isnt sure. Could be epilepsy, seizures, stroke, or some kind of infection. Like i said not sure maybe I gave him something or he brought something into me. Or maybe me n the dog have completely different things going on. Just found it odd it happened like that.
Thanks again rumpled for ur inputs.
Ive noticed that around 5pm or on until about midnight timeframe.. all symptoms WILL act up for sure. Blood pressure rises pretty high usually the highs in Stage 1 Hypertension. Have made it too Stage 2 a few times now. But heart rate always varies with blood pressure. I usually start noticing chest pain and soon as i take blood pressure its pretty high and when chest pain goes down so does blood pressure so its real easy to tell when its up. But heartrate sometimes will be really high for resting when BP isnt or sometimes up real high when it is. Doesnt matter if im sitting here on my PC or couch or moving around the house.
This past Friday I ended up running over to the hospital around 10 or 11am before I was about to eat.. I had some chest pain and tightness, tried to blow it off.. then within 10 minutes as i was walking around in my shop my stomach instantly gets nauseated then throat feels like its swelling up just under jaw, then I got some shooting pains in right upper arm so decided i needed to go to hospital. Got there about 12 mins later, was real hard to catch breath didnt run or anything. BP was about 150/110 with heartrate of 114. Put me on my 3rd EKG saying its fine, drew some blood. Honestly cant remember what they tested with that vile. They put me on an IV "just in case" then injected some nausea medicine into it and gave me a "GI cocktail" and that was it. I layed on the bed for little over 3 hours before they let me go. They let me go after my vitals got a little lower.
So they scheduled me an appt. to see my primary care provider and pretty much told me i dont have a choice Im going to see him. So Ill see him in about 12 hours from now.
Im going to look up a few of the things ur talking about and see what matches up and ask my doc about them. As well as ask him for a test done over at LabCorp to do the CD57 test. To test the NK cells in my blood. If they come out low, then its suppose to be Lymes or so I read.
Also Ive had 2 people mention to me Hypoglycemia, so I went ahead and bought the OneTouch tester and been testing myself. According to the book my glucose levels are outstanding.
and too finish this off. I dont know if this has anything to do with anything. But I find it very odd that my roommate has a little dog who tends to shake from time to time usually at night. The house is pretty warm some of the times. But after my little episode on Friday.. come saturday night my roommates dog started having seizure or stroke like symptoms late in the afternoon. He was breathing hard, wouldnt blink his eyes at one point. was laying on his side we tried standing him up and he would just do a stumble walk till he fell back over. According to the vet his temp was a tiny bit over normal. He injected him with pain kills and stuff. He said he is going to keep the dog one more night to draw some blood. He told us he isnt sure. Could be epilepsy, seizures, stroke, or some kind of infection. Like i said not sure maybe I gave him something or he brought something into me. Or maybe me n the dog have completely different things going on. Just found it odd it happened like that.
Thanks again rumpled for ur inputs.
POTS looks to be a VERY good possibility as well.
Will definitely bring it to the docs attention see what he thinks
Will definitely bring it to the docs attention see what he thinks
So depending on what I possibly may have. Whether its Lymes, POTS, or some adrenal hormones. How is blood pressure meds gonna effect this? Assuming it should help out reducing blood pressure and heart rate. Or if i have any of those will there be no change?
I asked about my previous blood results. Everything has come out "great" ...electrolytes he said came out a little bit low but they arent worried about that.
I asked about my previous blood results. Everything has come out "great" ...electrolytes he said came out a little bit low but they arent worried about that.
Did you get a copy? Always get copies - of everything.
That was low at the time of test, not when you were feeling wonky!
They may have no idea about the adrenals. Few do. Are they sending for a tilt table test?
The med they will give you may not be a typical beta blocker but something to replace aldosterone.
That was low at the time of test, not when you were feeling wonky!
They may have no idea about the adrenals. Few do. Are they sending for a tilt table test?
The med they will give you may not be a typical beta blocker but something to replace aldosterone.
I usually have to wait to get my test results about a week but I definitely have gotten copies of everything so far.
So If my blood pressure and heartrate get worse and symptoms act up more in the afternoon I should try and get them to do all those kinds of tests around those times because usually my appointments are in the morning time or around lunch not later in the afternoon when Im feeling "wonky".
I asked him about that or orthostatics, I showed him my logs of blood pressure and heartrates for the past 5 days when I bought the BP monitor. But he still insisted on me taking the blood pressure medication and taking Motrin because my body is tender all over which he says inflammation.
He wants to see me after a week on these meds then have me come back in and see if any improvement. Ill see a neurologist within 3 weeks hopefully sooner than that. If I cant get my primary care to get me any of these tests Ill get the neurologist to.
Ill let u know what they say or if anything new comes about!
So If my blood pressure and heartrate get worse and symptoms act up more in the afternoon I should try and get them to do all those kinds of tests around those times because usually my appointments are in the morning time or around lunch not later in the afternoon when Im feeling "wonky".
I asked him about that or orthostatics, I showed him my logs of blood pressure and heartrates for the past 5 days when I bought the BP monitor. But he still insisted on me taking the blood pressure medication and taking Motrin because my body is tender all over which he says inflammation.
He wants to see me after a week on these meds then have me come back in and see if any improvement. Ill see a neurologist within 3 weeks hopefully sooner than that. If I cant get my primary care to get me any of these tests Ill get the neurologist to.
Ill let u know what they say or if anything new comes about!
when i get hungry its usually sudden. Like out of nowhere instantly hungry. Its not salt that I crave. Its usually high carb meals or high sugar like ice cream..Ive had very high craving for this place close to me they serve Chicken and Beef Teriyaki served with rice.. craving it ALL the time. I try hard to beat these urges and go for salads but sometimes just doesnt do it for me.
I have a question. I have my Thyroid results says Thyroid panel (T4+TSH). Im trying to understand Thyrotropin. Thyrotropin result came back as 0.59 and reference range is 0.34 - 4.82 .. My Thyroxine Free came in as 0.89 range is 0.56 - 1.40
Is this normal for a 22 yr old male athlete ?
Also I looked through my medical record. As of December 2008. My blood pressure readings were much much lower compared to now. After 26 March when I had the whole incident with paramedics and my back arms legs losing sensation and breathing getting difficult along with the right arm feeling cold inside. My resting blood pressure and heartrate have been pretty high everyday since then.
Is this normal for a 22 yr old male athlete ?
Also I looked through my medical record. As of December 2008. My blood pressure readings were much much lower compared to now. After 26 March when I had the whole incident with paramedics and my back arms legs losing sensation and breathing getting difficult along with the right arm feeling cold inside. My resting blood pressure and heartrate have been pretty high everyday since then.
They do not make ranges by M vs F or by body type. But your doc is running the worst tests possible. TSH tests what the pituitary is telling the thyroid to do (and that is a mix of the old range and the new one, nice, not) and that T4 test is well, not the most useful one. Even so, for T4, when you are on meds at least, you should be at the high end, not the low. But your doc will say you are normal.
Better tests are to test the antibodies, to test the Free T3 and Free T4 (that tests what the thyroid is actually doing itself). Your TSH is in range for the .3 to 3. that is the new range.
For blood pressure, that is sodium, potassium, renin and aldosterone tests, that I know of.
Better tests are to test the antibodies, to test the Free T3 and Free T4 (that tests what the thyroid is actually doing itself). Your TSH is in range for the .3 to 3. that is the new range.
For blood pressure, that is sodium, potassium, renin and aldosterone tests, that I know of.
yeah alot of the things we have been trying doesnt make sense to me either. It is a military doctor im sure he has been doing this awhile but im also pretty sure he is not an MD. Thats probably why he wants Neurologists opinion. He seems like he is mostly doing process of elimination. Eliminating the most common things he sees all the time which is ridiculous because its taking forever and im getting worse.
Alot of the things you talk about make more sense. These blood pressure meds as they do lower my blood pressure and heartrate like they should. Still doesnt solve the problem just covers it up, just like when they were sending me to the pain clinic to get anesthesia injections into my nerves in back to relieve the pain which was never successful.
If he doesnt start testing things that make sense instead of repeating these EKGs and cover up meds. I will go above him. If I must ill go see another doc without my insurances approval tho ill have to pay out of pocket least Ill get results from an actual MD doctor.
Thanks again rumpled, I will write what u said down and see if we can get that stuff tested next week when i see him again.
Alot of the things you talk about make more sense. These blood pressure meds as they do lower my blood pressure and heartrate like they should. Still doesnt solve the problem just covers it up, just like when they were sending me to the pain clinic to get anesthesia injections into my nerves in back to relieve the pain which was never successful.
If he doesnt start testing things that make sense instead of repeating these EKGs and cover up meds. I will go above him. If I must ill go see another doc without my insurances approval tho ill have to pay out of pocket least Ill get results from an actual MD doctor.
Thanks again rumpled, I will write what u said down and see if we can get that stuff tested next week when i see him again.
Alas, they have to remove the horses before they can even contemplate a zebra even if the patient is blatantly stripey. That adage about hoofbeats being horses and not zebras is pounded into them.
It is the rare doctor that looks for the source of the issue now, most just look for a pill that solves the issue. Hence why I see doctors out of network and pay myself for some of them to get an *gasp* actual thinking doctor. I also travel far and wide - have tumor, will travel is my motto. I also have a very inappropriate sense of humor (which oddly, some doctors see as health... ack! instead of coping).
It is the rare doctor that looks for the source of the issue now, most just look for a pill that solves the issue. Hence why I see doctors out of network and pay myself for some of them to get an *gasp* actual thinking doctor. I also travel far and wide - have tumor, will travel is my motto. I also have a very inappropriate sense of humor (which oddly, some doctors see as health... ack! instead of coping).
lol!
yeah i have an odd sense of humor too! Im also naturally very calm in situations most people are freaking out in. So when my arms going numb and breathing got hard... I knew exactly what my body was doing so I got it under control soon as i realized how i began to act .. so I was able to be very calm for paramedics when they arrived. In my head I thought i was going to pass out of stop breathing completely. But I knew to keep my head together so they could know what was going on cuz im the only one who knew. So Im sure when u arrive at the hospital they ask paramedics "how was the patient when u arrived" ... "seemed fine, calm"
***** but i will find the answer to this hopefully before it does any damage to anything.. especially if nerve related. I really want to go running again like I used to, Im so close to just going back to doing my exercises like i use to and when I collapse on the side of the road.. it wont be so funny then ... trying to prevent all the drama of that and just get the issue fixed but they arent on my pace of getting this fixed
yeah i have an odd sense of humor too! Im also naturally very calm in situations most people are freaking out in. So when my arms going numb and breathing got hard... I knew exactly what my body was doing so I got it under control soon as i realized how i began to act .. so I was able to be very calm for paramedics when they arrived. In my head I thought i was going to pass out of stop breathing completely. But I knew to keep my head together so they could know what was going on cuz im the only one who knew. So Im sure when u arrive at the hospital they ask paramedics "how was the patient when u arrived" ... "seemed fine, calm"
***** but i will find the answer to this hopefully before it does any damage to anything.. especially if nerve related. I really want to go running again like I used to, Im so close to just going back to doing my exercises like i use to and when I collapse on the side of the road.. it wont be so funny then ... trying to prevent all the drama of that and just get the issue fixed but they arent on my pace of getting this fixed
I guess we would be better off hysterical. But then I would probably just get xanax and prozac.
Ah...
Ah...
Okay so last Sunday I ended up at the ER again. About the same symptoms as last time with the exception of this time I had a massive headache, it started off pretty light. Tension headache so I blew it off, pounded a bunch of water to see if it would go away. It didnt. Late afternoon it got a whole lot worse. Went to my buddies house we watched some Comedy Central I was eating "Cheese Its". Left by 1100pm, I only live down a few blocks. Got home walked up the stairs into my house, then to my bedroom. Got instant nausea. Was going to head to bed, but definitely wasnt going to be able to go to sleep with this headache and nausea so was gonna just drive myself to the hospital to see if they could get rid of these 2 symptoms.
Well I walked back outside on my way down the stairs I noticed my nose cleared up completely, thought to myself thats kinda weird. Continued through parking lot to my car as Im walking toward it. BAM! shock hits my left side of chest. Stopped me, got more nauseated. At same time my knees got very weak felt like i was going to collapse. Immediately pulled out my phone and called my buddy. By this time had shortness of breath. Was breathing normal just wasn't getting the air ..what it felt like anyways.
Long story short he called the ambulance since they are only a few more blocks down from us, how convenient huh? hehe They didnt know what to tell me, my headache went away within the an hour or so of being there but they gave me some heavy antiinflammatories in an IV sent me home.
So rumpled I believe you just may be correct on this whole POTS deal. It seems to definitely be some sort of "Orthostatic Intolerance". I have seemed to have acquired a few tools to check myself out so Ive been playing around with them.
I always check my blood pressure in the evening, before bed especially. Before I left to the hospital my blood pressure was 150/102 heartrate was 102.
laying down seems to help blood pressure. each time i have been to hospital it calms down of course the hospital when u go in by ambulance your laying down.
So tonight I have tried a few tests of my own. This is what I have noticed.
Waking up in the morning my blood pressure and heart rate is "ideal"
BP is under 120/80 heart rate is around 65.
When I stand up I usually get lightheadedness... "you stood up too fast" feeling. Get that often. Well my blood pressure drops and my heart rate jumps up so far its been over 100. My last recorded was actually 108 standing in my living room. But if i continue to move around or stay standing my blood pressure rises with time standing this is also with sitting. But laying down my blood pressure always is fine.
On Tuesday the doctor has put in for my to see Internal Medicine to get a 24 hour heart monitor. He wants to view what my heart is doing over a period of time. I dont know if this will show much maybe just my heartrate jumping around?
Anyways, Neurologist is Friday and "Stress test" is 4th of June. So more updates later.
I feel pretty positive you are right about this at least the right direction.
Well I walked back outside on my way down the stairs I noticed my nose cleared up completely, thought to myself thats kinda weird. Continued through parking lot to my car as Im walking toward it. BAM! shock hits my left side of chest. Stopped me, got more nauseated. At same time my knees got very weak felt like i was going to collapse. Immediately pulled out my phone and called my buddy. By this time had shortness of breath. Was breathing normal just wasn't getting the air ..what it felt like anyways.
Long story short he called the ambulance since they are only a few more blocks down from us, how convenient huh? hehe They didnt know what to tell me, my headache went away within the an hour or so of being there but they gave me some heavy antiinflammatories in an IV sent me home.
So rumpled I believe you just may be correct on this whole POTS deal. It seems to definitely be some sort of "Orthostatic Intolerance". I have seemed to have acquired a few tools to check myself out so Ive been playing around with them.
I always check my blood pressure in the evening, before bed especially. Before I left to the hospital my blood pressure was 150/102 heartrate was 102.
laying down seems to help blood pressure. each time i have been to hospital it calms down of course the hospital when u go in by ambulance your laying down.
So tonight I have tried a few tests of my own. This is what I have noticed.
Waking up in the morning my blood pressure and heart rate is "ideal"
BP is under 120/80 heart rate is around 65.
When I stand up I usually get lightheadedness... "you stood up too fast" feeling. Get that often. Well my blood pressure drops and my heart rate jumps up so far its been over 100. My last recorded was actually 108 standing in my living room. But if i continue to move around or stay standing my blood pressure rises with time standing this is also with sitting. But laying down my blood pressure always is fine.
On Tuesday the doctor has put in for my to see Internal Medicine to get a 24 hour heart monitor. He wants to view what my heart is doing over a period of time. I dont know if this will show much maybe just my heartrate jumping around?
Anyways, Neurologist is Friday and "Stress test" is 4th of June. So more updates later.
I feel pretty positive you are right about this at least the right direction.
I would keep a journal... the monitor will give an idea. Just make sure you do normal activities on the monitor (take a shower before you go as you cannot with the monitor on and wear a shirt that buttons on the front). Journal events during the monitor too.
Let us know how it goes!
Let us know how it goes!
24 hour heart monitor, "stress" test, and the Neurologist said possibly a neck injury, possible it may be a circulation problem and if not either of those then we need to look into things like "Chronic Fatigue Syndrome or Fibromyalgia". So he ordered an MRI of my neck. Which was also normal.
NOTE: on my stress test. Im not sure exactly what he looks for, maybe just my heart rhythm while heart is under stress like running. He said it was normal but it wasnt that normal for me. On arrival, heart rate 78 blood pressure 115/65. Good right?
About 5-10 minutes later the doc comes in to start the test I stand up and get on treadmill, Look over at the machine and my heart rate was already at 103. Wasnt nervous or anything. So test begins every 2 minutes the treadmill raises and speeds up.
My target heartrate for this was 165
So it starts, within first 2 minutes my hearrate is 120
next 2 minutes breaks 140
next 2 minutes almost at 165 .. Doing a medium fast walk
I break 165
but the doc wants to continue another 2 minutes and before it stopped it was at 189. At a fast paced walk inclined.
The doc was like "you didnt even run". but after he said it was normal. Thats not normal for me especially being athletic for past 5 years.
Tomorrow Im gonna try and see my primary doc to see what he says about it. So far I have NO answers for anything. Now that he has done the tests he wanted to do, Im going to have him do some orthostatics on me also order a CD57 test. The hospital already has done a Lymes test. But someone that i know that has it had it at the same hospital and theirs came back negative as well.
I have no doctor yet to even agree with what I think it is. Just because Im on the west coast, "no its not likely at all that you have that" or "your symptoms dont match"... Some of these docs dont even look at my medical history.
This is what I think, If I have Lymes.
Lymes suppresses your immune system from even knowing it has an infection. So with these new symptoms the ones that seem to be "cardiac" or circulation related. If Lymes is suppressing my immune system then I could possibly have 2 or maybe more infections. One I was looking at was yeast infection. that would easily note inguinal/testical pain, low abdomen, low back, nausea.
To even note that. The friend of mine that actually has Lymes recommended I try taking some "Oil of Oregano". He gave me a very strong solution of it along with capsules to fill with the liquid. Ive taken them for 3 days now. The first day was bad, thought I was gonna throw up that night. Im on day 3 with no low abdomen pain. That was the first to go with taking this. Since it has no side effects and seems to be helping I will continue.
I plan on seeing a specialist for Lymes, whether my primary care wants me to or not.
Ill let you know how that goes.
NOTE: on my stress test. Im not sure exactly what he looks for, maybe just my heart rhythm while heart is under stress like running. He said it was normal but it wasnt that normal for me. On arrival, heart rate 78 blood pressure 115/65. Good right?
About 5-10 minutes later the doc comes in to start the test I stand up and get on treadmill, Look over at the machine and my heart rate was already at 103. Wasnt nervous or anything. So test begins every 2 minutes the treadmill raises and speeds up.
My target heartrate for this was 165
So it starts, within first 2 minutes my hearrate is 120
next 2 minutes breaks 140
next 2 minutes almost at 165 .. Doing a medium fast walk
I break 165
but the doc wants to continue another 2 minutes and before it stopped it was at 189. At a fast paced walk inclined.
The doc was like "you didnt even run". but after he said it was normal. Thats not normal for me especially being athletic for past 5 years.
Tomorrow Im gonna try and see my primary doc to see what he says about it. So far I have NO answers for anything. Now that he has done the tests he wanted to do, Im going to have him do some orthostatics on me also order a CD57 test. The hospital already has done a Lymes test. But someone that i know that has it had it at the same hospital and theirs came back negative as well.
I have no doctor yet to even agree with what I think it is. Just because Im on the west coast, "no its not likely at all that you have that" or "your symptoms dont match"... Some of these docs dont even look at my medical history.
This is what I think, If I have Lymes.
Lymes suppresses your immune system from even knowing it has an infection. So with these new symptoms the ones that seem to be "cardiac" or circulation related. If Lymes is suppressing my immune system then I could possibly have 2 or maybe more infections. One I was looking at was yeast infection. that would easily note inguinal/testical pain, low abdomen, low back, nausea.
To even note that. The friend of mine that actually has Lymes recommended I try taking some "Oil of Oregano". He gave me a very strong solution of it along with capsules to fill with the liquid. Ive taken them for 3 days now. The first day was bad, thought I was gonna throw up that night. Im on day 3 with no low abdomen pain. That was the first to go with taking this. Since it has no side effects and seems to be helping I will continue.
I plan on seeing a specialist for Lymes, whether my primary care wants me to or not.
Ill let you know how that goes.
*FIX*
24 hour heart monitor normal, "stress" test normal, and the Neurologist said possibly a neck injury,
24 hour heart monitor normal, "stress" test normal, and the Neurologist said possibly a neck injury,
so I followed up with my primary care doctor.
I told him what the Neurologist said as far as what he thinks in possibilities.
Neck injury which MRI was normal. If not that, possible circulation problem which my doctor reviewed stress test didnt do any orthostatics i then asked him if he wanted to do them he said he is going to NOTE it and wants to try this drug called Gabapentin (Neurontin) which is a seizure medicine ...epilepsy. Or can be used for "nerve pain" cause by shingles. I researched this after getting home. I guess he is thinking the rash I describe may be herpes zoster? Except for the fact that the rash doesnt come above the skin, doesnt scab over....
anyways, also told him the neurologist said that if its neither neck injury or circulation.. then he said to look into Chronic Fatigue Syndrome or Fibromyalgia.
My doc proceeded to do "tender point" test on my body.. following up with saying that I only have half the tender points that a fibromyalgia patient has...
so hes putting me on this medication at 100mg. wants me to follow up with him in 2 or 3 weeks and at that point "see how its going" and see if my tender points have gone away. then wants to up the dosage.
I told him about "oil of oregano" and what it did for my lower abdomen. He didnt know what oil of oregano was. Then I followed up with telling him about a specialist id like to see and a test they do. The CD57 test. He didnt know what that was either.
So I have decided I am going to go see the specialist anyways, even though he thinks i shouldnt waste my money. I think its worth the money because my doc is wasting MY TIME, no one should have to wait this long to get answers and be in constant pain because their doctor wants to try and treat individual symptoms 1 at a time months apart.
My last note: I have taken these meds twice now. The first time way about 8 hours ago and within that first 4 hours it seemed to do nothing except increase my chest pain and my blood pressure went up to 156/94 just sitting in my room. I took 1 mL of oil of oregano and layed down seemed to go away. Its now 2 am, I tried taking another pill about 30 mins ago. I cant sleep yet again tonight tho I feel tired.
KEEP YOU POSTED ON VISIT TO THE SPECIALIST WHEN I GET IT
I told him what the Neurologist said as far as what he thinks in possibilities.
Neck injury which MRI was normal. If not that, possible circulation problem which my doctor reviewed stress test didnt do any orthostatics i then asked him if he wanted to do them he said he is going to NOTE it and wants to try this drug called Gabapentin (Neurontin) which is a seizure medicine ...epilepsy. Or can be used for "nerve pain" cause by shingles. I researched this after getting home. I guess he is thinking the rash I describe may be herpes zoster? Except for the fact that the rash doesnt come above the skin, doesnt scab over....
anyways, also told him the neurologist said that if its neither neck injury or circulation.. then he said to look into Chronic Fatigue Syndrome or Fibromyalgia.
My doc proceeded to do "tender point" test on my body.. following up with saying that I only have half the tender points that a fibromyalgia patient has...
so hes putting me on this medication at 100mg. wants me to follow up with him in 2 or 3 weeks and at that point "see how its going" and see if my tender points have gone away. then wants to up the dosage.
I told him about "oil of oregano" and what it did for my lower abdomen. He didnt know what oil of oregano was. Then I followed up with telling him about a specialist id like to see and a test they do. The CD57 test. He didnt know what that was either.
So I have decided I am going to go see the specialist anyways, even though he thinks i shouldnt waste my money. I think its worth the money because my doc is wasting MY TIME, no one should have to wait this long to get answers and be in constant pain because their doctor wants to try and treat individual symptoms 1 at a time months apart.
My last note: I have taken these meds twice now. The first time way about 8 hours ago and within that first 4 hours it seemed to do nothing except increase my chest pain and my blood pressure went up to 156/94 just sitting in my room. I took 1 mL of oil of oregano and layed down seemed to go away. Its now 2 am, I tried taking another pill about 30 mins ago. I cant sleep yet again tonight tho I feel tired.
KEEP YOU POSTED ON VISIT TO THE SPECIALIST WHEN I GET IT
Neurontin takes some getting used to - so do not expect anything in the beginning and it also requires being taken on time as well as no alcohol etc. Many get side effects. It can be good but takes working with IF it is the medicine for you. I also tried it as well as others in the class.
Let us know how it goes.
Let us know how it goes.
Have an Answer?
You are reading content posted in the Brain/Pituitary Tumors Community
Here are 15 ways to help prevent lung cancer.
New cervical cancer screening guidelines change when and how women should be tested for the disease.
They got it all wrong: Why the PSA test is imperative for saving lives from prostate cancer
Everything you wanted to know about colonoscopy but were afraid to ask
A quick primer on the different ways breast cancer can be treated.
Get the facts about this disease that affects more than 240,000 men each year.
