Aa
A
A
Close
Avatar universal
Chiari and syringomyelia
Hi. I just joined this forum a few days ago. I have been decompressed in the last year but have CM1 and syringomyelia . Is anyone else in my same situation? I would love to know how others are doing post surgery and whether anyone had improvements past the 1 year post surgery timeframe!

Thanks,
Jen
Cancel
2 Answers
Page 1 of 1
620923 tn?1452919248

  Hi...I do not have syringomyelia, but have tethered cord...and was decompressed in May of '09 and I just wanted to say that I did see benefits and changes form 1 yr to the 2nd yr post op.

  Hang in there : )

  "selma"
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Avatar universal
Hey! I was decompressed 2 and a half years ago for those things exactly. As the doctors said my surgery 'didn't go as well as they hoped' and still have a remaining syrinx in my back. However the difference between one year post op and the second year were quite different. A lot more of my syrinx had moved and my symptoms became so infrequent that I almost forgot I was ever diagnosed! However, 2 and a half years later i'm now experiencing symptoms again that I need to go and get more scans for. It really varies from person to person but in everyone that i've met every thing has gotten at least slightly better between that time frame.
Wish me luck for my next scans and good luck for your future :)
Lex.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Your Answer
Avatar universal
Answer
Do you know how to answer? Tap here to leave your answer...
Answer
Answer
Post Answer
A
A
Recent Activity
Avatar universal
Blank
bd8804 joined this community
Welcome them!
Dec 08
Avatar universal
Blank
bd8804 joined this community
Welcome them!
Dec 08
Avatar universal
Blank
Stroud5393 uploaded a new photo
Dec 05
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
987762 tn?1331031553
Blank
Australia
Avatar universal
Blank
Queensland, Australia
Avatar universal
Blank
Avatar universal
Blank
Trinity , TX
Avatar universal
Blank
Chiari Malformation Community Resources
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
987762 tn?1331031553
Blank
Australia
Avatar universal
Blank
Queensland, Australia
Avatar universal
Blank
Avatar universal
Blank
Trinity , TX
Avatar universal
Blank