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Anyone experience Cerebellar Cognitive Affective Syndrome
New to group: 04/06/16 Decompressed with C1 lami- autologous patch- severe post-op vomiting immediately following surgery- ended up with CSF leak and large pseudomeningocele about 1 month post op-finally with repair on May 31 2016. I did have cerebellar cautery with first surgery also but there is encephalomalagia to both cerebellar areas left greater than right which is where the leak originated. I had improvement of the acuteness of symptoms after the leak was repaired but was again slowly developing problems again within another 2 months and continue to do so. List too long to detail. Main question is if anyone formally diagnosed with cerebellar cognitive affective syndrome? I know the circumstances that brought this issue on for me but wondering if anyone else has been identified with this and what the circumstances are? Thank you!
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