CHIARI MALFORMATION COMMUNITY
For all of us.

For all of us.

After a fall today I had a rest, and then behold -- somewhere, somehow, moments of lucidity, and verbage. I stole the moments with pen in hand, and offer you, my new friends and family this token.

                                           By Sabby
Have you seen my phone?
I lost my keys.
I can’t find the word.
Will you help me, please?

I’ve fallen again.
But I’ll be okay.
Can’t get off this ship.
It’s starting to sway.

I used to be smart.
I ran the whole show.
Now my brain just won’t play.
Problems with flow.

My big pregnant brain
Is going to burst,
Unless it can find
A way out of me first.

Where did my sweet
Husband’s helpmate go?
And our kids’ playful Mom?
Bet they wanna know.

It’s so strange to look
In doctors’ baffled faces.
To get any real help
Means finding far-off places.

The thing has a name.
It’s said, “Kee-ah-ree”.
Now I know what I have,
But it doesn’t have me.

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16 Comments Post a Comment
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Avatar_n_tn
Beautiful!!!
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Avatar_n_tn
I fell yesterday too and paying for it today, can't seem to focus on anything but walking and sometimes, although careful, I forget and fall. No matter how hard u try it slips ur mind sometimes!
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1435895_tn?1304294841
Awesome poem!
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1372734_tn?1309953837
Love it!!!  Hearfelt and oh so true!!!!!!
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620923_tn?1335125657

Thanks for sharing this inspiring poem : )

I am sure we all can see ourselves in it.

"selma"
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1645944_tn?1305246937
Thank you for your responses. I was nervous to share at first, but I keep seeing that this is a place where we seem to get each other's predicament, and that is something hard for me to find these days.
Like Selma said in her 10 Things not to say to Chiarians, when they say, "I know how you feel", they really dont. But you do, and I appreciate having a place where I don't have to explain myself. Thank you for being so accepting.
--Abby
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1624353_tn?1313431861
brought a tear to my eye,thankyou for sharing x
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Avatar_f_tn
I LOVE this.. Thank you so much for sharing..I had my husband read it and he says to me .. wow I understand a bit more.....

Shanny
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1179332_tn?1297482590
GREAT poem....very insightful to what we all go through!! Thanks for sharing :)

Stormy
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1674224_tn?1308026465
wow nice, i should read it again. then have him read it.i so feel that way.lol

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1342095_tn?1283123851
That is BEAUTIFUL!
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1664208_tn?1332786550
That is a great poem! thankx for sharing it.
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1451338_tn?1316106367
WOW!!! Thank you!
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1645944_tn?1305246937
Thank you so much for the kind remarks. Isn't it funny how our loved ones really need to hear someone else say the same things before they really get that our experience is real, that all of the weird things we are going through are the same weird things that all the rest of us are going through. I am so glad it has helped to clear things up for some. Blessings for all as we walk through this journey together!
Abby
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1645944_tn?1305246937
Hope this helps. You will find a way.
Abby
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1687929_tn?1319429611
Thank you abby I found it. It will help.
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