Thanks Selma! I didn't relise we had a group here :)
We do have a EDS group here on MedHelp and info in the Health Pages as well.
http://www.medhelp.org/forums/Ehlers-Danlos-Syndrome/show/417?camp=msc
And yes...if u have Chiari u should have EDS ruled out b4 surgery as it can complicate recovery.
If u have more questions please ask
"selma"
I have EDS and I agree with Selma. Often times it's found that Chiari and EDS go together.
This is a very good site for Ehler's Danlos education. My sister and mom have attended 2 of their confrences.
http://www.ednf.org/index.php?option=com_content&task=view&id=1348&Itemid=88888969
Wow wath you're describing is scary, I have some symtomes of the minor type as well as varicos veins, should I discust this with my doctor?
Hi...the connection can be a type of Ehlers-Danlos Syndrome
Major Diagnostic Criteria for the Vascular Type of EDS
Arterial rupture
Intestinal rupture
Uterine rupture during pregnancy
Family history of the vascular type of EDS
Minor Diagnostic Criteria for the Vascular Type of EDS
Thin, translucent skin (especially noticeable on the chest/abdomen)
Easy bruising (spontaneous or with minimal trauma)
Characteristic facial appearance (thin lips and philtrum, small chin, thin nose, large eyes)
Acrogeria (an aged appearance to the extremities, particularly the hands)
Hypermobility of small joints
Tendon/muscle rupture
Early-onset varicose veins
Arteriovenous carotid-cavernous sinus fistula
Pneumothorax/pneumohemothorax
Chronic joint subluxations/dislocations
Congenital dislocation of the hips
Talipes equinovarus (clubfoot)
Gingival recession