Cancer Community
Bladder cancer
About This Community:

This patient support community is for discussions relating to cancer, cancer staging, chemotherapy, hormonal therapy, radiation therapy, surgery, and tumor types.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Bladder cancer

About six months ago I was diagnosed with early stage bladder cancer.  I was invited to participate in a research study where I had 50/50 chance of receiving a chemo swab after removal of the tumors, which I agreed to do because I was told there was no other txtment.  The two tumors were removed, and because the study is double-blind I don't know if I received the chemo swab txtment.  Three months later two new tumors were found and I am scheduled to have those removed in one week.  Again I'm told no other txtment is available as there is a shortage of txtment drugs.  I would like to know if there are any other txtments available and, if so, what they are.  Any advice on how to proceed from this point?  Second opinion in order?  Thanks in advance for your help. c
Related Discussions
7 Comments Post a Comment
Blank
Avatar_dr_f_tn
Hi,
How are you? The treatment for bladder cancer depend on a number of factors, including the type and stage of the cancer, your overall health and your treatment preferences- whether surgical or medical. A second opinion may be helpful at this point. Take care and do keep us posted.
Blank
Avatar_dr_f_tn
Hi,
How are you? The treatment for bladder cancer depends on a number of factors, including the type and stage of the cancer, your overall health and your treatment preferences- whether surgical or medical. A second opinion may be helpful at this point. Take care and do keep us posted.
Blank
Avatar_n_tn
I am not a doctor but have undergone treatment for bladder cancer. Standard procedure among urologists for early stage bladder cancer is inserting BCG into the bladder once a week for six weeks and/or mitomycin treatment after tumor removal.

There is no shortage of either of those drugs.

Ask your doctor about them.
Blank
Avatar_f_tn
Thank you for taking the time to answer.  I will have the mitomycin for the 6 treatments shortly, and have had surgery.  Hope all is well with you.
Blank
Avatar_f_tn
What is the procedure for securing a second opinion?  I am having some difficulty with this.
Blank
Avatar_n_tn
BCG is given once a week for six weeks so I'm sure that's what you mean . I never had a problem with the treatments, but the nurses at my doctor's office told me some people have a bad reaction to BCG. It's a cumulative effect, meaning you may feel fine the first week, but by the fourth, you're developing flu-like symptoms or feeling pain. Make sure your doctor is aware of any side effects you may experience.

For a second opinion, ask friends for referrals, see who's on the staff of your local medical school or hospital, contact your insurance company for suggestions or go back to your primary care doctor for a second referral. It's no big deal.

As you found out, bladder tumors recur rather fast after being removed. The urologist's playbook calls for tumor removal, BCG treatments and close monitoring(frequent cystoscopies) for the first few years. I don't know if a second opinion will tell you anything  different.

However. Dr. Santos is correct in that the staging of the tumor may influence one doctor's decision to act in a certain way while a second doctor may feel it should be treated in an entirely  different manner and present you with another treatment choice. Your doctor is legally obligated to provide you with a copy of your records. Get those and take it somewhere else if you'll feel better.
Blank
Avatar_f_tn
Thanks for all your help and taking the time to respond.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Cancer Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Cancer Answerers
612551_tn?1247839157
Blank
Jerry_NJ
NJ
Avatar_m_tn
Blank
drake801
bloomingburg, NY