Need info on rare cancer

[ravcol]

Hi, I was diagnosed with sebaceous carcinoma on my scalp a few days ago and was told this was very rare.  I am going for more surgery tomorrow and a full body CT scan on Tuesday. I am very worried because I have been having severe eye and pelvic pain, neuropathy and mucsle pain for three years without diagnosis.  My mother had basil cell carcinoma and later died from colon cancer, she was the sixth person on her side of the family. I have had colonoscopys with nothing unusual showing up but my younger sisters have had polyps and one with chron's disease. I am 38 years old and am very worried because the lack of info out there. Have you seen this before and what treatment beside surgery will they do?

[flamingjone]

Thanks for posting this. If everyone spreads the word, maybe we can bring this to light and help save lives. Thank you,

[fury6]

I'm sorry I'm unable to answer your questions. I was just wondering what were your symptoms of this cancer? How did they know you had it