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Intracranial cervical instability post Chiari decompression

Has anyone been diagnosed with CCI post Chiari decompression? He is thinking that I have this due to my pain, falling and etc. This is another major surgery and I want another opinion. What do I need to do to have another neurosurgeon see me for a second opinion?
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620923 tn?1452915648
COMMUNITY LEADER

  Hi....sorry I missed ur question ..Thanks Sara_Jane for responding....

The link for the list of Drs is here-  http://www.medhelp.org/health_pages/list?cid=186
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Avatar universal
I have not been diagnosed with EDS yet. He only did the xrays.
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4489852 tn?1375753951
DX stands for diagnosis. EDS stands for Ehler's-Danlos Syndrome, which is a connective tissue disorder in which a protein in your connective tissue is faulty. This makes our joints and ligaments more stretchy and unstable which can lead to craniocervical instability, along with removing part of the vertebrae like Selma mentioned. Many people go to The Chiari Institute in New York, I have not heard of opinions on Duke, so hopefully someone else will be able to jump in with that. Good luck with everything!
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Avatar universal
I'm not sure what an DX or EDS is. However, my PCP is trying to get me into duke. Where does those doctors that u recommended.

Thank you,
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620923 tn?1452915648
COMMUNITY LEADER

  Hi....yes this can happen post op...but I am sure u may have had some instability pre op as well but having part of C1 and C2 shaved off can make it that much more unstable....

Have u gotten a DX of EDS?

Have u had other post op issues?

IMHO I would get another opinion.
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